Salem Oaks

@SalemOaks

As a patient foundation you have already done the work to bring patients together. Now is your chance to get their voices heard by pharmaceutical companies.

Salem, CT
salemoaks.com
Geregistreerd in maart 2018
56 foto's en video's Foto's en video's

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  1. Vastgemaakte Tweet
    2 sep. 2020

    The real question is, “When is the earliest that an Emergency Use Authorization could legitimately be announced?”

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  2. heeft geretweet
    12 jul.

    Very excited to see this. It is an honor to be recognized. After appearing on Outcomes Rocket Podcast, we started two of our own. Raising Rare Improbable Developments …

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  3. heeft geretweet
    31 mrt.

    🚀 Announcing OpenTreatments Foundation 🚀 1.5 years ago my son was diagnosed with rare genetic disease I struggled to raise money, learn science, find experts, and create a treatment NOW I am building software to empower patients to build treatments

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  4. heeft geretweet
    5 mrt.

    I have always wondered what life will be after Raghav was cured? I got a sneak peak into the light at the end of the tunnel in my conversation with Miguel Sancho and Felicia Brigitta Morton whose son with CDG disease was cured after a brutal transplant.

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  5. 19 feb.

    Pardon the typos.

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  6. 19 feb.

    T5 I follow

    T5: Do you have any go-to resources that provide education surrounding the COVID vaccine?
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  7. 19 feb.

    T5 You can follow the data without some commentators trying to "guide" you.

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  8. 19 feb.

    T5 for a down to earth explanation of the clinical trials.

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  9. 19 feb.

    T5 Go to the source!

    T5: Do you have any go-to resources that provide education surrounding the COVID vaccine?
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  10. 19 feb.

    T4 we are trying to understand and characterizer the intersection of rare disease and diversity. It is not easy, but omentum is building.

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  11. 19 feb.

    T4 Follow the SDoH. Food insecurity, income inequality, underfunded schools, and you will find lack of clinical trial opportunities.

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  12. 19 feb.

    T4 Add to that, a serious and well-founded mistrust of healthcare and clin trials by people of color.

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  13. 19 feb.

    T4 Decades of biopharm R&D not recognizing the built-in bias for recruiting white, middle class participants

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  14. 19 feb.

    T4 Most people are unaware of clin trials. The lack of information gets thinner in underserved communities.

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  15. 19 feb.

    T4 We need another full hour to chat about this one.

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  16. 19 feb.

    T3 DO NOT argue with clear political or conspiratorial theories about the vaccines. Not worth the exasperation. Disengage and go back to providing facts and voicing confidence.

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  17. 19 feb.

    T3 Listen to their concerns. Provide factual resources. Tell them why we are confident in getting the Vax.

    T3: How can we help people who are feeling hesitant to be vaccinated? How can we counteract medical mistrust?
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  18. 19 feb.

    T2 mRNA vaccines are not new. Actually, BioNTech and Moderna have been studying them for years for other ailments. Vax for SARS-CoV-2 are the first to reach this stage.

    T2: What are some myths you'd like to debunk specifically surrounding the COVID vaccine?
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  19. 19 feb.

    T2 and are NOT selfishly withholding manufacturing knowledge. Both have multiple agreements for competitors to produce the vax.

    T2: What are some myths you'd like to debunk specifically surrounding the COVID vaccine?
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  20. 19 feb.

    T1 I see a common theme of lacking trust in things "outside of ourselves."

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  21. 19 feb.

    T1 Many reasons. Disinformation, lack of information, fears, stoicism, charity (others need it more)

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