Raremark

@RaremarkHealth

Our vision is a future in which all rare diseases are treated.

London
Vrijeme pridruživanja: prosinac 2014.

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  1. proslijedio/la je Tweet
    31. sij

    Thank you for being an integral part of the PF community & for working so hard to give us . Your work changes lives. Together we can make it easier to while we wait for a cure. ❤️💙💚

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  2. 1. velj

    “The likely truth is that you know one of the 1 in 20 people affected by a rare disease.” 28 days to go!

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  3. 23. sij

    Communicating with doctors isn’t always easy. Sometimes they might use terms that go over your head. Let’s look at a few things you can do on your end that can make communication better between you and your doctors.

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  4. 21. sij

    New hotline for caregivers: Depression. Exhaustion. Burnout. Stress. Those are just some of the words people use to describe their experiences as a caregiver. is trying to provide help with a new caregivers hotline.

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  5. 20. sij
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  6. 15. sij

    Asking for hands-on support when things get tough: Sometimes we need help to deal with all of life’s demands.

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  7. 14. sij

    Raremark announces new appointments. Industry experts Neil Rotherham, Tim Davis and Jeremy Edwards have been appointed as Chairman, Chief Executive Officer and Chief Commercial Officer, to help the company accelerate progress in rare disease research.

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  8. 13. sij
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  9. 10. sij

    Quest to use CRISPR against disease gains ground

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  10. 9. sij

    One of the best ways to deal with a chronic illness is to have a plan. That plan should help you manage your illness, instead of letting it manage you.

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  11. proslijedio/la je Tweet
    9. sij

    Only 1 week left to submit a photo for the EURORDIS Photo Award! Don’t delay, enter a photo that visually expresses living with a rare disease by 16 January.

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  12. proslijedio/la je Tweet

    Our friends over at are holding their event with on 19 Feb bringing together a faculty of top speakers. , get your tickets for "The unusual suspects: Rare Diseases in everyday medicine" here

    , , i još njih 3
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  13. 6. sij

    'Revolutionary' DNA test can detect thousands of rare diseases in children Patients in England become the first to be routinely offered the cutting edge treatment.

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  14. 3. sij
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  15. 27. pro 2019.
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  16. 20. pro 2019.

    Raremark’s Pete Chan on a novel pricing mechanism that might help payers warm to pricey, ultra-orphan drugs

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  17. 16. pro 2019.

    Living with a rare condition can have a huge impact on emotional wellbeing and mental health. This publication by is well worth a read:

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  18. 13. pro 2019.

    Do you have trouble remembering to take your medication? There’s a lot to keep track of. Here are some things you can do to stay on top of it.

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  19. 10. pro 2019.
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  20. proslijedio/la je Tweet
    4. pro 2019.

    Raising funds for the truly wonderful ⁦⁩ patient group with - thanks ⁦⁩ team - top job

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