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Prikvačeni tweet
“Navigating Genetic Disease Testing: A Personal Story” | Seth Rotberg | ... https://youtu.be/5_O5TfMVqD8
#HuntingtonsDisease#cureHD#inspireothers#GeneticsHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Seth Rotberg proslijedio/la je Tweet
At
@GlobalGenes#DataDIY David Spencer noted that the typical practice of pharmaceutical companies reaching out to patients for their perspective shortly before a Phase 1 trial is far too late.#patientengagement#raredisease#clinicaltrialspic.twitter.com/rZZ7heRMPN
Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Seth Rotberg proslijedio/la je Tweet
T3 A word about unplugging. When you do it, do it. When you do it just to have a reason to post to tell everyone you are doing it, every two months, lol, it's perhaps not ----authentic. Again, we all KNOW this when we see it. Another form of promotion.
#hcldr :)#pinksocksPrikaži ovu nitHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Seth Rotberg proslijedio/la je Tweet
T1 Being authentic matters, but I often wonder how much authenticity is too much. Do you really want to know when I’m having a bad day? How much of “just being me” is useful to anyone else online?
#hcldrHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Seth Rotberg proslijedio/la je TweetHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi
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Seth Rotberg proslijedio/la je Tweet
Q4. There are some new rare cancer champions on the block such as
@DavidFajgenbaum with his memoir and research.#WorldCancerDayYayorNayHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Seth Rotberg proslijedio/la je Tweet
A4 Share your story and your passion. Post incessantly online. Email media outlets. I've emailed
@TheEllenShow multiple times a year since my diagnosis and never heard back but I'm still committed to trying!#WorldCancerDayYayorNayHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Seth Rotberg proslijedio/la je Tweet
A3 I've never thought about the mental health angle of awareness days, but I think we need to talk about
#mentalhealth in cancer survivors and patients (and caregivers) more in general#WorldCancerDayYayorNayHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Seth Rotberg proslijedio/la je Tweet
A1: I participate in cancer awareness days b/c they bring community. I usually post a blog and/or photo. I faced
#colorectalcancer before social media (although I’m in my 30s!) and it was lonely. Special days + social media help me connect & celebrate.#WorldCancerDayYayOrNayhttps://twitter.com/EverydayHealth/status/1224801580425367557 …
Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Seth Rotberg proslijedio/la je Tweet
Hey all. Justin aka the man behind the ball that is A Ballsy Sense of Tumor here. Diagnosed with testicular cancer at 25 in 2016. Huge advocate for men's health.
#WorldCancerDayYayorNayHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Hi everyone! I am excited to join today’s chat as the Patient Engagement Manager at
@teaminspire. I am a fellow patient advocate and looking forward to connecting with other amazing advocates.#WorldCancerDayYayOrNayhttps://twitter.com/everydayhealth/status/1224800078755500032 …Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Seth Rotberg proslijedio/la je Tweet
Our collaborators,
@_OurOdyssey_ are hosting a free meet-up for young adults in the#RareDisease and#ChronicIllness communities in Boston! Could be a great opportunity to find others who just "get it".https://twitter.com/_OurOdyssey_/status/1224730103067947010 …Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
I am beyond excited to help host this one in Boston. Who else will be there?!
@LillyStairs@bio_kara@Chris_Anselmo@girlschronical1@TheMaisinator@michelerhee@G17Esiasonhttps://twitter.com/_OurOdyssey_/status/1224730103067947010 …Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
There are the sayers and the doers in life.
Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Seth Rotberg proslijedio/la je Tweet
The
@ChanZuckerberg Initiative has selected 30 patient groups to receive $450,000 each over two years to help advance research for#rarediseases. We are proud to announce that more than 50% of the selected organizations are NORD members. Read more:https://bit.ly/36VZlpEHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Seth Rotberg proslijedio/la je Tweet
Worldwide, 100 million people will watch the
#SuperBowl. 3x that many battle#RareDisease every day.@UpliftingAth is proud to work with amazing advocacy organizations like@KIF1A to provide hope to those families through the power of sport!#WeTackleRarehttps://www.kif1a.org/wetacklerare/Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Seth Rotberg proslijedio/la je Tweet
Dubai displayed a tribute to Kobe and Gigi on the tallest building in the world
pic.twitter.com/YSLNd3to8yHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
When you have a passion for something it is no longer a job but a lifestyle.
Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
The person on the outside isn’t always the same person on the inside.
Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Seth Rotberg proslijedio/la je Tweet
Danielle faces one of the toughest decisions in her life: to find out whether she’s got the gene that, like her mum, will make her develop
#HuntingtonsDisease. Watch the full story: https://bbc.in/2u9g23K pic.twitter.com/HWT9MhF6XTHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Seth Rotberg proslijedio/la je Tweet
@HDYOFeed at the second USA Southeast Symposium for HD here in Nashville. Exciting day working with multi disciplinary to improve practice and care for families impacted by HD.#hdawareness#familiesmatter#workingtogether Thank you@claassendoc & team for continued partnershippic.twitter.com/rgSEnKWKL5
Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi
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