Steve Joffe

@SteveJoffe

Research ethics, pediatric ethics, cancer ethics, genomethics, science policy, pediatric oncology @ UPenn. Opinions my own. R/Ts ≠ likes.

Philadelphia, PA
Vrijeme pridruživanja: lipanj 2011.

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  1. Prikvačeni tweet
    13. lis 2019.

    I have collected a list of my favorite guides to aspects of academic life. Please @ me if you know of others that should be added (apologies in advance if, in the interest of parsimony, I don't include them all). Link here:

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  2. prije 17 sati

    Congratulations again to on being named the inaugural recipient of the Baruch A. Brody award and lectureship in bioethics. Baruch was a giant and a gentleman, so this is quite an honor. Lecture happening tomorrow.

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  3. 4. velj
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  4. proslijedio/la je Tweet
    3. velj

    What are our obligations to research participants when an Alzheimer's trial stops early? and I have a new paper out in with our suggestions.

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  5. proslijedio/la je Tweet
    4. velj

    This essay came right out of experience. The calls and emails from research participants and colleagues asking “isn’t there a better way to let the subjects know the trial has ceased???” Emily and I had a lot of fun meshing our ideas. The Child’s story is really quite moving.

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  6. 3. velj

    Congratulations to on being named the inaugural John M. Eisenberg Professor within the Department of Medicine .

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  7. proslijedio/la je Tweet

    Reserve your free tickets today to listen to discuss Emerging Therapies in a New Era of Care with at the on Tuesday, March 3. Learn more here:

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  8. 2. velj

    And a good argument for vaccinating your kids against measles to boot.

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  9. proslijedio/la je Tweet
    Odgovor korisnicima i sljedećem broju korisnika:

    I hope that would work out. Nevertheless, the skeptics among us may be concerned that they'd either be underfunded and/or too much money would go toward administration rather than patients.

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  10. proslijedio/la je Tweet
    2. velj
    Odgovor korisnicima i sljedećem broju korisnika:

    I thought that the proposal for a community development fund may be a compromise for compensation. It probably won’t be adequate and will be subject to many of the same issues of big philanthropy but would be a step in the right direction

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    Odgovor korisnicima i sljedećem broju korisnika:

    I think just think it's so tough for patients to get fairly compensated for the value that their data will provide to these big companies. It may be difficult to quantify, but the companies wouldn't be going after it so strongly if it weren't valuable.

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  13. proslijedio/la je Tweet
    2. velj
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  14. 1. velj

    I assume is thinking about the fact that the bar for parting ways with a visiting scientist is not high.

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  15. 31. sij

    Odd when the point of the “inappropriate” behavior was to interfere with the people’s ability to decide.

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  16. proslijedio/la je Tweet

    Odwazny: Is anyone using the broad consent provision in the revised Common Rule? (Nobody raised their hands This isn't a surprise to anyone.)

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  17. 31. sij
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  18. proslijedio/la je Tweet
    30. sij

    In the United States a large, academic medical center can charge $3897 for....a nose swab.

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  19. proslijedio/la je Tweet
    30. sij
    Odgovor korisnicima

    In an ideal world that would make sense. Unfortunately there is a tremendous power imbalance between patients and providers of their care. We tend to forget that all patients are not created equal. Questioning the hospital is not in the realm of possibility for most patients.

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  20. proslijedio/la je Tweet
    30. sij
    Odgovor korisniku/ci

    Asking questions of physicians is one thing. Could patients learn to ask questions of the hospital itself? Of the CEO? Might that help to improve outcomes and quality of care? And in the whole process?

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  21. proslijedio/la je Tweet
    30. sij
    Odgovor korisnicima i sljedećem broju korisnika:

    Recommend this 2011 piece by Franklin Miller and re equipoise and clinical trials. They argue that justifying RCT by equipoise alone is too narrower a lens and misses the valuable "wider societal interest in evidenced-based health policy"

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