Sue YFC
@SueYFC
Sue Pemberton, Therapy Director for the Yorkshire Fatigue Clinic.
yorkshirefatigueclinic.co.ukJoined October 2012
Sue YFC’s Tweets
key learning for clinicians in Long Covid service and sounds like the content was very relevant for practice. All this will directly reflect positively in patient experience & outcomes. Thanks &
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We want Health and Social Care services to improve in York. Share your experiences with us here: healthwatchyork.co.uk/your-feedback/
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health and care professionals to choose their top ten #MEcfs research priorities from the earlier submission.
Closes 13th December.
Go here for survey:
psp-me.co.uk/take-part/
Here for discussion on :
s4me.info/threads/uk-pri
#pwME #MyalgicE
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What an incredible film. Thank you to everyone who took part. A powerful tool
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Dear Doctor, you can help ME.
The new #MyalgicEncephalomyelitis guideline by @NICEComms is out. Together, we can reach health professionals across the country & share this guideline with them.
Learn how: meaction.net/2021/11/09/tel
#pwME #DearDoctor #ImplementThatGuideline.
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I have YFC to thank for getting me from bedbound to the level I’m currently at (and through my doctorate at the same time!) Thank you for always believing and validating your patients, especially when the ‘evidence’ sometimes said otherwise.
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Great to hear and majority of clinicians want the best for their patients ... hope all those living with #MECFS will benefit from services as good as Yorkshire Fatigue clinic!
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2/2 We believe that this guidance will increase awareness and understanding in the wider occupational therapy workforce and support person centred care for people with this condition.
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1/2 We welcome the release of the NICE guideline on ME/CFS. Occupational therapists have a key and unique role supporting people with ME/CFS both within specialist services and across all aspects of health and social care.
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NICE has today published its updated guideline on the diagnosis and management of myalgic encephalomyelitis /chronic fatigue syndrome (ME/CFS). Read more here: bit.ly/3CsS5lJ
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Thank you it’s been a very long road to this point and more work to do to make this a reality in practice but it’s a start.
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Replying to @TomKindlon @marydimmock and 5 others
Would also add @SueYFC MECFS expert quietly getting on with her role at Yorkshire Fatigue Clinic and @theRCOT rep at roundtable discussion. 
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NICE has today published its updated guideline on the diagnosis and management of myalgic encephalomyelitis /chronic fatigue syndrome (ME/CFS). Read more here: bit.ly/3CsS5lJ
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We’ve announced the next steps for publication of our updated guideline on the diagnosis and management of ME/CFS. Read the full story here: bit.ly/3DZ8sqM
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Janet Sylvester #MEAction UK said about today's NICE roundtable.
“I felt this was a positive meeting. There were large areas of agreement from all attendees, ..... I'm optimistic for a swift decision from NICE to publish the guideline.
#pwME #PublishThatGuideline
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Thank you for listening to feedback and being prepared to help work with those involved to get these published asap - this is about change and moving forwards not back
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Replying to @theRCOT and @MEAssociation
3/3 We will continue to work with NICE, our own experts, and other groups to help move towards the guidelines being published asap, and to ensure they can be supported in practice.
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This is good news and I hope that will attend to support how OTs can implement the new guidelines.
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@SueYFC @thercot @LongCovidOT @LongCOVIDPhysio ....in case you hadn't this from NICE today 
#MECFS t.co/OOzzMf5CR0
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Specific doctors who are voicing their opinion do not represent all health professionals. Many support the new guidelines and want to work for change. This should be about professionals & patients working together for people who are suffering, not power or justifying the past
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NICEXIT: Royal Colleges look to “take back control” of treatment standards
#MECFS #medtwitter #psychtwitter #pwME #MyalgicE #NICEXIT
thesciencebit.net/2021/08/22/nic
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For my #LongCovid patients and followers:
Graded exercise #GET and #pulmonaryrehabilitation are not not not indicated in the presence of #PEM - post exertion malaise/symptom exacerbation.
I’m sorry if some messaging or some people are not clear about this.
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Replying to
I'll think you'll agree Sue, that many clinics and many members of BACME have moved on from CBT/GET and accepted changes need to be made. This is from figures at the top of the royal colleges, not those implementing guideline!
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Really good point Sue. I would have thought that if anyone the would be the college objecting! I’m ashamed of my learned body the so far they have shown no concern for #pwME
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Thank GOODNESS I am managed by the Yorkshire Fatigue Clinic & not the inadequate local service who told me they knew GET was harmful but 'without it, we'd have nothing to offer'. #MECFS
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Congratulations a beacon of light for those with #MECFS truly evidence based practice 👏👏. Please take note this is what good looks like ❤️
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Thank you to all the patients who reviewed the service and we have won Making a Difference Awards for fourth year - shows you don’t need CBT/GET to help people with #MECFS
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1. just want to say one of the best discussions on GET Ive ever heard in the UK by health professionals! You all make such excellent points. Its important not to forget the CBT-GET "Model" of ME-CFS - which claimed patients are avoiding, due to false beliefs of illness!
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So great to see such positivity, for all the right reasons, and engagement with history and context in being able to bring something more, better and more hopeful for recovery of #longcovid patients as well as #pwme
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Hot off the press - here’s pt2, where and I take on the controversial subjects of Graded Exercise Therapy and CBT and their applicability to Long Covid (and ME/CFS).
Huge thanks to , , and !
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This is also a useful resource for people with #ME #CFS #MyalgicEncephalomyelitis and other post vital syndromes.
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We all know pacing is key in Long Covid - but why, how and when should we do it?
Invaluable advice from the experts here, as @doctorasadkhan and I talk to
@darrenabrown, @sunsopeningband, @respphysio & @SueYFC.
youtu.be/gUPvNwvkOlA
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Response to #COVID19 Briefing Paper 9
“Safe #Rehabilitation Approaches for People Living with #LongCOVID: Physical Activity and #Exercise”
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Our latest #COVID19 briefing paper focuses on safe rehabilitation for people living with #LongCovid
Find out more: ow.ly/IUdt50FbsJx
#GlobalPT @LongCOVIDPhysio
@AWcpta @ERWorldPhysio @WorldPhysioNACR @WorldPhysioSAR
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Lol 🤣 I'm laughing because I can totally relate 🙈but it's so hard 🤦🏼♀️ I just stop mid sentence because I can't remember words or forget what I'm talking about!
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Me too...we need proper assessments & guidance. It's not a natural thing to #StopRestPace & takes alot of brain power to work it out ourselves. Let's hope we get the help we need & deserve sooner rather than later 🙏 Also hard for ppl to understand why we need to do this 🙈
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Really helpful explanation of the causes of fatigue in Long COVID and factors to consider in management. Tying in well with our previous webinars on nutrition and sleep. Thanks @jennykeaneCAHPO
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Happy to contribute to education around fatigue in #LongCovid
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Attended an excellent webinar run by @HSCCEC for health professionals. As a #LongCovid pt & nurse, @SueYFC presented a comprehensive, clear way of understanding & treating #fatigue in LC. Encouraging to see education starting in NI. Thank you
@pippa_mccabe @jennykeaneCAHPO
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Replying to
I became ill after breakdown in 2013. I was helped immeasurably by at Yorkshire Fatigue Clinic. Sue taught me about the illness and about pacing, and also helped me get over my denial! I had a very poor GP who didn't believe in ME, and haven't seen another for a while.
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Preparations are well underway for Leeds Millions Missing 2021 -
but I need YOUR help!
I'm asking people with ME in Leeds and across Yorkshire to send in photos of themselves to be shared during the event across social media and on ME & Me (website).
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There are some powerful messages in this article on why it's very important to take breaks between meetings when we're working virtually: 1) So our brains can "reset"; 2) So we can focus & engage better; 3) To reduce stress: forbes.com/sites/brucerog Via @lynnecazaly @Brogers825
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Another fantastic podcast, a must for anyone working with #longcovid patients. Learning so much, many shared experiences in the management of #longcovid patients & always great to hear that what you are doing & advising is along the right lines. Thank you to the panel 😊
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New podcast on Fatigue & Breathlessness in #LongCOVID cohosted with @KalimahOT
Our expert panel:
Dr Sue Pemberton @SueYFC
Julie Moore @BackleyJulie
Natalie Hilliard @Hilliard_Nat
Rebecca Livingston @RebeccaMLiv
Special Guest @darrenabrown
youtu.be/OKg1XDhoKjY
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