Tony Britton

@TheWestonMale

Fundraising Manager with the . From 1/2/20, this feed will focus entirely on M.E. (aka ME/CFS) and issues relating to chronic illness.

Weston, near Spalding
Vrijeme pridruživanja: studeni 2014.

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    A moving and true story about a little girl and her super energetic, superhero Dad who’s battery suddenly and unexplainably becomes broken and will not fully recharge. Due for release 28th March 2020! More info at

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    We invite the OMF community to participate in every Wednesday from 3-4 PM EST: One hour every week, patients and allies tweet about ME/CFS using the hashtag . The event takes place simultaneously in all time zones to achieve maximum influence.

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    ‘Have you tried...?’ Extracts from my novel The State of Me (2008). My character has dx ME mid ‘80s as described by late Melvin Ramsay (postviral). Confusingly, criteria have proliferated, RamsayME not so much at core. But all w dx of ME criminally left adrift.

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    don’t forget about the wonderful new toolkit for ME Awareness Hour... New artwork has been added for you to use. Thank you for this 😘 XXX

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    Two years ago I had a bright future. Now I am unable to talk, walk or eat, and have to deal with fatigue, pain, paralysis and more. ME receives less research funding than male pattern baldness, yet is more debilitating than MS. How is this acceptable in 2020?

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    ME patients experience a worsening of symptoms following ANY activity. This is called Post-exertional malaise (PEM), or ‘payback’. This means that if I choose to spend a few minutes talking to a friend, I’m likely to ‘pay’ for it for hrs, or even days afterwards

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    Three medical case studies suggest low-dose Naltrexone may be helpful in at least some patients with chronic fatigue syndrome and myalgic encephalomyelitis,"

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    . YOU MUST The existing ME Guidelines have caused irreparable damage to By failing to warn ppl of harm on the existing Guidelines, pending new & better ones, you are enabling ongoing harm to new patients.

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    prije 12 sati

    Full roll out of universal credit (UC) is being delayed again, adding £500m to its overall cost. The system was meant to be fully live by April 2017, but the new delay will push it back to September 2024.

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    The BBC takes an in depth look at Universal Credit from all angles. Part 1 of 3 was broadcast last night and is available on iPlayer.

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    Every Wednesday Lets get trending to raise desperately needed awareness of

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    It's 4.30am here & I've given up trying to sleep. I'm tired but wired (and sore) after my tooth extraction yesterday. Why do our bodies do this to us? - not let us rest when we need it the most. Good news though: my Internet connection is back. Anyone else awake?

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    prije 22 sata

    “The scandal of welfare cuts isn’t simply people are dying, it’s they’ve been dying for some time and nothing has been done about it. We pretend it’s normal. It isn’t. We tell ourselves it can’t happen in a country like ours. It can and it is.” >> My col.

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    Sir David Norgrove has replied to Margaret Greenwood MP () about statements made on Universal Credit at Prime Minister's Questions.

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    As a wheelchair user you simply cannot follow the crowd: they’re usually headed towards a flight of steps!At Paddington station last week, I struggled to find lifts, poor signage.

    Paddington railway station. Signs on the floor are giving directions to passengers. There are legs running across the picture. Legs are running towards stairs, they are not in the picture
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    What do you think are some of the ‘disability admin’ challenges that non-disabled people don’t necessarily see? Things like booking train assistance, chasing up prescriptions, having to pay for new medical evidence... looking for as many examples as possible!

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