Roisin Duffy

@Roisinduffoc

CEO, Irish Motor Neurone Disease Association. All thoughts and views are my own.

Dublin City, Ireland
Vrijeme pridruživanja: ožujak 2012.

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  1. 4. velj

    Speech loss will affect over 80% of people living with MND. Please join Valerie, Mairead, Michael and Pauline and take part in this month's Sponsored Silence. As Seamus says here 'Silence is not always Golden'

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  2. 3. velj

    Welcome to Twitter ❤️

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  3. proslijedio/la je Tweet
    27. sij

    Cannot underestimate the difference a specialist nurse makes. We have felt listened to and my dad's needs understood for the first time in 2 years thank you!

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  4. 27. sij

    Thursday 30th & Friday 31st will see pack up and move to the other side of the Liffey! Please bear with us over those few days as there will be some unavoidable down time! Our organisation is growing and we’re super excited for the next chapter

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    21. sij

    Send your candidates an email asking them to prioritise the rights of people with disabilities in .

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  6. 13. sij

    "That man's legacy is going to continue as far as I'm concerned." Thanks for your support Paddy, Kathryn & all 💙 you're an inspiration to everyone in It's great to see you carrying on what Fr. Tony Coote started. Good luck with all the planning!

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    "When I came on, the emotion just hit me." legend explains on how he felt walking onto the pitch at the testimonial.

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    Rugby League Legend showing the sporting world how to deal with LIFE CHANGING news!He has been diagnosed with Motor Neurone Diease and is NOT taking a backward step! Let’s help Rob raise awareness of this disease!

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  9. 10. sij
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  10. 7. sij
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    4. sij

    She played piano and composed songs. She was bilingual, travelled to 8 countries. She was bright, curious, kind. She was v funny and put on shows with her sister. She donated her organs this day 4 years ago, saving 5. She was greatly loved.1/2

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  12. 31. pro 2019.

    Happy New Year to everyone who has tirelessly gone out of their way this year to support There aren’t enough words to describe how much we value and appreciate you ❤️

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  13. 31. pro 2019.

    What a truly magical few days 🥰❤️ thanks so much we will definitely be back!

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    Roy Taylor was on with us earlier this year as part of his ambassador role for 'Drink Tea for MND'. Since then Roy and his son Terence have set up an exciting new initiative called Watch Your Back MND to raise awareness and vital funds for Motor Neurone Disease research.

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  15. 10. pro 2019.
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  16. 4. pro 2019.

    “Palliative care is not just about managing physical symptoms, a holistic approach is needed involving family, friends, neighbours and wider community services - it’s about adding life to days not just days to life” Luc Deliens (Belgium)

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  17. 4. pro 2019.

    Miriam Galvin (Ireland) explores what is 𝑸𝒖𝒂𝒍𝒊𝒕𝒚 𝒐𝒇 𝑳𝒊𝒇𝒆 and the gap between expectation and experience when it comes to spousal caregiving

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  18. 4. pro 2019.

    Day 2 more research and support needed for young caregivers aged 5-19 years who are participating in all levels of care in relative isolation... Insights from M Kavanagh (USA)

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    4. pro 2019.

    Day 2 Session 5B Carer and Family Support: Prof Samar Aoun on supporting family carers from diagnosis to bereavement highlights the impact of how diagnosis is delivered on the Carer journey

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    4. pro 2019.

    Fabulous turn out for the inaugural Global Walk to D’Feet in Perth - a sea of t-shirts representing orgs and labs from around the 🌍 Huge thanks to everyone who participated and

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