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Tony Britton proslijedio/la je Tweet
Wonderful
#pwME, what a fantastic result. XXXhttps://twitter.com/mira_yxc/status/1225169450082672640 …
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Tony Britton proslijedio/la je Tweet
#superchargedsuperhero A moving and true story about a little girl and her super energetic, superhero Dad who’s battery suddenly and unexplainably becomes broken and will not fully recharge. Due for release 28th March 2020! More info at http://gemmaeverson.com#MEawarenesshourHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Tony Britton proslijedio/la je Tweet
We invite the OMF community to participate in
#MEAwarenessHour every Wednesday from 3-4 PM EST: One hour every week, patients and allies tweet about ME/CFS using the hashtag#MEawarenesshour. The event takes place simultaneously in all time zones to achieve maximum influence.Prikaži ovu nitHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Tony Britton proslijedio/la je Tweet
‘Have you tried...?’ Extracts from my novel The State of Me (2008). My character has dx ME mid ‘80s as described by late Melvin Ramsay (postviral). Confusingly, criteria have proliferated, RamsayME not so much at core. But all w dx of ME criminally left adrift.
#MEAwarenesshourpic.twitter.com/p1DzijXIlY
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Tony Britton proslijedio/la je Tweet
#pwME don’t forget about the wonderful new toolkit for ME Awareness Hour... New artwork has been added for you to use. Thank you for this@AertbyLisa
XXXhttps://twitter.com/aertbylisa/status/1225130514216079362 …
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Tony Britton proslijedio/la je Tweet
Two years ago I had a bright future. Now I am unable to talk, walk or eat, and have to deal with fatigue, pain, paralysis and more. ME receives less research funding than male pattern baldness, yet is more debilitating than MS. How is this acceptable in 2020?
#MEAwarenessHourpic.twitter.com/NqiXYvOF7V
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Tony Britton proslijedio/la je Tweet
ME patients experience a worsening of symptoms following ANY activity. This is called Post-exertional malaise (PEM), or ‘payback’. This means that if I choose to spend a few minutes talking to a friend, I’m likely to ‘pay’ for it for hrs, or even days afterwards
#MEawarenessHourHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Tony Britton proslijedio/la je Tweet
#MEawarenesshour There is strength in our numbers.#pwME#ME#MECFS#MyalgicEpic.twitter.com/SZiEXzLW3U
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Tony Britton proslijedio/la je TweetHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi
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Tony Britton proslijedio/la je TweetHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi
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Tony Britton proslijedio/la je Tweet
Three medical case studies suggest low-dose Naltrexone may be helpful in at least some patients with chronic fatigue syndrome and myalgic encephalomyelitis," http://ow.ly/ommZ50ydzVf
#MECFS#cfsHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Tony Britton proslijedio/la je Tweet
.
@NICEcomms YOU MUST#TakeMEseriously The existing ME Guidelines have caused irreparable damage to#pwME By failing to warn ppl of harm on the existing Guidelines, pending new & better ones, you are enabling ongoing harm to new patients.#MillionsMissing#MyalgicEPrikaži ovu nitHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Tony Britton proslijedio/la je Tweet
Full roll out of universal credit (UC) is being delayed again, adding £500m to its overall cost. The system was meant to be fully live by April 2017, but the new delay will push it back to September 2024.https://tinyurl.com/vqa72p9
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Tony Britton proslijedio/la je Tweet
The BBC takes an in depth look at Universal Credit from all angles. Part 1 of 3 was broadcast last night and is available on iPlayer.https://tinyurl.com/vr8z5wl
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Tony Britton proslijedio/la je Tweet
Every Wednesday Lets get
#MEAwarenesshour trending to raise desperately needed awareness of#ME#MEcfshttps://twitter.com/MEActNetUK/status/1222609328814874627 …Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Tony Britton proslijedio/la je TweetHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi
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Tony Britton proslijedio/la je Tweet
“The scandal of welfare cuts isn’t simply people are dying, it’s they’ve been dying for some time and nothing has been done about it. We pretend it’s normal. It isn’t. We tell ourselves it can’t happen in a country like ours. It can and it is.” >> My col.https://www.theguardian.com/commentisfree/2020/feb/04/errol-graham-welfare-uk-benefit-cuts-disability-deaths?CMP=Share_iOSApp_Other …
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Tony Britton proslijedio/la je Tweet
Sir David Norgrove has replied to Margaret Greenwood MP (
@MGreenwoodWW) about statements made on Universal Credit at Prime Minister's Questions. http://ow.ly/Dc6b50ydhrS pic.twitter.com/WR1Wi2BiSA
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Tony Britton proslijedio/la je Tweet
As a wheelchair user you simply cannot follow the crowd: they’re usually headed towards a flight of steps!At Paddington station last week, I struggled to find lifts, poor signage.pic.twitter.com/664IQAim5N
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Tony Britton proslijedio/la je Tweet
What do you think are some of the ‘disability admin’ challenges that non-disabled people don’t necessarily see? Things like booking train assistance, chasing up prescriptions, having to pay for new medical evidence... looking for as many examples as possible!
#TakingTheDisHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi
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