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Prikvačeni tweet
REGISTRATION is officially OPEN for
#RareDC2020 on Capitol Hill. Visit https://bit.ly/36nAAmS and join more than 800 advocates for a unique experience. Are you ready to make a difference and have your voice heard?#raredc2020#rareadvocates#capitolhill#everyvoicematterspic.twitter.com/VSYpw4lmSS
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RDLA proslijedio/la je Tweet
Rare Disease patients need access to more cures, not less! Please tell Congress to reject dangerous IPI proposals that could impact the availability of already scarce treatments and quality of care. For more info visit --> https://bit.ly/37V6OH2
#ipi#OpposeIPI#SOTU2020pic.twitter.com/PI89q9vWL0
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We are pleased to work with
@US_FDA on establishing the FDA’s Rare Disease Day Public Meeting during#RareDC2020 To register please visit --> https://bit.ly/2vaVubi pic.twitter.com/nJlnkQffNQ
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Thank you for sharing Tom!
#RareDC2020Expectationshttps://twitter.com/WeiserTom/status/1223259998274367493 …Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Only 3 more weeks until
#RareDC2020 in Capitol Hill! To register visit http://rareadvocates.org/rdw All events are FREE, but previous registration is required. Who's joining us for#RareDC2020?
pic.twitter.com/Z2yey8UUvV
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What do you hope to get out of
#RareDC2020? Share your answer and include your Name/State for a chance to appear in our 2020 Rare Disease Week Program.#RareDC2020Expectationspic.twitter.com/mkwqw4ZtaM
Prikaži ovu nitHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
ATTENTION new and experienced
#RareDC2020 advocates! We want to give you as much information as possible and answer all your questions before you head to Washington D.C. Visit http://rareadvocates.org/rdw and make sure you register for our February Webinars.pic.twitter.com/p91SyNGnYK
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RDLA proslijedio/la je Tweet
Members of the Scleroderma Foundation will be attending Rare Disease Week, February 25-28. Join US! Register here: https://rareadvocates.org/rdw .
@RareAdvocates@everylifeorg#RareDisease#CapitolHill#RareDiseaseAdvocates#EveryVoiceMatters#RareDC2020#sclerodermapic.twitter.com/APjO6kfjZL
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RDLA proslijedio/la je Tweet
This is what I love about Rare Disease Week in DC by
@RareAdvocates . Many diseases...one united voiceHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
We are pleased to work with
@US_FDA on establishing the FDA’s Rare Disease Day Public Meeting during#RareDC2020 To register please visit --> https://bit.ly/2vaVubi https://twitter.com/FDAPatientinfo/status/1207383999787618304 …
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RDLA proslijedio/la je Tweet
Very excited that my daughter and I are going to Washington DC this year for
#RareDiseaseDay and#raredc2020. Are any of my#RareDisease or#hcldr friends going to be there?@DiannaCahn hope to see you!https://twitter.com/RareAdvocates/status/1213127621015429120 …
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ATTENTION ALL PATIENT ORGANIZATIONS! The National Burden of Rare Disease Study aims to determine the true economic cost of rare disease. We're seeking the participation of patient organizations to be part of a survey. Please email Kara Mossler kmossler@everylifefoundation.orgpic.twitter.com/YFVxmUThiF
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RDLA proslijedio/la je Tweet
I am proud to join the Rare Disease Caucus to advocate for patients and health professionals. As a member of
@HouseAppropsGOP, I remain committed to promoting education, spreading awareness, & supporting research to put an end to rare diseases like ALS, pancreatic cancer, & more.https://twitter.com/RareAdvocates/status/1217117091209400320 …
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Thank you to John Rutherford (FL-04)
@RepRutherfordFL for joining the Rare Disease Congressional Caucus, bringing our total to 161 members! Thank you to all of the advocates who have spread the word to their Members of Congress and encouraged them to join the Caucus!pic.twitter.com/3nVQR3ec0T
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On January 16th join us for the
#RDLA 2020 Legislative In-Person Meeting and Webinar. These meetings help facilitate open dialog about legislation that affects the rare disease community. To register visit
https://bit.ly/2ReO7qI pic.twitter.com/Vx2WmxsSis
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RDLA proslijedio/la je Tweet
Check out our top 50
#RareDisease Advocates to follow for 2020 list just published in@iPainLivingMag Winter, including:@ramirezholmes@RareAdvocacy@RareAdvocates@rarediseaseday@RareDiseaseGhpic.twitter.com/8WlHT9F9a0
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That's great news! Can't wait to see everyone on
#rareDc2020
https://twitter.com/team4travis/status/1214972836684525568 …Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
About
#RareDC2020 "A 10 minute meeting with your member of Congress can have a huge impact that will last years" -Steve Silvestri (Director of Public Policy)@EveryLifeOrg For full interview visit https://bit.ly/2sSDLEV and REGISTER NOW#RAREDC2020
https://bit.ly/3816Eh5 pic.twitter.com/ffJuThfUrb
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RDLA proslijedio/la je Tweet
Registration is OPEN for
#RareDiseaseWeek on Capitol Hill! Join@TheMyositisAssc at the@US_FDA@NIHClinicalCntr and on Capitol Hill February 24-February 29th@RareAdvocates https://rareadvocates.org/rdw/ pic.twitter.com/dokzABQyEv
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