Rare Revolution Mag

@RareRevolutionM

Digital magazine giving a voice to patients affected by RARE conditions and the charities that represent and support them.

United Kingdom
rarerevolutionmagazine.com
Vrijeme pridruživanja: srpanj 2016.
2.189 fotografija ili videozapisa Fotografije i videozapisi

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  1. Prikvačeni tweet
    12. sij

    The moment you've been waiting for... edition 14 of Rare Revolution Magazine: Patients as partners edition.

    20 proslijeđenih tweetova 47 korisnika označava da im se sviđa
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  3. prije 6 sati

    83% of attendees describe eyeforpharma Philadelphia as ‘essential to future success’ - book your place to prioritize tactics and tools, and realize the strategies that will deliver for you

    1 korisnik označava da mu se sviđa
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  4. prije 7 sati

    If you're looking for some - head over to our back issues of Rare Revolution Magazine. Full of insightful content. 14 main issues and 2 supplement editions - plenty of reading to get into...

    3 proslijeđena tweeta 3 korisnika označavaju da im se sviđa
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  5. proslijedio/la je Tweet
    prije 7 sati

    Rick will be talking about his favourite subject, drug repurposing, at 'the unusual suspects' so be sure to get your tickets and get involved!

    🗣️Penultimate speaker announcement! Dr Rick Thompson from is joining us at for the Unusual Suspects to talk about drug repurposing in rare diseases. Book now
    4 proslijeđena tweeta 8 korisnika označava da im se sviđa
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  6. proslijedio/la je Tweet
    prije 7 sati

    🗣️Penultimate speaker announcement! Dr Rick Thompson from is joining us at for the Unusual Suspects to talk about drug repurposing in rare diseases. Book now

    2 proslijeđena tweeta 9 korisnika označava da im se sviđa
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  7. prije 19 sati

    Marie Curie, a celebrated physicist and chemist, is remembered for the discovery of radium and polonium, and her huge contribution to the fight against cancer.

    1 proslijeđeni tweet 2 korisnika označavaju da im se sviđa
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  8. proslijedio/la je Tweet
    prije 23 sata

    read our article in edition

    Today is - please take a moment to check out our edition, which came out in the summer of 2019. Open here: Full of insightful content from a range of stakeholders.
    1 proslijeđeni tweet 3 korisnika označavaju da im se sviđa
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  9. prije 23 sata

    Today is - please take a moment to check out our edition, which came out in the summer of 2019. Open here: Full of insightful content from a range of stakeholders.

    , , i još njih 7
    6 proslijeđenih tweetova 8 korisnika označava da im se sviđa
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  10. proslijedio/la je Tweet
    prije 23 sata

    Not long to go to Rare disease day at the end of February. Celebrate unity in our Rare community and show rare that you care. Also thinking of those SWANS out there (Syndromes Without A Name) still searching for their diagnosis.

    1 proslijeđeni tweet 9 korisnika označava da im se sviđa
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  11. prije 23 sata

    Hello - thanks for the follow 😀. Please check out our quarterly digital rare disease magazine: - would be a valuable resource to your followers.

    4 korisnika označavaju da im se sviđa
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  12. proslijedio/la je Tweet
    4. velj

    Today is and we are delighted to have supported in bringing this poem to life, alongside 16 cancer charities.

    11 replies 319 proslijeđenih tweetova 347 korisnika označava da im se sviđa
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  13. proslijedio/la je Tweet
    4. velj

    It's those with neurofibromatosis type 1 are at an increased risk of cancer yet it remains low profile. Even their 'benign' tumours may need chemotherapy.

    1 reply 6 proslijeđenih tweetova 7 korisnika označava da im se sviđa
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  14. 4. velj

    Re-watching this very interesting documentary following the lives of undiagnosed patients seeking treatment and diagnosis. Have you seen it? 🧬

    1 reply 2 proslijeđena tweeta 7 korisnika označava da im se sviđa
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  15. proslijedio/la je Tweet
    4. velj

    Children don't benefit from the advances in adult cancer treatments. is still the biggest killer of children aged between 1-14. We need to do things differently if children are going to gain access to new treatments.

    2 proslijeđena tweeta 2 korisnika označavaju da im se sviđa
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  16. proslijedio/la je Tweet
    3. velj

    World Aspergillosis Day 2020

    6 proslijeđenih tweetova 11 korisnika označava da im se sviđa
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  17. proslijedio/la je Tweet
    3. velj

    Big news: We’re funding 30 patient-led organization to support their launch of research networks in their search for treatment options

    17 replies 84 proslijeđena tweeta 273 korisnika označavaju da im se sviđa
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  18. proslijedio/la je Tweet
    3. velj

    Lucy has gone back to M4RD’s roots...the Garrod Building. An appropriately named building for our first ever talk about a rare disease - Gaucher - in 2011 when we were Barts and The London Society of Rare Diseases. Now she’s there to ask to

    7 proslijeđenih tweetova 10 korisnika označava da im se sviđa
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  19. 3. velj

    It only takes a minute to subscribe to our rare disease magazine 💻📲 Head over to: As well as getting notified quarterly when the new edition comes out, you’ll also get a weekly newsletter packed with interesting news and tips 💡

    2 proslijeđena tweeta 5 korisnika označava da im se sviđa
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  20. 3. velj

    This week is - take a moment to check out some articles from our supplement:

    1 proslijeđeni tweet 1 korisnik označava da mu se sviđa
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  21. proslijedio/la je Tweet
    3. velj

    This , what can you do to help young people to ? For schools and youth groups, there are plenty of resources on the website:

    4 proslijeđena tweeta 4 korisnika označavaju da im se sviđa
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