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MECP2 Duplication Syndrome is caused by a duplication of the MECP2 gene, instead of a mutation in the gene like in
#RettSyndrome.#ReverseRett hold a designated MECP2 Duplication fund to enable families to support international research for their children: http://ow.ly/BC5k50yfLEy pic.twitter.com/YWBoh0xm0K
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What does
#RettSyndrome mean to you? What has it taught you? What do you wish you'd known at diagnosis that you know now? Has it changed you? If so, how? If you have thoughts/experiences you'd like to share, get in touch, our#familyblog is open to all! https://www.reverserett.org.uk/families-blog/ pic.twitter.com/mix6xfhK14
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"With no currently approved agents to treat Rett Syndrome, patients and their physicians have an urgent need for new therapeutic options," Christopher U. Missling, PhD, president and CEO of Anavex Life Sciences.
#rettsyndrome#rettnews#rettresearch http://ow.ly/SQGr50yfcMP pic.twitter.com/VjIA4HBp6W
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Reverse Rett proslijedio/la je Tweet
HollyFest takes place on Sat Feb 29th and Sun March 1st
@thrillcollinsuk@oasisEXP@RATRUK We also have an amazing raffle to help@ReverseRett All the prizes and how to enter here https://linktr.ee/friendsofholly pic.twitter.com/AYCEDV6neL
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We've never seen anyone so excited about trees! Frank Synek has been doing it super tough now for a full week, on his own in the
#Arctic. Pls watch, RT & donate if you can - this is one#epic#challenge by one#awesome guy! http://ow.ly/lQ2a50yeacI https://uk.virginmoneygiving.com/fundraiser-display/showROFundraiserActivities?userUrl=frantiseksynek …pic.twitter.com/e3zVzmARDb
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These fantastic A4
#StopTheCreep posters arrived in the office this morning. If you know anywhere that would display 1 or more, then pls contact andy@reverserett.org.uk. Cafes, bars, pubs, schools, workplaces, GP surgery - anywhere goes! Let's spread the word &#stopthecreep!pic.twitter.com/tGQQQx2cYo
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We've shared it before & we'll share it again because it simply couldn't be more true.
#bethechange#thetimeisnow#makingchangehappen#drseuss#wednesdaywisdompic.twitter.com/3MtRavSoPc
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Our 3rd Discovery Day, taking place in Buckinghamshire on Saturday 4th April, is now open for bookings! Esteemed speakers, valuable workshops, specialist childcare provided, great venue. Spaces are limited so please book now! https://www.eventbrite.co.uk/e/reverse-rett-discovery-day-thomley-hall-tickets-91607108327 …pic.twitter.com/0WiHfpr9XW
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#InternationalWomensDay is March 8th. In honour of this day & of all the girls & women living with#RettSyndrome, Martyna & her friends have inspired their school to support#RettResearch. It's so easy to#getinvolved - pls read, RT & take action! https://www.reverserett.org.uk/martyna-shining-a-light-on-international-womens-day/ …pic.twitter.com/9pzxZd5vCa
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We don't have the words to describe what Frank is putting himself through for Elsie and Rett research. Today is Day 5 of his solo month in the Arctic. Pls watch & RT so Frank can explain the misery in his own words:
#arcticchallenge#epic#legend#inawe https://www.facebook.com/frank.synek/videos/pcb.10158088871298330/10158088867463330/?type=3&theater …pic.twitter.com/pHN7UeRCYK
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Some fab prizes up for grabs here - don't miss out!https://twitter.com/FriendsofHolly/status/1223560301259513856 …
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Grab your tickets now - this is going to be a fabulous night! Our heartfelt thanks to all involved.
#MakingChangeHappenhttps://twitter.com/RussellKane/status/1223372769787875329 …
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#YoungCarersAwarenessDay may be over for this year, but the issues & challenges facing#youngcarers go on, every day. At#ReverseRett we're parents of young people who provide care, compassion & joy for their siblings every day. Just like Finn. Pls RT. https://www.reverserett.org.uk/families/my-life-with-lottie/ …pic.twitter.com/uaf5WGDHCo
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First day of a new month - the perfect moment to set yourself a
#challenge! Our 5x50 is back, kicking off on March 22nd - 5k every day for 50 days, at any pace, for anyone, anywhere. Great for fundraising, awareness & feeling good!#signupnow#justdoit http://ow.ly/B0la50y9XW3 pic.twitter.com/B1j3RAxZ20
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We do remember! And since then
@Louis_Tomlinson has also donated tickets to his tour to our London event auction, helping to raise even more ££ for crucial Rett research!#TY#MakingChangeHappenhttps://twitter.com/1DCharityInfo/status/1223255259549663235 …
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Fantastic creative fundraising from some brilliant minds! Our heartfelt thanks to everyone who made this happen and who have helped to
#makechangehappen for those living with#RettSyndrome!https://twitter.com/mdcomms/status/1223218247559974912 …
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Reverse Rett proslijedio/la je Tweet
Thank you to everyone who came along to our
#mdcmeetthemedia event last night - to fab panel@edreyesjourno@JoannaMG22@_SeanOGrady@thelawyermatt, to hosts@IntArbCentre, and to the fantastic audience - so pleased to see such a great turnout, raising money for@ReverseRett.pic.twitter.com/x5b5t3Atva
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Tim Jones has been quietly getting on w/ an epic challenge over the past 333 days: come rain, shine, snow, early morning flights, late night working & small children duties, he has run 5k every single day. And he still has 32 days left to go!
#respect#TY http://ow.ly/eM3350y9WFG pic.twitter.com/0Eoh10AZNb
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#YoungCarersAwarenessDay was yesterday but the issues & challenges facing young carers continue today. Pls read & share this touching blog post from 10-yr old Finn about his life with his sister, Lottie, & share some kindness with any#youngcarer you know. https://www.reverserett.org.uk/families/my-life-with-lottie/ …pic.twitter.com/QR221UXHRR
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Reverse Rett proslijedio/la je Tweet
On Young Carers Awareness Day – and every other day – we want to make sure that ALL siblings of disabled children get the support and recognition they deserve.
#YoungCarersAwarenessDay#CountMeInpic.twitter.com/LNvsn3iohO
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