Disability innovation & creativity for the win!
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Alice Wong 王美華
@SFdirewolf
Disabled oracle. Founder, . Author of debut memoir, YEAR OF THE TIGER, available now! bit.ly/3IVc9Aj
Alice Wong 王美華’s Tweets
I am a very sick ICU patient. I would be dead without plastic waste.
Nurses are the best. Protect staffing ratios. Labor rights are disability rights.
THE 👏 ADA 👏 IS 👏 NOT 👏 SOME 👏 LOGO 👏 YOU 👏 CAN 👏 SLAP 👏 ON 👏 THAT'S 👏 NOT 👏 HOW 👏 DISABILITY 👏 RIGHTS 👏 WORK
#ADA #ADA30 #CripTheVote
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Conservative Omaha Mom group is making these to avoid wearing masks where required.
To put the ADA logo on a homemade lie in the midst of a pandemic is reprehensible.
Selfies while wearing these w/ captions like "running to the store 
" is shameful
#Omaha #WearADamnMask
" is shameful
#Omaha #WearADamnMask
Home! 4 weeks in the ICU and I am now home. Now even more hard work begins. Send me all the good witchy vibes
Image description: hospital room with a bunch of monitors and cords. An empty hospital bed has a gown & pillows
Things are HORRIBLE right now but be mindful to support & center attention on the Asian community in the Atlanta area and follow their lead on next steps
Drop any #ATL orgs or folks to support in the replies, especially mutual aid collectives
#StopAsianHate #StopAAPIHate
I cannot breathe through my nose & mouth because of my tracheotomy & ventilator so wearing a mask is not effective
My vent doesn’t have a filter that’s like an N95 so I depend on others around me to keep me & themselves safe
That’s community care. That’s how it *should* work twitter.com/star0gazing/st
This Tweet is unavailable.
Manifest lots of good energy for me. The next few weeks will be the hardest of my life.*
* Last 5 Tweets dictated by Alice
Watched the #SnyderCut last night & LOVED #Cyborg's story portrayed by
As a disabled cyborg in real life, the line "I'm not broken" resonated very strongly with me.
More representation like this is needed
Thank you, Ray 💖🤖
#JusticeForRayFisher #JusticeLeague
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Disabled people know why few people took notice.
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New: The pandemic killed so many dialysis patients that their total number shrunk for the first time in nearly half a century. Few people took notice. propub.li/32FOzHG
This is what exploitation & racism looks like 👇👇👇
Calling folks angels & heroes is a way to avoid the systemic oppression that creates these situations
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This is what angels look like!
These 2 health care aides were asked to work at Lakeland nursing home in Wanaque, NJ. And so they did except they claim no one warned them 8 patients had died from #covid_19 and that the virus was rampant here. 1/2
@ABC7NY
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📣My debut memoir #YearOfTheTiger is available MEOW!
🐅📖💻 Online events, plain language summary (coming soon) and more: disabilityvisibilityproject.com/book/tiger/
📝 Free discussion guide by
disabilityvisibilityproject.com/wp-content/upl
🎧 Official book playlist open.spotify.com/playlist/2vN44
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Alive. Alice is alive.
And scared.
And mad.
And loved.
Changes are happening.
Family contact: graciferwong@yahoo.com
So many people don’t have a dentist, can’t afford regular cleanings, and/or have chronic illnesses or poor nutrition that makes dental care even more important
The healthcare system is fucked
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I lost my patient this morning and damn, I felt it. It could have been avoided, please if you have a cavity in your teeth. See your dentist. It can kill. Please.
Immigration is a disability issue 👇
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A blind man failed the U.S. citizenship test because he was "unable to read in English" wapo.st/2THQGTj
"My ICU Summer: A Photo Essay"
This was a tough thing to write but it was cathartic.
Still processing and recovering.
This is where I'm at right now.
disabilityvisibilityproject.com/2022/08/07/my-
#DisabilityTwitter #CripTheVote #SuckItAbleism
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Busy getting all my ducks in a row for my #DisabilityVisibility book launch tomorrow 🐥🐥🐥
Wild to see an idea turn into an actual thing I can hold. 😍📖💯
For more: disabilityvisibilityproject.com/book/
Pre-order: penguinrandomhouse.com/books/617802/d
Newsletter: disabilityvisibility.substack.com
📢 Your girl is now a columnist for !
My first piece is about the #Medicaid unwinding process starting 4/1 when states will resume annual redetermination processes for all enrollees which could result in millions losing their coverage
#CripTheVote #SaveMedicaid
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"When the odds seem overwhelmingly stacked against us, I recall the phrase, “They tried to bury us, they didn’t know we were seeds.” We will rise again." Read the full story from @SFdirewolf 
tnvge.co/bk2Gsqp
tnvge.co/bk2GsqpHot. Crispy. Salty. Oily.
I miss being able to eat solid foods but today my dad made me a green egg pancake, one of my favorites, and I will carefully taste & spit it out. I just need to make sure no bits go down my throat
This is bringing me joy today
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Recovery update: laid in my poop in bed for 2 hours because my paid caregiver forgot to come (no emergency/illness) 💩
This is the reality for me & many other disabled & older people because we live in a society w/o a care culture & infrastructure 😤
#CareCantWait #CripTheVote
😒 "TikTok Admits It Suppressed Videos by Disabled, Queer, and Fat Creators
TikTok says that as part of an anti-bullying policy, it restricted videos that featured people whose bodies had “problems.”"
slate.com/technology/201 via
#TikTok #SuckItAbleism
As a disabled person, #Medicaid is so much more than just healthcare. My story: mobile.nytimes.com/2017/05/03/opi #AHCA #ACA #CripTheVote
I have questions👇
- This child is clearly in distress. Why is this being used as a form of #InspirationPorn for viewers because of her bravery?
- People post about their medical procedures but did she consent to this?
- Who is centered in the consumption & gaze of this video?
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This little girl who was born without eyes sings to calm her fears in the hospital
1:51
. on her wheelchair:
“People always want me to hide it in pictures. I say no! I earned this wheelchair. It’s no different from a medal I wear on my chest. Why would I hide it?”
vogue.com/article/tammy-
The child in question is DISABLED
"The wheelchair Williams used was secured toward the back of the bus while Davila sat toward the front, using a cellphone while wearing earbuds in both ears — a violation of policies and procedures, McDonald’s investigation found." #CripTheVote
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A New Jersey bus monitor charged in the death of a 6-year-old girl who suffocated while being taken to school was on her phone, earbuds in both ears, and didn’t notice while the child “struggled violently for her life,” according to a report. gothamist.com/news/nj-bus-mo
A must-read about the pandemic, ableism, and disability justice by Mia Mingus:
“You Are Not Entitled To Our Deaths: COVID, Abled Supremacy & Interdependence” leavingevidence.wordpress.com/2022/01/16/you
#HighRiskCOVID19 #NEISvoid #DisabilityTwitter #CripTheVote
#NoBodyIsDisposable #LongCOVID
📣 I wrote a memoir!
🐯 Year of the Tiger: An Activist’s Life
🗓 Roaring your way 9/6/22 from
📚 Available for pre-order: penguinrandomhouse.com/books/688504/y
✅ #YearOfTheTiger updates & events: disabilityvisibilityproject.com/book/tiger/
#LunarNewYear #DisabilityTwitter #CripTheVote
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Journalists writing about the future & current state of remote work need to remember that disabled & chronically ill people have fought for YEARS for this as an accommodation. At the very least interview disabled people who can provide crucial context.
#CripTheVote #ADA #ADA31
Soaking up the sunshine at Dolores Park! ☀️
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I will remain at home long after any stay at home orders are lifted in California because 🦠🧪🧼
1) there won’t be any treatment or vaccine for a long time
2) asymptomatic folks will be out there exposing folks unknowingly
3) I DON’T FEEL SAFE
#OpenAtMyHighRisk #CripTheVote
Ventured out yesterday for the first time since mid-March to get a drive thru flu shot. Wore a face shield, stayed in the car the whole time, & no line 🚙💉🏥
Not bad, !
Rewarded myself w/ french fries & a chocolate milkshake. Fries are life. That is all 🍟💯🤩
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Gonna shoot my shot. Since May is #APAHM month, I would like to co-organize an online screening of #EverythingEverywhereAllAtOnce for folks who cannot watch in theaters due to the pandemic & accessibility
Hey hit me up! DisabilityVisibilityProject@gmail.com
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Similar Q: are there any online screenings of #EverythingEverywhereAllAtOnce for high risk folks who cannot go to theatres anytime soon because THE PANDEMIC IS NOT OVER yet?
Especially for high risk, disabled, older Asian folks? 
cc: @Daniels
#EverythingEverywhere twitter.com/whatchidid/sta…
cc: @Daniels
#EverythingEverywhere twitter.com/whatchidid/sta…📻🗣️🎙️ This is my first audio essay as a nonspeaking person for 's Perspectives series. It's a commentary on voice, communication access, and care.
Audio & text transcript: kqed.org/perspectives/2
#YearOfTheTiger
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Huhhhhh, remote internships. Who could have thought of this (for years before a pandemic)? 🤔🤔🤔
*** Disabled people ***
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We are thrilled to announce that our fall internship program will be fully remote!
We are seeking diverse 2020/2021 grads who are interested in a career in book publishing. Lots of additional information to come – opportunities will be posted on July 6!
harpercollins.jobs
FYI Californians on Medicaid (aka Medi-Cal):
"On July 1, 2022, the asset limits for Non-MAGI Medi-Cal will be changing... “assets” refers to non-exempt property. The asset limit for one person
will increase from $2,000 to $130,000."
dhcs.ca.gov/services/medi-
#CripTheVote
“... after a year in isolation, I, at least, have gotten acclimated to a different existence—quieter, calmer, and almost entirely devoid of bullshit.”
It’s me! My dream of being a voice actor for an animated series came true. I play Alice, a character loosely based on me in season 2, available 6/9
This is especially meaningful to me since I lost my ability to speak last year.
Thank you & the whole team
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10 more reasons to stream HR season 2 this Friday? We got ’em right here: Eugene Levy, Miley Cyrus, Niecy Nash, Florence Pugh, Sam Richardson, Isabella Rossellini, Jon Lovitz, Alice Wong, Jackée Harry, and Jason Mantzoukas.
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So many times in my life as a student I had ill-fitting desks or none at all especially in lecture halls. Seeing the wheelchair using student so pumped for school in #AbbottElementary going up the ramp & in the classroom gave me all the FEELS. This is why #RepresentationMatters
OMFG, do y'all know how heavy glass jars are for some disabled people?
"At Perch Coffee House near Oakland’s Lake Merritt, customers can either order their coffee to enjoy at the cafe or rent a jar to take it to-go. They can’t get it in a paper cup."
To all the disabled people who have been telling their stories & performing shitloads of free labor & education: I see you! #SuckItAbleism 🥤🥤🥤
My current mood on the #StrawBan & the way non-disabled people have been interrogating & doubting disabled people online. 👇👇👇
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Immunocompromised people should not have to risk their lives in order to vote.
That’s it. That’s the tweet.
#CripTheVote #DisabilityCoalition #Election2020 #2020Election
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Ballot never showed, screw it. I am risking my immunosuppressed health to vote early this week, and get on metro to do it. I also want a Mystics "I voted" sticker really badly. See you Wed at the polls folks!
I hope mountain lions find the rich hella tasty
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Wealthy Silicon Valley suburb Woodside — median household income $250k — declares the entire town "mountain lion habitat" in an attempt to sidestep a new state law allowing duplexes on single-family home lots almanacnews.com/news/2022/02/0
“What is so harmful about seeing what's happened to John Fetterman is that he's actually experiencing what many disabled people experience every day when we ask for accommodations...which is an instant doubt of our competence"
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#AccessIsARight #CripTheVote
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Spoke to disability advocates about that Fetterman interview. They’re not happy. buzzfeednews.com/article/davidm
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“Only 55 people attended the Aug. 7 reception at the Big Moose Inn in Millinocket...Over the next 38 days, the virus spread to 176 other people. Seven of them died.
None of the victims who lost their lives had attended the party.”
Tech is never neutral 👇
“... the tools are an unacceptable invasion of privacy and are destined to cause institutional discrimination against students who are marginalized, low-income, neurodiverse, or don’t otherwise fit the software developers’ definition of normal.”
Anti Asian hate is California history
TODAY my book baby is leaving the nest and officially out in the world!!
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Available NOW!
#DisabilityVisibility: First Person Stories from the 21st Century
Edited by @Sfdirewolf
Paperback, e-book, and audiobook: penguinrandomhouse.com/books/617802/d![[Graphic with a background of overlapping triangles in bright colors with text: Available now! In the middle is an image of a book titled ‘Disability Visibility: First Person Stories from the 21st Century Edited by Alice Wong’ the book cover has overlapping triangles in a variety of bright colors with black text overlaying them and an off-white background. Book cover by Madeline Partner.]](https://pbs.twimg.com/media/Ebwmo6IVAAUNdrV?format=jpg&name=medium)
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✅ My high risk 76 year old dad vaccinated last week
✅ My high risk 71 year old mom vaccinated today
❌ Me, a high risk disabled person under 65, no longer prioritized by along with so many others
Take action if you are as pissed as me & follow #HighRiskCA
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Holy shit they just said #cripthevote on CNN
It’s 10 pm Pacific & there are a million other things I need to do right now but I feel like stirring up a hornets nest at what has done.
For every group no longer a priority on the tier system, share your story with the tag #HighRiskCA
I had a professor pet me on the head once IN CLASS and a ‘well-meaning’ lady brush the hair out of my eyes in an elevator UNASKED and without consent.
If y’all need any more examples of everyday ableism, this is it 👇👇👇
#SuckItAbleism
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Check out @JoeBiden on #inclusive #education. Thanks for sharing this video with us, Samuel. Let us know if other candidates are talking about these critical issues. #CripTheVote #PwDsVote #RevUp #VoteDisability #RespectAbility #NHPolitics
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There are so many ways to oppose 45. This ain’t it. 👇👇👇
Progressives, stop being so ableist
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“To avoid the marriage penalties faced by couples in which one partner is disabled, the union was ceremonial rather than legal. This shielded Ms. Torasso from future financial responsibility and allowed Mr. Carbone to retain the disability benefits he needed to afford care.”
A thread on #coronavirus, vulnerability, and power
Disabled people know what it means to be vulnerable and interdependent. We are modern-day oracles. It’s time people listened to us. 1/x
disabilityvisibilityproject.com/2020/03/18/cor
#HighRiskCovid19 #COVID19 #COVIDー19 #CripTheVote #SuckItAbleism
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It shouldn’t be a crime to vaccinate high risk people.
“Ten doses of the Covid-19 vaccine would expire within hours, so a Houston doctor gave it to people with medical conditions, including his wife.”
nytimes.com/2021/02/10/us/
#HighRiskTX #HighRiskCovid19 #NoBodyIsDisposable
Interesting bit of disability history: labradoodles were created from a person’s request for a service animal for someone with an allergy to dog hair
washingtonpost.com/science/2019/0
#DisHist
“It is, I think, a sad reflection of our times, that accessibility is still not part of what is top of mind for developers. We've had web accessibility guidelines and standards for 20 years,”
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Blind Americans face roadblocks booking online vaccine appointments yhoo.it/30Vm1Gl
Thinking about how this was both a terrorist and superspreader event. So much untold harm & damage.
FYI, during my recovery, I’ve entrusted Sandy Ho (@ NotYourAvgHo101) to take the lead on events related to my memoir Year of the Tiger: An Activist’s Life. These plans will be managed by Sandy and my editor/publishing team. 📖 🐅 #YearOfTheTiger
Do not DM me for requests to re-tweet or share something of yours or any questions you have right now.
In mourning. Please give me space.
The delights of being disabled: I found out the BiPap machine I use at night and day (both models) are RECALLED (US only). Due to disintegrating foam inside!! That people...who need respiratory support...are breathing in. 🌬
FUCK. ME. 😱
Judith Heumann is now a disabled ancestor ✨
Here’s an interview w/ Judy for my podcast on mentorship
disabilityvisibilityproject.com/2018/10/07/ep-
And Judy interviewed me for her podcast The Heumann Perspective
youtu.be/MopiXOeIUHM
#DisabilityTwitter #CripTheVote #DisabilityRights
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We will miss you, Judy. Rest in Power.
Photo credit: HolLynn D'Lil
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Don’t write off older (and other ‘vulnerable’) people 👇👇👇
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The first recovered COVID-19 patient in the province of Modena (Italy), a 95 years old grandmother
Such ableist bullshit. Brilliance and hard work only happens when standing? Ummmm, okee 🤦🏻♀️ twitter.com/ThePlaylist/st
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How about you transport wheelchairs safely & not penalize & discriminate your disabled customers ? ✈️♿️
"She told me that the airline had implemented this new policy because they were damaging a large number of power wheelchairs loading them onto regional aircraft,"
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I am outraged to hear that @AmericanAir has created a new policy banning people using power wheelchairs from flying. This is straight up discrimination. npr.org/2020/11/02/929
Hey, !
How about offering both types of straws?
I still need a plastic straw w/ your new lids because I cannot lift a drink (see profile pic).
Your whole menu is about customization & options.
1 venti accessibility w/ a shot of customer service please! #StrawBan
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We're removing plastic straws in our stores globally by 2020—reducing more than 1 billion plastic straws per year from our stores.
Oh , do you realize how much preparation sick, chronically ill and disabled people do before going out to eat? Looking at menus is an access issue.
As someone has difficulty swallowing, I look for menus that has a range of textures so I can actually enjoy my time out
This is a very personal piece about my undying desire for food as a person who uses a feeding tube for nutrition 🍨🥟🍜🍟
Thank you to & for publishing it! Shout out to who fed my cravings w/ their posts
Art:
I am also intensely uncomfortable at the need to defend our humanity and worth. Too much of my life has been centered on nondisabled expectations.
And yet, this is where we are.
#MyDisabledLifeIsWorthy #HighRiskCOVID19 #NEISvoid #DisabilityTwitter #CripTheVote #LongCOVID
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The fact that #MyDisabledLifeIsWorthy even has to be a hashtag is SAD! It’s absolutely unfair to each and everyone of us to hear that our lives are disposable. And everyone of you ableds that refuses to do the right thing for the entire population should be ASHAMED OF THEMSELVES.
“Abled supremacy means that many of you mistakenly think that if you do get COVID and if you end up with long COVID, that the state will take care of you…You believe this because you do not know about the lived reality of disability in this country.”
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A must-read about the pandemic, ableism, and disability justice by Mia Mingus:
“You Are Not Entitled To Our Deaths: COVID, Abled Supremacy & Interdependence” leavingevidence.wordpress.com/2022/01/16/you
#HighRiskCOVID19 #NEISvoid #DisabilityTwitter #CripTheVote
#NoBodyIsDisposable #LongCOVID
Got a "you're very brave" from my first appointment with a cardiologist today.
Brave for existing. I actually told her she was being condescending and she appreciated the feedback.
A 5-minute medical history is not an accurate depiction of my quality of life.
Instead of #DisabilityPrideMonth, how about #DisabilityPrecarityMonth where we organize and fight like hell?
Pride is complicated and flattens out a lot of the joy, love, and care that is intertwined with pain, systemic ableism, and trauma
You can’t ADVOCATE without a CAT 🐱
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A lot of things are stacked up real unfair right now. Jean says once we name the unfairness the next step is planning how we fight it
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🔮In the future there will be more...
✅ Disabled pollsters
✅ Disabled pundits
✅ Disabled Cabinet members
✅ Disabled White House staff
✅ Disabled candidates & politicians
✅ Disabled activists, organizers, scholars
✅ Disabled volunteers & trouble makers
#CripTheVote
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Disabled folks need to be taken seriously in elections, we are hardly represented in polling.
We could have more accurate election polling, if Disabled folks are included.
#CripTheVote
Disabled people told you how hard it was to receive basic accommodations even in the Before Times.
People shouldn't be shocked but here we are in the middle of a raging pandemic where lives are at risk 🤦🏻♀️
The. ADA. Isn't. A. Magical. Wand.
#CripTheVote #ADA
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Cornell will not accommodate requests from disabled or chronically-ill faculty to teach online. Ruth Colker: "the process of seeking reasonable accommodation is 'supposed to be an interactive good-faith dialogue, in this case b/w an employer &an employee."
insidehighered.com/news/2021/08/1
Replying to
Yup! That’s why I wrote this a few weeks ago. *LONG SIGH*
White women, you had ONE thing to do...
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52% of white women voted for Trump in 2016 and New York Times exit polls predict this to be 55% in 2020.
nytimes.com/interactive/20
Total trash and complete misuse of the #ADA & disability rights. Don’t fall for it, folks 🗑 🗑🗑
#CripTheVote #ADA #ADA30 t.co/58E5QS1JCf
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NO
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Part of the police reform called for by advocates in Connecticut and across the country in the wake of George Floyd’s death involves dealing with people in the disability community. One approach is creating registries of people with disabilities. wnpr.org/post/registrie
Allies / co-conspirators, here is one of many ways to #StopAsianHate: 's community action fund
Plus 👇
- Engage in political education
- Follow Asian and Asian American people & support their work
- Learn about Asian American history
- SHOW THE FUCK UP
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Hate Is A Virus is thrilled to announce the commUNITY Action Fund, our efforts to raise $1 MILLION to give back to local & national community organizations that are providing pivotal services and programs for our community.
As long as Hollywood uses non-disabled actors in disabled roles & whitewash POC characters, it'll be a while b4 I can say #FirstTimeISawMe
These types of Tweets are super inaccessible for people who use screen reading software on here, fyi 👇
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STOP 
CENSORING
SEX-POSITIVE
CONTENT
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“A lot of people have had a brush with what it’s like to live a disabled life these last two years, and a lot of them want to forget it as quickly as possible.“
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Abled-Bodied Leftists Cannot Abandon Disabled Solidarity to "Move On” From COVID truthout.org/articles/abled
“China virus”
Let this be the last time a President utters those racist words
My voting story (video w/ captions) 👇👇👇
"Medicaid is a lifeline for me and I’m fighting like hell for what I care about. What about you?"
#VoteForDisabledLives #ProtectOurCare #CripTheVote #HealthCareVoter #BeAVoter #ACA #Midterms2018 #GetCovered #IVotedEarly #GOTV #IVoted
Some people get treatment and can recover from COVID while others cannot. This is why people mask for others and themselves
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Replying to @benryanwriter
I just want to note that I got Covid from the John Mulaney show at Madison Square Garden last summer while I had cancer and was going through chemo. I took Paxlovid and felt better in a couple of days and was just fine.
Who is a DISABLED correspondent, not just a reporter who covers disability...there’s a big distinction twitter.com/slooterman/sta
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Do not conflate violence & hate w/ disability. It’s easier to think about them in pathological terms but it keeps us from dealing w/ the more difficult Qs about white supremacy, toxic masculinity, and all forms of bigotry that is steeped in our society. #ElPaso #CripTheVote
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Replying to @AndrewYang
We also need a national mental health initiative. When people - young men in particular - are set to self-destruct there are often signs that go ignored and unaddressed. Millions are suffering from mental illnesses and there is so much more we can do for each other.
One of the most exciting things about portraying Alice, a character loosely based on me in season 2 is sharing a story about disability activism and giving no fucks to ableists!
#DisabilityRights #DisabilityTwitter #RepresentationMatters
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👀 So…all the high risk & immunocompromised people are gonna have to stay at home, delay care, miss opportunities & remain excluded & forgotten forever?!?
If this is the new ‘normal’ you can stuff it
#NEISvoid #HighRiskCOVID19 #CripTheVote #COVID19 #SuckItAbleism
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WALENSKY: "I think that we have seen now that this is likely to become an endemic disease here in the United States... We have many diseases that are endemic. Influenza being one of them. That cause us minor challenges year after year, and that we can handle and tackle."
Although I had a great day a total stranger pointed at me and asked my caregiver WHAT’S WRONG WITH HER? And then he attempted to hold my hand 🤷🏻♀️
Happy #DisabilityPrecarityMonth!
#DisabilityPrideMonth
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Disabled characters are #Oscar bait time and time again. So fun how they don’t actually want actual disabled characters playing, writing, directing, and producing disabled stories
Plus the ableism & fatphobia is just repugnant
#Oscars2023 #TheWhale
Devices I need to live that require power:
- suction machine
- ventilator
- wheelchair
- hospital bed
- air mattress
- nebulizer
- cough assist
I have a few backup batteries. How long will they last in a long power outage? ⛈️☔️😬🪫🔌
#BayAreaWX #BayAreaStorm #CripTheVote