Research to the People

@Research2People

We're a scientific community hosting patient co-led research, and biomedicine data analysis opportunities for open discovery. Formerly

Vrijeme pridruživanja: kolovoz 2018.

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  1. proslijedio/la je Tweet
    25. sij

    Highly recommend participating, it was incredibly inspiring and helped me remember in a very grounded way, why I work in this field. We were crushed to hear the news but it also increased my motivation to save future patients.

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  2. 26. sij

    We were honored and grateful to work on Leila’s case. The optimism, unity, intensity and scientific rigor was truly humbling. Our research will be released open access to help future ES patients - Thank you to all involved. Leila will always be an inspiration to us. 💜

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  3. proslijedio/la je Tweet
    25. sij

    We hope sharing the knowledge we built can help others. To quote one of the participants: “At very least every passing can pass on learning, and with initiatives like , can create connections of care that stretch beyond any borders.”

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  4. proslijedio/la je Tweet
    25. sij

    While I am deeply saddened by Leila’s death, I’m incredibly grateful to her & her loves ones to have had the privilege of being a part of this group. The work is doing has far-reaching impact, most notably in creating a vision for what community advocacy can be.

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  5. proslijedio/la je Tweet
    25. sij

    Within a few weeks, had effectively created an international 60+ person volunteer molecular tumor board w/ experts in oncology, genetics, epigenetics, transcriptomics, immunology, drug development, bioinformatics, clinical trials, community organization, & more.

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  6. proslijedio/la je Tweet
    25. sij

    2 weeks ago Leila’s loved ones & organized a hackathon that brought together a group of ~60 scientists, patients, physicians, & anyone who wanted to help comb through her medical records, run new bioinformatics analysis, & suggest new diagnostics & treatments.

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  7. 17. sij

    Angelica, Thank you for connecting us with this case. We are grateful to have served as the organizing body - The resulting scientific collaboration was unparalleled, and remains ongoing.

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  8. 17. sij

    Thank you, ! Last weekend was an incredible example patient partnered research. This is an open, ongoing collaboration and we look forward to seeing everyone again for part 2. Stay tuned.

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  9. 9. sij

    Our social channels have been quiet lately. It's because we've been working especially hard on Leila's Epithelioid Sarcoma Research. This case starts Friday night at !! There's an incredible group signed on.. Apply to Join at:

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  10. Wow! is amazing and we are happy to see him getting this recognition.

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  11. proslijedio/la je Tweet
    20. pro 2019.

    "His improved interpretation of genetic tests perfects diagnoses and enhances personalized medicine." We're proud to announce that our own has been named one of the "Innovators Under 35 Europe 2019" award winners.

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  12. proslijedio/la je Tweet
    20. pro 2019.

    4 years ago, I began a journey to translate my PhD research. Today, we’re growing out an incredible team at completely focused on innovation around scalable interpretation. We’re hiring across wet/dry science, AI/ML and engineering -- there’s so much to do! (1/3)

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  13. proslijedio/la je Tweet
    17. pro 2019.

    All: Our Research cases have moved to and our next case is , happening January 10th - 12th at Stanford Center for Genomics and Personalized Medicine!

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  14. Updated. We are hosting Leila's event at Stanford Center for Genomics and Personalized Medicine! January 10th -12th. All clinical data, sequencing data, and medical reports are now available. Read full case:

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  15. proslijedio/la je Tweet
    15. pro 2019.

    Please check out and all the great work that the organization has been up to!

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  16. proslijedio/la je Tweet
    13. pro 2019.

    Seconded! hosts great events that bring researchers together to work with real patients. Some really neat work has come out of these hackathons

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  17. proslijedio/la je Tweet
    13. pro 2019.
    Odgovor korisnicima

    That’s so rad that you’re advising them! I had Pete over for dinner a couple weeks ago and we talked about how awesome you are :) hoping I can make the next hackathon!

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  18. proslijedio/la je Tweet
    13. pro 2019.

    Research to the People supports patients who want to go further by hosting patient co-led research hackathons with robust data, computational power and a top-notch scientific community. (2/7)

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  19. proslijedio/la je Tweet
    13. pro 2019.

    For the past 3 years Research to the People (Formerly SVAI) has done a variety of patient focused research hackathons: 3 day get togethers of researchers who analyze the genetic disease of a single patient. Read more about them here: (3/7)

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  20. proslijedio/la je Tweet
    13. pro 2019.

    The outcomes of the events have been extremely positive, providing promising new avenues for patients, rich learning opportunities for participants and valuable community building and recruitment for sponsors (such as Google, Invitae, PacBio, QIAGEN, DNAnexus & Medgenome). (4/7)

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