Reverse Rett

@ReverseRett

Fighting to Reverse Rett. We are the only UK charity funding research focused on treatments and a cure for Rett Syndrome

UK
Vrijeme pridruživanja: lipanj 2010.

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  1. prije 3 sata

    MECP2 Duplication Syndrome is caused by a duplication of the MECP2 gene, instead of a mutation in the gene like in . hold a designated MECP2 Duplication fund to enable families to support international research for their children:

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  2. prije 18 sati

    What does mean to you? What has it taught you? What do you wish you'd known at diagnosis that you know now? Has it changed you? If so, how? If you have thoughts/experiences you'd like to share, get in touch, our is open to all!

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  3. prije 23 sata

    "With no currently approved agents to treat Rett Syndrome, patients and their physicians have an urgent need for new therapeutic options," Christopher U. Missling, PhD, president and CEO of Anavex Life Sciences.

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  4. proslijedio/la je Tweet
    6. velj

    HollyFest takes place on Sat Feb 29th and Sun March 1st We also have an amazing raffle to help All the prizes and how to enter here

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  5. 5. velj

    We've never seen anyone so excited about trees! Frank Synek has been doing it super tough now for a full week, on his own in the . Pls watch, RT & donate if you can - this is one by one guy!

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  6. 5. velj

    These fantastic A4 posters arrived in the office this morning. If you know anywhere that would display 1 or more, then pls contact andy@reverserett.org.uk. Cafes, bars, pubs, schools, workplaces, GP surgery - anywhere goes! Let's spread the word & !

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  7. 5. velj

    We've shared it before & we'll share it again because it simply couldn't be more true.

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  8. 4. velj

    Our 3rd Discovery Day, taking place in Buckinghamshire on Saturday 4th April, is now open for bookings! Esteemed speakers, valuable workshops, specialist childcare provided, great venue. Spaces are limited so please book now!

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  9. 4. velj

    is March 8th. In honour of this day & of all the girls & women living with , Martyna & her friends have inspired their school to support . It's so easy to - pls read, RT & take action!

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  10. 3. velj

    We don't have the words to describe what Frank is putting himself through for Elsie and Rett research. Today is Day 5 of his solo month in the Arctic. Pls watch & RT so Frank can explain the misery in his own words:

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  11. 3. velj

    Some fab prizes up for grabs here - don't miss out!

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  12. 3. velj

    Grab your tickets now - this is going to be a fabulous night! Our heartfelt thanks to all involved.

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  13. 1. velj

    may be over for this year, but the issues & challenges facing go on, every day. At we're parents of young people who provide care, compassion & joy for their siblings every day. Just like Finn. Pls RT.

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  14. 1. velj

    First day of a new month - the perfect moment to set yourself a ! Our 5x50 is back, kicking off on March 22nd - 5k every day for 50 days, at any pace, for anyone, anywhere. Great for fundraising, awareness & feeling good!

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  15. 31. sij

    We do remember! And since then has also donated tickets to his tour to our London event auction, helping to raise even more ££ for crucial Rett research!

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  16. 31. sij

    Fantastic creative fundraising from some brilliant minds! Our heartfelt thanks to everyone who made this happen and who have helped to for those living with !

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  17. proslijedio/la je Tweet
    31. sij

    Thank you to everyone who came along to our event last night - to fab panel , to hosts , and to the fantastic audience - so pleased to see such a great turnout, raising money for .

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  18. 31. sij

    Tim Jones has been quietly getting on w/ an epic challenge over the past 333 days: come rain, shine, snow, early morning flights, late night working & small children duties, he has run 5k every single day. And he still has 32 days left to go!

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  19. 31. sij

    was yesterday but the issues & challenges facing young carers continue today. Pls read & share this touching blog post from 10-yr old Finn about his life with his sister, Lottie, & share some kindness with any you know.

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  20. proslijedio/la je Tweet
    30. sij

    On Young Carers Awareness Day – and every other day – we want to make sure that ALL siblings of disabled children get the support and recognition they deserve.

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