Ana Vieira

@SjogrenpowerAna

Primary Sjögren’s ePAG. EULAR patient research partner. Sjögren Europe, ERN ReCONNET, HarmonicSS. Passionately curious. Life, family, pets and travel lover.

Marinha Grande, Portugal
Vrijeme pridruživanja: veljača 2018.
Rođen/a 12. kolovoza 1975.

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  1. proslijedio/la je Tweet
    prije 18 sati

    “If it’s not in the literature then the doctors don’t read about it, researchers don’t know about it and the FDA won’t recognize it.”

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  2. prije 18 sati
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  3. proslijedio/la je Tweet
    4. velj

    NEW content: Baricitinib as potential treatment for 2019-nCoV acute respiratory disease. P Richardson et al used BenevolentAI to search for approved drugs that could help. Early investigations require further detailed work

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    3. velj

    A study examining the audiologic and cognitive effects of Inflammatory Rheumatic Diseases found that many of the published studies do not involve hearing and speech-language professionals

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  5. proslijedio/la je Tweet
    4. velj

    Results from a recent survey show that people living with a rare disease are willing to share their health data to foster research or to improve their healthcare. Read more:

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  6. 4. velj
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  7. proslijedio/la je Tweet
    3. velj

    Researchers! We'd like to hear your experiences when it comes to recruiting participants to your studies into musculoskeletal conditions and learn more about how we can better support you in this area. Please fill out our survey and retweet. Thank you ➡️

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  8. 4. velj
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  9. proslijedio/la je Tweet
    4. velj

    Dear Friends: Here is my 3rd video on discussion on genetic risk of Myositis for patients. I am discussing few key questions that bother most patients including “are my kids or sibling at risk of developing myositis in future?”

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  10. proslijedio/la je Tweet
    1. velj

    A growing number of researchers are looking into the gut microbiome’s role in drug metabolism. A whole variety of drugs could be altering the balance of bacterial species, disrupting the digestive system or causing other problems.

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  11. 2. velj
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    The has helped to unlock tremendous opportunities for health research through its on big data. The points to consider guide the collection, analysis and use of big data in a key emergent area :

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  13. proslijedio/la je Tweet
    31. sij

    Do you have restricted mobility and find airports challenging? I am working with Gatwick Airport to help them become fully accessible to disabled people and inclusive of everyone. Please take time to fill in this short survey and / or RT & distribute, thx

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  14. proslijedio/la je Tweet
    31. sij
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  15. proslijedio/la je Tweet
    31. sij
    , , i još njih 7
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  16. proslijedio/la je Tweet
    28. sij

    Le CRMR des maladies rares de vient de remporter un appel d'offre de la DGOS pour créer un nouveau programme d’éducation thérapeutique () RHIN-MAI rare « le syndrome de -Sjögren ». Une avancée majeure pour les !

    , , i još njih 5
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  17. proslijedio/la je Tweet
    28. sij

    Sabías que, en algunos casos, la puede preceder al síndrome seco (manifestación + conocida del No todos los tienen sequedad y/o debutan con ella. Echa 1 vistazo a mi sobre el tema y dale al RT para mejorar el conocimiento

    , , i još njih 7
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  18. proslijedio/la je Tweet
    26. sij

    Seriously, we are not kidding. Mobility in rheumatic diseases is affected. Sex is dynamic and a person cannot properly learn a new dynamic reality using static resources 😏

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  19. proslijedio/la je Tweet
    24. sij

    "An optimist might conclude that iscalimab is the long-sought oasis —a drug with the potential for disease modification [...] in Sjögren's syndrome. However, this theory needs confirmation in larger clinical trials" Linked comment by Alan N Baer

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  20. proslijedio/la je Tweet
    27. sij
    Odgovor korisnicima i sljedećem broju korisnika:

    💪Great publication! In 2018 we published the Supplement on the State of the Art on Clinical Practice Guidelines that included the clinicians and patients' unmet needs for each disease covered by ERN ReCONNET - thanks to the effort of our ePAGs

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