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Prikvačeni tweet
Get ready to
#ShowYourStripes for#RareDiseaseDay & check out our new cover photo! More information coming tomorrow. Stay tuned!
pic.twitter.com/GPwu16Bbvx
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Rare Disease Day US proslijedio/la je Tweet
To mark
#RareDiseaseDay 2019 EURORDIS, Agrenska &@rarediseasesint are organising the Second High-Level Event of the@ngorarediseases at the@UN HQ in New York on 21 Feb. The event is a chance to discuss next steps towards a UN Resolution on rare diseases. http://bit.ly/RDDEventUN pic.twitter.com/0pR8yUOmZI
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Rare Disease Day US proslijedio/la je Tweet
How will you Show Your Stripes this
#RareDiseaseDay? We'd love to know! Share your ideas using the hashtag,#ShowYourStripes!pic.twitter.com/anyvYCh6pB
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Rare Disease Day US proslijedio/la je Tweet
The
#RaceforRP#Ferrari360 Modena certainly knows how to#ShowYourStripes supporting#RareDiseaseDay on the streets of#NewOrleans, raising awareness for#RelapsingPolychondritis, a rare#AutoimmuneDisease.@eurordis@AARDATweets@RPASF_Official@RareDiseases@rarediseasedaypic.twitter.com/yZW0GM9P8I
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Rare Disease Day US proslijedio/la je Tweet
https://youtu.be/3FFfmT_B-Xs please check out my full video and leave a comment to help me
#RaiseAwareness for#MdDS and help#StopTheRock#ShowYourStripes#ZebraDiagnosispic.twitter.com/x67oljsjgwHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Rare Disease Day US proslijedio/la je Tweet
Every stripe has a story. I have 3 of the more than 7,000 rare diseases.
#showYourStripes#RareDiseaseDaypic.twitter.com/YHpCCu8NF8
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We’re going big for our 10th anniversary of Rare Disease Day in the U.S. Who’s with us? It’s time to
#ShowYourStripes! Learn more about how you can get involved and help to increase attention on#rarediseases to the world at large this#RareDiseaseDay. http://ow.ly/Yg4f50kdJZ3 pic.twitter.com/hIo3FZDAeD
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Rare Disease Day US proslijedio/la je Tweet
I hear rumor
@RareDiseases is gonna be launching a Show Your Stripes Challenge! Oh, it's ON if they give me the chance...@TernieLaBiscuit You DOWN??#RAREDISEASEDAY#SHOWYOURSTRIPES#PKUSTRONG#RAREQUEENpic.twitter.com/H3Xu5vfPy8
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Rare Disease Day US proslijedio/la je Tweet
Winter 2019 Fashion Trend
STRIPES! Get ready to #ShowYourStripes for#RareDiseaseDay...pic.twitter.com/QfjNGNwjzW
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Rare Disease Day US proslijedio/la je Tweet
Out now! Download the official poster for
#RareDiseaseDay 2019 now available via http://rarediseaseday.org/downloads . Share it today to show your support for the rare disease community.#ShowYourRarepic.twitter.com/GTjT1mAmgk
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Rare Disease Day US proslijedio/la je Tweet
The zebra is the official symbol of
#rarediseases in the U.S. Everyone has their own unique stripes, those characteristics that make each individual distinct. It's time to#ShowYourStripes!pic.twitter.com/igU5qTsTzO
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Today, Pennsylvania advocates came together at the state capitol for a
#RareAction Network#RareDiseaseDay Advocacy Event! Patients, caregivers, legislators, and industry representatives were in attendance for a great event to make the voice of#raredisease heard!pic.twitter.com/TcLmaooZz3
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Today, Pennsylvania advocates came together at the state capitol for a
#RareAction Network#RareDiseaseDay Advocacy Event! Patients, caregivers, legislators, and industry representatives were in attendance for a great event to make the voice of#raredisease heard!Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Rare Disease Day US proslijedio/la je Tweet
Successful
#RareDiseaseDay in New Hampshire!#RareAction#TogetherWeAreStrongpic.twitter.com/ZBQXtG1qeC
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Rare Disease Day US proslijedio/la je Tweet
"I would really, really love to see this bill passed because it would potentially help people who have rare diseases and are fighting them daily." Please call your KY legislators and ask them to override Gov Bevin's veto of SB7! Call 1-800-372-7181 https://cjky.it/2q7UEWy
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Attend this upcoming
#RareDiseaseDay event!https://twitter.com/RareAction/status/981587356619890689 …Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Together, we can truly accomplish a tremendous amount of awareness for
#rarediseases by taking part in#RareDiseaseday each year. Learn more about the 2018 campaign success in the#NORD blog here: http://bit.ly/2Hf3okC#TogetherWeAreStrongHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Rare Disease Day US proslijedio/la je Tweet
Due to inclement weather, the New Hampshire
#RareDiseaseDay event scheduled for today at the capitol has been cancelled. A new date will be announced soon!@RareDiseasesHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Rare Disease Day US proslijedio/la je Tweet
Rare diseases are not so rare after all. Our colleagues
#CareAboutRARE to support the 350MM affected by a#raredisease worldwide#RareDiseaseDaypic.twitter.com/VHlrGn93Qx
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Sending a huge thank you to everyone for all your hard work today in making an impact for the
#raredisease community in honor of#RareDiseaseDay! We want to see how you celebrated! Share your photos from today by replying!pic.twitter.com/DnlbjCDpr0
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