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BACK TO SCHOOL: Some good tips on being the best advocate for your child with autism at school.
#school#autism#SCN2Ahttps://www.abc.net.au/life/being-the-best-advocate-for-your-autistic-child-at-school/10947344?fbclid=IwAR3BVVI-HkBYhJFl3Pc4i1v-2vvyvjf6qZIMvPGhpIEX2-Ne5unvvijKGgQ …Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
SCN2A Australia proslijedio/la je Tweet
A very important study from
@3DN_UNSW describing health utilisation for people with intellectual disability. Highlights need for services to make adaptions to meet the care needs and improve health outcomes for this group@EmmaNich97@Ongbeehwa@DrKateOultonhttps://twitter.com/3dn_unsw/status/1178941696668618752 …
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SCN2A Australia proslijedio/la je Tweet
It's Australia's Feeding Tube Awareness Week (2-8 Feb). Please take a moment out of your day to watch and share our
#FTAW2020 video to help raise awareness for those living with feeding tubes: https://youtu.be/-rYDzbjrPJw Thanks to 14-year-old Olivia for producing this video for us!Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Often as special needs parents are told ‘they are only given what they can handle’ but this is far from the truth. SN parents health is often impacted and the ongoing stress and grief is real!https://oliversodyssey.org/2020/01/29/please-stop-telling-special-needs-parents-that-god-only-gives-us-what-we-can-handle/ …
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SCN2A Australia proslijedio/la je Tweet
Learn the ins and outs of
#EEGs on#EpilepsyDay! From initial diagnosis to surgical evaluation, EEGs are vital to patient experience and treatment. Register here:https://www.cureepilepsy.org/event_type/the-abcs-of-eegs-an-evolving-tool-for-epilepsy-diagnosis/ …Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Lucky to call this place home! Lots going on here in the SCN2A space!
#melbourne#NOFILTER#SCN2Aresearch#SCN2Apic.twitter.com/LTNA9gFna4
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Feb 24th is
#SCN2A awareness day. Help us raise awareness and reach our goals by joining our webinar, sharing our posts, and/or donating! https://zoom.us/webinar/register/7215796763309/WN_r6sEZCs3Sb-_NJoI_Gkcgg … http://supportepilepsy.com.au/event/SCN2a pic.twitter.com/JpMPljo3Bv
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Will was diagnosed with SCN2A at the age of 14yrs. One of his passions is highlands cows! Many thanks to
@EricaAuthor for making this happen.https://twitter.com/EricaAuthor/status/1220290416227971073 …Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Registrations open for our next SCN2A webinar. Learn about the different clinical presentation of SCN2A and what they mean.
#SCN2Ahttps://twitter.com/SCN2AAustralia/status/1219879967330226176 …
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SCN2A WEBINAR REGISTRATIONS OPEN International SCN2A Awareness Day we are holding our second SCN2A webinar in our ongoing series TOPIC: Clinical features of SCN2A-related disorders by
@drkbhowell Book here: https://zoom.us/webinar/register/6015796767468/WN_r6sEZCs3Sb-_NJoI_Gkcgg …#SCN2A#SCN2Awebinar#cureSCN2A#pheynotypespic.twitter.com/1SD973mqUG
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A beautiful and powerful exhibition which explore the lives of siblings affected by a genetic disorder. Siblings are often the unsung hero in our families.
#SCN2A#SCN2Asiblingshttps://twitter.com/rarediseaseuk/status/1219593695562993666 …
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International SCN2A NHS continues. For more information! https://www.facebook.com/2194330087551434/posts/2524977447820028/?d=n … Contact the research team on scn2a@mcri.edu.au
#scn2aclinicaltrials#SCN2A#cureSCN2A#SCN2ANHSpic.twitter.com/i2JVtMrImE
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Congrats to
@BostonChildrens Dr. Ann Poduri, director of the Epilepsy Genetics Program, who was named one of the Harvard Club of Boston's Most Influential Women honorees. We are grateful for her dedication to the field & generosity to share her knowledge.#SCN2A#geneticepilepsypic.twitter.com/z82Kt0dSc0
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SCN2A Australia proslijedio/la je Tweet
Save the date Brissy! This year.... we are coming north of the wall!
@AEIOUFoundation@chloemaxwell@AutismQld@littlesoulsgc@4ASDKidsCharityhttps://twitter.com/AutismAwareAus/status/1216595740455264256 …
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Grateful to be part of
@geneticepilepsy and driving the agenda for genetic epilepsy/DEE here in Australia#SCN2Ahttps://twitter.com/geneticepilepsy/status/1216550034537205760 …
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SCN2A Australia proslijedio/la je Tweet
What is the relationship between loss of function
#SCN2A mutations & autism? How can studying SCN2A mutations teach us about cellular mechanisms underpinning#autism? We talk to@NeuroBender from@UCSF Center for Integrative Neuroscience to get the answershttps://scn2aaustralia.org/podcast-12/Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
SCN2A Australia proslijedio/la je Tweet
"So long, patient story—I’ll be using the terms patient experience and patient perspective, ensuring I introduce these terms when I work with patients, being certain that their whole perspectives are seen, heard, and most importantly, appreciated"
@TO_dprhttp://ow.ly/EHsS50xRnclHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
What is the relationship between loss of function
#SCN2A mutations & autism? How can studying SCN2A mutations teach us about cellular mechanisms underpinning#autism? We talk to@NeuroBender from@UCSF Center for Integrative Neuroscience to get the answershttps://scn2aaustralia.org/podcast-12/Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
SCN2A Australia proslijedio/la je Tweet
Jan 15:
@SPARKforAutism#webinar. Wendy Chung, the principal investigator of the SPARK study, will talk about SPARK’s long term goals and activities. Register to attend: http://bit.ly/2Fs8rPZ#autism#research#geneticspic.twitter.com/52tKgLdslG
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