Rare Disease Day US

@RareDayUS

2/28/19. & join the movement in the US & around the world for . (Hosted in the US by .)

United States
Vrijeme pridruživanja: prosinac 2013.

Tweetovi

Blokirali ste korisnika/cu @RareDayUS

Jeste li sigurni da želite vidjeti te tweetove? Time nećete deblokirati korisnika/cu @RareDayUS

  1. Prikvačeni tweet
    15. sij 2019.

    Get ready to for & check out our new cover photo! More information coming tomorrow. Stay tuned!🦓

    Poništi
  2. proslijedio/la je Tweet
    14. velj 2019.

    To mark 2019 EURORDIS, Agrenska &@rarediseasesint are organising the Second High-Level Event of the at the HQ in New York on 21 Feb. The event is a chance to discuss next steps towards a UN Resolution on rare diseases.

    Poništi
  3. proslijedio/la je Tweet
    11. velj 2019.

    How will you Show Your Stripes this ? We'd love to know! Share your ideas using the hashtag, !

    Poništi
  4. proslijedio/la je Tweet
    10. velj 2019.
    Poništi
  5. proslijedio/la je Tweet
    24. sij 2019.

    please check out my full video and leave a comment to help me for and help

    Poništi
  6. proslijedio/la je Tweet
    24. sij 2019.

    Every stripe has a story. I have 3 of the more than 7,000 rare diseases.

    Poništi
  7. 16. sij 2019.

    We’re going big for our 10th anniversary of Rare Disease Day in the U.S. Who’s with us? It’s time to ! Learn more about how you can get involved and help to increase attention on to the world at large this .

    Poništi
  8. proslijedio/la je Tweet
    15. sij 2019.

    I hear rumor is gonna be launching a Show Your Stripes Challenge! Oh, it's ON if they give me the chance... You DOWN??

    Prikaži ovu nit
    Poništi
  9. proslijedio/la je Tweet
    16. sij 2019.

    🚨Winter 2019 Fashion Trend🚨 STRIPES! Get ready to for ...

    Poništi
  10. proslijedio/la je Tweet
    15. sij 2019.

    Out now! Download the official poster for 2019 now available via . Share it today to show your support for the rare disease community.

    Poništi
  11. proslijedio/la je Tweet
    16. sij 2019.

    The zebra is the official symbol of in the U.S. Everyone has their own unique stripes, those characteristics that make each individual distinct. It's time to !

    Poništi
  12. 19. lip 2018.

    Today, Pennsylvania advocates came together at the state capitol for a Network Advocacy Event! Patients, caregivers, legislators, and industry representatives were in attendance for a great event to make the voice of heard!

    Poništi
  13. 19. lip 2018.

    Today, Pennsylvania advocates came together at the state capitol for a Network Advocacy Event! Patients, caregivers, legislators, and industry representatives were in attendance for a great event to make the voice of heard!

    Poništi
  14. proslijedio/la je Tweet
    1. svi 2018.
    Poništi
  15. proslijedio/la je Tweet
    6. tra 2018.

    "I would really, really love to see this bill passed because it would potentially help people who have rare diseases and are fighting them daily." Please call your KY legislators and ask them to override Gov Bevin's veto of SB7! Call 1-800-372-7181

    Poništi
  16. 5. tra 2018.
    Poništi
  17. 7. ožu 2018.

    Together, we can truly accomplish a tremendous amount of awareness for by taking part in each year. Learn more about the 2018 campaign success in the blog here:

    Poništi
  18. proslijedio/la je Tweet
    7. ožu 2018.

    Due to inclement weather, the New Hampshire event scheduled for today at the capitol has been cancelled. A new date will be announced soon!

    Poništi
  19. proslijedio/la je Tweet
    28. velj 2018.

    Rare diseases are not so rare after all. Our colleagues to support the 350MM affected by a worldwide

    Poništi
  20. 28. velj 2018.

    Sending a huge thank you to everyone for all your hard work today in making an impact for the community in honor of ! We want to see how you celebrated! Share your photos from today by replying!

    Poništi

Čini se da učitavanje traje već neko vrijeme.

Twitter je možda preopterećen ili ima kratkotrajnih poteškoća u radu. Pokušajte ponovno ili potražite dodatne informacije u odjeljku Status Twittera.

    Možda bi vam se svidjelo i ovo:

    ·