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Ana Vieira proslijedio/la je Tweet
“If it’s not in the literature then the doctors don’t read about it, researchers don’t know about it and the FDA won’t recognize it.”
#DataDIY#RareDiseasepic.twitter.com/oggcXsq66J
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Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi
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Ana Vieira proslijedio/la je Tweet
NEW
#Coronavirus content: Baricitinib as potential treatment for 2019-nCoV acute respiratory disease. P Richardson et al used BenevolentAI to search for approved drugs that could help. Early investigations require further detailed work https://hubs.ly/H0mSWjF0 pic.twitter.com/c7D4HU6EeO
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Ana Vieira proslijedio/la je Tweet
A study examining the audiologic and cognitive effects of Inflammatory Rheumatic Diseases found that many of the published studies do not involve hearing and speech-language professionalshttps://twitter.com/APSsupportUK/status/1224279149294039040 …
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Ana Vieira proslijedio/la je Tweet
Results from a recent
#RareBarometer survey show that people living with a rare disease are willing to share their health data to foster research or to improve their healthcare. Read more: http://ow.ly/riPc50ybBeV pic.twitter.com/HFmvE16mxv
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Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi
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Ana Vieira proslijedio/la je Tweet
Researchers! We'd like to hear your experiences when it comes to recruiting participants to your studies into musculoskeletal conditions and learn more about how we can better support you in this area. Please fill out our survey and retweet. Thank you
https://www.surveymonkey.co.uk/r/recruitingtoresearch …Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi
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Ana Vieira proslijedio/la je Tweet
Dear Friends: Here is my 3rd video on
#Myositis101 discussion on genetic risk of Myositis for patients. I am discussing few key questions that bother most patients including “are my kids or sibling at risk of developing myositis in future?”https://youtu.be/0F35sisdL8wHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Ana Vieira proslijedio/la je Tweet
A growing number of researchers are looking into the gut microbiome’s role in drug metabolism. A whole variety of drugs could be altering the balance of bacterial species, disrupting the digestive system or causing other problems.https://go.nature.com/319mNP9
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Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi
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Ana Vieira proslijedio/la je Tweet
The
#EMA has helped to unlock tremendous opportunities for health research through its#recommendations on big data. The#EULAR points to consider guide the collection, analysis and use of big data in a key emergent area#RMDs: https://ard.bmj.com/content/79/1/69 https://twitter.com/EMA_News/status/1219240231813120000 …Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Ana Vieira proslijedio/la je Tweet
Do you have restricted mobility and find airports challenging? I am working with Gatwick Airport to help them become fully accessible to disabled people and inclusive of everyone. Please take time to fill in this short survey and / or RT & distribute, thxhttps://www.surveymonkey.co.uk/r/CTWGZ3M
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Ana Vieira proslijedio/la je Tweet
Computer Algorithm Seen to Predict Lymphoma in Primary Sjögren’s with High Accuracy
#IA#Rheum#Sjogrenhttps://sjogrenssyndromenews.com/2020/01/30/machine-learning-algorithm-seen-accurately-predict-lymphoma-in-primary-sjogrens-syndrome/ …Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Ana Vieira proslijedio/la je Tweet
Every day is
#RareDiseaseDay for 300 million people. Every year, on the last day of February, we make their voice heard.@sil_aps@CharissaFrank@iaiaraia@jhgrunert@veramfpg@SjogrenpowerAna#RareDiseases#Awareness#patients#patientsinvolvement https://www.rarediseaseday.org/article/what-is-rare-disease-day …pic.twitter.com/5KeOaj3Qv0
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Ana Vieira proslijedio/la je Tweet
Le CRMR
#RESO des maladies rares de#Strasbourg vient de remporter un appel d'offre de la DGOS pour créer un nouveau programme d’éducation thérapeutique (#ETP) RHIN-MAI rare « le syndrome de#Gougerot-Sjögren ». Une avancée majeure pour les#patients !pic.twitter.com/Jb8WbcCz5L
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Ana Vieira proslijedio/la je Tweet
Sabías que, en algunos casos, la
#neuropatía puede preceder al síndrome seco (manifestación + conocida del#sjögren No todos los#pacientes tienen sequedad y/o debutan con ella. Echa 1 vistazo a mi#infografía sobre el tema y dale al RT para mejorar el conocimiento#sjogrenpic.twitter.com/ejn94oq3VA
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Ana Vieira proslijedio/la je Tweet
Seriously, we are not kidding. Mobility in rheumatic diseases is affected. Sex is dynamic and a person cannot properly learn a new dynamic reality using static resources
#Reumasutra#LoveMoreWorryLess#rheumatology#reumatologíapic.twitter.com/WsMjMtzyTZPrikaži ovu nitHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Ana Vieira proslijedio/la je Tweet
"An optimist might conclude that iscalimab is the long-sought oasis —a drug with the potential for disease modification [...] in Sjögren's syndrome. However, this theory needs confirmation in larger clinical trials" Linked comment by Alan N Baer https://www.thelancet.com/journals/lanrhe/article/PIIS2665-9913(19)30143-2/fulltext …pic.twitter.com/tK6kdgaKgo
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Ana Vieira proslijedio/la je Tweet
Great publication! In 2018 we published the Supplement on the State of the Art on Clinical Practice Guidelines http://reconnet.ern-net.eu/2018/10/21/rmd-open-supplement-on-state-of-the-art-on-clinical-practice-guidelines/ … that included the clinicians and patients' unmet needs for each disease covered by ERN ReCONNET - thanks to the effort of our ePAGsHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi
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