Seth Rotberg

@Srotberg15

Co-Founder of |Public Speaker | Nonprofit Leader | Patient Engagement & Advocacy | Board Member - All views are my own

Vrijeme pridruživanja: prosinac 2009.

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  1. Prikvačeni tweet
    7. ožu 2018.

    “Navigating Genetic Disease Testing: A Personal Story” | Seth Rotberg | ...

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  2. proslijedio/la je Tweet

    At David Spencer noted that the typical practice of pharmaceutical companies reaching out to patients for their perspective shortly before a Phase 1 trial is far too late.

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  3. proslijedio/la je Tweet
    prije 11 sati

    T3 A word about unplugging. When you do it, do it. When you do it just to have a reason to post to tell everyone you are doing it, every two months, lol, it's perhaps not ----authentic. Again, we all KNOW this when we see it. Another form of promotion. :)

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    T1 Being authentic matters, but I often wonder how much authenticity is too much. Do you really want to know when I’m having a bad day? How much of “just being me” is useful to anyone else online?

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    Odgovor korisniku/ci

    Q4. There are some new rare cancer champions on the block such as with his memoir and research.

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  7. proslijedio/la je Tweet
    prije 16 sati

    A4 Share your story and your passion. Post incessantly online. Email media outlets. I've emailed multiple times a year since my diagnosis and never heard back but I'm still committed to trying!

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    prije 16 sati

    A3 I've never thought about the mental health angle of awareness days, but I think we need to talk about in cancer survivors and patients (and caregivers) more in general

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    A1: I participate in cancer awareness days b/c they bring community. I usually post a blog and/or photo. I faced before social media (although I’m in my 30s!) and it was lonely. Special days + social media help me connect & celebrate.

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  10. proslijedio/la je Tweet
    prije 17 sati

    Hey all. Justin aka the man behind the ball that is A Ballsy Sense of Tumor here. Diagnosed with testicular cancer at 25 in 2016. Huge advocate for men's health.

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  11. prije 17 sati

    Hi everyone! I am excited to join today’s chat as the Patient Engagement Manager at . I am a fellow patient advocate and looking forward to connecting with other amazing advocates.

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  12. proslijedio/la je Tweet
    prije 21 sat

    Our collaborators, are hosting a free meet-up for young adults in the and communities in Boston! Could be a great opportunity to find others who just "get it".

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  13. prije 21 sat
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  14. 4. velj

    There are the sayers and the doers in life.

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  15. proslijedio/la je Tweet
    3. velj

    The Initiative has selected 30 patient groups to receive $450,000 each over two years to help advance research for . We are proud to announce that more than 50% of the selected organizations are NORD members. Read more:

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    2. velj

    Worldwide, 100 million people will watch the . 3x that many battle every day. is proud to work with  amazing advocacy organizations like to provide hope to those families through the power of sport!

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    Dubai displayed a tribute to Kobe and Gigi on the tallest building in the world 👏

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  18. 2. velj

    When you have a passion for something it is no longer a job but a lifestyle.

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  19. 2. velj

    The person on the outside isn’t always the same person on the inside.

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  20. proslijedio/la je Tweet
    1. velj

    Danielle faces one of the toughest decisions in her life: to find out whether she’s got the gene that, like her mum, will make her develop . Watch the full story:

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  21. proslijedio/la je Tweet
    1. velj

    at the second USA Southeast Symposium for HD here in Nashville. Exciting day working with multi disciplinary to improve practice and care for families impacted by HD. Thank you & team for continued partnership

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