Retrophin

@RetrophinRare

We identify, develop and deliver life-changing therapies to people living with . Community Guidelines:

Vrijeme pridruživanja: veljača 2013.

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  1. proslijedio/la je Tweet
    16. pro 2015.

    . to fund 3 scholarships for professionals working with students w/ PBD-ZSD. Very cool!

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  2. proslijedio/la je Tweet
    1. pro 2015.
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  3. 12. stu 2015.

    Aries Merritt shares his story at the Thank You

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  4. proslijedio/la je Tweet
    6. stu 2015.

    Together affect more people than AIDs and cancer combined

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  5. 22. lis 2015.

    We're thrilled to participate in Day 2 kickoff with Stephen Ostroff, MD, Acting Commissioner, FDA

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  6. proslijedio/la je Tweet
    29. ruj 2015.

    thx 4 being . Your hits the road to turn up the volume 4

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  7. 24. ruj 2015.

    What a fantastic and informative discussion on patient consent and data sharing

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  8. 24. ruj 2015.

    So honored to be able to listen to this parent advocate's story to help his daughter and other children

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  9. 24. ruj 2015.

    Today we are learning from Pat Furlong, PPMD, how to do advocacy right at the

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  10. 21. ruj 2015.

    The official 2016 theme and slogan have been announced!

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  11. 17. ruj 2015.

    Help make September Dystonia Awareness Month by signing this petition @DystoniaAware

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  12. proslijedio/la je Tweet
    2. ruj 2015.

    Strangers bond through social media to cope with rare disease via

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  13. 2. ruj 2015.

    September is Awareness month. Share your screening story with

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  14. 26. kol 2015.

    Don't miss out on signing up for the summit on Sep 14.

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  15. proslijedio/la je Tweet
    26. kol 2015.

    Heartwarming video shows boy with dural arteriovenous fistula scoring touchdown via

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  16. proslijedio/la je Tweet
    25. kol 2015.
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  17. proslijedio/la je Tweet
    20. kol 2015.

    New : covers ways to better advocate for your rare child's individual needs at school. Learn more:

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  18. proslijedio/la je Tweet
    14. kol 2015.

    We submitted comments 4 's Strategic Plan 2 show importance of programs, esp 4 undiagnosed patients

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  19. proslijedio/la je Tweet
    6. kol 2015.

    NORD is thrilled to announce a new editorial collaboration with read more:

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  20. proslijedio/la je Tweet
    6. kol 2015.

    In a survey 70% of physcians agreed that "It would be helpful to recieve additional training in rare diseases"

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