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Marni Cartelli proslijedio/la je Tweet
Help us spread the word! Patient scholarship applications close on Sunday (3/31) to attend
@patientexpsym in Boston May 1-3! https://whatsthefix.info/announcing-patient-scholarship-opportunities-to-attend-the-patient-experience-symposium-may-1-3-in-boston/ …#WTFixpic.twitter.com/KLUerIa0lP
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Marni Cartelli proslijedio/la je Tweet
NY State of Health extended the open enrollment deadline to Feb 7th for 2020 coverage. Get free one-on-one help to find a low-cost plan today and apply for financial assistance to lower your costs.
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Instead of “shake, rattle & roll” I had “pop, grind & jiggle” Hoping it is just a blown stitch & not that everything has shifted again Never more thankful Dr took time 2 individually stitch wires in place instead of using 1 universal anchor
#neuromodulation#meddevice backupHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Marni Cartelli proslijedio/la je Tweet
Join NORD at the 2020 World Orphan Drug Congress USA from April 29-May 1! The World
#OrphanDrug Congress is a global gathering of 1,500 attendees from 50 countries, w/ 350+ speakers & 260+ sessions covering all aspects of rare drug development & research. http://bit.ly/395CQAh pic.twitter.com/On7GPnxv54
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Marni Cartelli proslijedio/la je Tweet
South Dakota Alert: South Dakota
#StepTherapy bill to be introduced and we anticipate hearings the week Feb 18 or 24, most likely on a Mon/Wed/Fri. Please help us find patients to testify at these hearings. Please DM us if you are in SD AND willing to share your story!pic.twitter.com/q2tVICF9k6
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Marni Cartelli proslijedio/la je Tweet
“We have to figure out how to establish the collaborations we need to provide health equity” -Khristal K. Davis, JD, Founder, Texas Rare Alliance
#DataDIY#RareDiseaseHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Marni Cartelli proslijedio/la je Tweet
"We cannot treat what we do not diagnose." - Khrystal K. Davis, JD, Founder, Texas Rare Alliance
#DataDIY#RareDiseaseHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
My beautiful & inspiring
#RareDisease#advocate & friend@pdmace2 Don't forget#WearRedDay is Friday, February 7th!https://twitter.com/pdmace2/status/1225100630332780546 …
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Marni Cartelli proslijedio/la je Tweet
A message for World Cancer Day I'm an
#analcancer survivor. I was diagnosed on May 5, 2015. I am in remission now. It's all behind me butt it was a pain in the ass!!!
#worldcancerday
#cancer#thingsdanielthinkspic.twitter.com/DmxFqoaZ4QHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Marni Cartelli proslijedio/la je Tweet
Did you know? Rare diseases currently affect 5% of the worldwide population. Download, edit and adapt the
#RareDiseaseDay infographics from http://rarediseaseday.org/downloads . Share them on social media to spread the word about Rare Disease Day on 29 February!pic.twitter.com/Fyyctckvp7
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Marni Cartelli proslijedio/la je Tweet
'I Spy' iPain Living Magazine
#iPainLiving Go pick up your copy today in the featured section at@BNBuzz and other newsstands nationwide!@iPainLivingMag@powerofpainpic.twitter.com/ToIQ0YLfwX
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Thank U
@TheDoctors &@RarePOV for highlighting the#RareDisease#CRPS As some1 w it, I know title will trigger some bc we have been dismissed medically & told 2 just think positive 2 get through pain- & we know it isnt that easy But mindset= big part of equation Be open 2 ithttps://twitter.com/RarePOV/status/1225073374000488451 …Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Marni Cartelli proslijedio/la je Tweet
Barby took one of the scariest moments of her life and turned it into an opportunity to advocate for herself and others. During
#patientrecognitionweek ivWatch recognizes Barby & her journey to becoming a cheerleader of hope. See her courageous story here: https://ivwat.ch/PatientStories pic.twitter.com/g022w7eFAb
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My baby was diagnosed with
#Lymphoma She is only 6 & spent 5 of those years getting me through the hardest time in my life; my accident &#raredisease journey Hardest part=this AM I woke up w her pouncing on my face wanting to playpic.twitter.com/gDQ6z1g71e
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Remember... Wherever you are in your
#RareDisease or#Chronicillness journey, you are not alone This community is filled with love &#support Don’t be afraid to reach out looking for resourcespic.twitter.com/9vpudGJe04
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Marni Cartelli proslijedio/la je Tweet
Help us spread
#narcolepsyawareness by requesting that your governor or mayor issue a proclamation declaring March 7 as#SuddenlySleepySaturday, also known as Narcolepsy Awareness Day. All info is on our website!https://narcolepsynetwork.org/narcolepsy-awareness-day/ …Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Marni Cartelli proslijedio/la je Tweet
Sponsor registration & prospectus is up for the
#iPainSummit - International Pain Summit 2020 n Phoenix, AZ... check it out! The sooner you sign on, the more perks you get! https://internationalpain.org/sponsors-2020/ November 12-14, 2020 Save The Date, Mesa Convention Center#ChronicPain#Painpic.twitter.com/8SBlZkzR2e
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Marni Cartelli proslijedio/la je Tweet
“The vast majority of people prescribed controlled substances take them as directed. Proposed cuts in quotas will negatively impact Americans who have a legitimate medical need for opioids.” (via
@PainNewsNetwork)https://www.painnewsnetwork.org/stories/2020/1/20/public-officials-ignorant-about-overdose-crisis …Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Marni Cartelli proslijedio/la je Tweet
FDA will join the global observance of Rare Disease Day 2020 raising awareness about the 7,000 known rare diseases, many of which have no treatment.
#FDARare2020#rarediseaseday Join us at our public meeting on February 24, 2020 https://go.usa.gov/xdTqf pic.twitter.com/VjGL9suQdT
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Anyone else want a cane like the one
@JLo used in her#SuperBowl show? Can you guys imagine walking into our#raredisease conferences, or better yet, meetings with members of Congress with that? It just screams#empowerment Bet they would pay attention then#CareAboutRareHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi
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