Samuel Agyei Wiafe

@Psalmy_Bizzle

President/Founder of , a nonprofit with the mission of improving the wellbeing of people affected by Rare Diseases in Ghana.

Accra,Ghana
Vrijeme pridruživanja: kolovoz 2010.
Rođen/a 18. lipnja

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  1. Prikvačeni tweet
    16. kol 2018.

    “I'm for truth, no matter who tells it. I'm for justice, no matter who it is for or against. I'm a human being, first and foremost, and as such I'm for whoever and whatever benefits humanity as a whole.” ― Malcolm X

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  2. 1. velj

    Happy new month everyone! for us means we are closer than ever to celebrating . We are excited to count down with you and also tell you more about and Rare Disease Ghana Initiative . On day 1 of the countdown,…

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    Did you know that there are more than 300 million people affected by around the world. takes place on the last day of February each. Help us provide a voice to the most marginalized in .

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  4. proslijedio/la je Tweet
    29. sij

    Connecting hard to reach individuals on one virtual platform. Great achievement and excited about outcomes. .

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  5. 28. pro 2019.
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  6. 21. pro 2019.
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  7. 21. pro 2019.
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  8. proslijedio/la je Tweet
    6. pro 2019.

    Excited to share the findings of the African Taskforce. Look out for some of the findings to be shared throughout next week with a link to the full executive summary report!

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    10. pro 2019.

    AFRICAN TASKFORCE FINDING number one!! 10 % had a definition of rare diseases and most used current international definitions rather than continent appropriate definitions. Click here for the full report

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    The IGA were delighted to collaborate with on their African Taskforce, a joint venture with and the full executive summary report is now available to read here

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  11. proslijedio/la je Tweet
    11. pro 2019.

    African Taskforce finding number two!! Rare Disease Policy – “Only 11% of all countries had a rare disease policy in place…” Click here to read the rest of this finding and the full report

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    12. pro 2019.

    African Taskforce finding number three!! “Access to limited diagnostic investigations for rare disorders were present in some form in 75% of the countries..” Click here to read the rest of this finding and the full report

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    13. pro 2019.

    African Taskforce finding number four!! “Limited genetic testing was available in 65% of the countries” Click here to read the rest of the findings and the full report

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  14. proslijedio/la je Tweet
    16. pro 2019.

    African Taskforce finding number five! Rare disease awareness – generally poor with unsurprising politicians the group with the lowest awareness of rare disorders Click here to read the rest of the report

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  15. proslijedio/la je Tweet
    17. pro 2019.

    African Taskforce finding number six!! "Training for rare diseases were available in 55% of the countries…” Click here to read the rest of this finding and the full report

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  16. proslijedio/la je Tweet
    18. pro 2019.

    African Taskforce finding number seven!! Clinical guidelines – “Only 10% had some guidelines in place for rare disorders but 80% deemed guidelines very important..” Click here for the rest of this finding and full report

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  17. proslijedio/la je Tweet
    14. pro 2019.

    It's official! We announce our speakers for Wednesday. We believe you will have an enlightening experience.

    , , i još njih 6
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  18. 16. pro 2019.

    I have the opportunity to share my knowledge on and my experience with at this years as part of the celebrations.

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  20. 14. ruj 2019.
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  21. 7. ruj 2019.
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