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Michael Makris proslijedio/la je Tweet
Excellent initiative for patient awareness by
@sortoutbleeding#EAHAD2020pic.twitter.com/yACxXRIZMM
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Michael Makris proslijedio/la je Tweet
Join us in Basel on 29-31 May to learn more about issues faced by women with bleeding disorders during our second Women's conference.
#EAHAD2020@Amanda_Bok . More info at https://www.ehc.eu/events/women-and-bleeding-disorders-conference/ …Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Michael Makris proslijedio/la je Tweet
Welcome and introduction by Karin Fijn van Draat president of local committee and Mike Makris
@ProfMakris EAHAD’ president#EAHAD2020pic.twitter.com/RU57utwwQs
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Michael Makris proslijedio/la je Tweet
Interesting age-based adherence trends from 24-yr Danish study presented by Peter Kampman
#EAHAD2020@EHC_Haemophilia@EAHAD2014@NajaSkouwpic.twitter.com/75WjiWuk1I
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Michael Makris proslijedio/la je Tweet
@Debra_PollardRN highlights the complexities of communicating with our patients and how if we are to advocate for our patients effectively it involves collaborating with the whole MDT.#EAHAD2020pic.twitter.com/8xJeohZvI1
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The take home messages from one of the symposia on gene therapy in
#haemophilia at#EAHAD2020. Excellent session.#hemophiliapic.twitter.com/hZkWK7Nh6t
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I agree this is an excellent book. Can it be made available free on Kindle?
#EAHAD2020https://twitter.com/Amanda_Bok/status/1224994159486033921 …Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
You will see this table a few times over the next 3 days!!!https://twitter.com/brianhaemophil1/status/1225041964476850177 …
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Michael Makris proslijedio/la je Tweet
Nice table outlining haemophilia Gene Therapy under development. Chambost at Biomarin symposium
#EAHAD2020pic.twitter.com/wVPbNWzTxT
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Michael Makris proslijedio/la je Tweet
Pasi at
#EAHAD2020 question on Gene Therapy expression level. Largest group want 30% to 50% Question on duration of expression. Largest group want 10 to 15 years. Several GT companies asking these questions at the Conferencepic.twitter.com/dg8aNjmnVI
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Michael Makris proslijedio/la je Tweet
Sex messages for WBDs: Here are some of the great insights from Dutch psychosexual therapist Ellen Laan - great talk!
#EAHAD2020@EHC_Haemophilia@EAHADnewspic.twitter.com/FScpKllwrw
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Michael Makris proslijedio/la je Tweet
Great start & focus to the conference for Women with bleeding disorders
More focus needed in our clinics and on the Interdisciplinary support we can give women #EAHAD2020pic.twitter.com/wVf8i5V9Lx
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Michael Makris proslijedio/la je Tweet
Starting
#EAHAD2020 with a tricky topic: How to manage specific bleeding issues in females with inherited bleeding disorders? Remember the impact the sexual and menstrual bleeding it has in our patients' quality of life. We should talk about it so we can treat it!pic.twitter.com/nCCHwWHeKV
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Michael Makris proslijedio/la je Tweet
Doctor and Nurse from Royal Free hospital in the UK give a joint presentation on optimising patient experience with Gene Therapy at
#EAHAD2020 Novel approach to presentation which makes sense given the multidisciplinary team approach in haemophilia. Royal Free always innovativepic.twitter.com/xOjIA4vm1S
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Michael Makris proslijedio/la je Tweet
First symposium about VWD. Take home messages: 1. Don’t forget inhibitors in type 3. 2. The importance of a correct diagnosis. 3. Local hemostasis is also important! 4. Great real life example of prophylaxis in menorrhagia by
@vjimenezyuste#EAHAD2020pic.twitter.com/VpRvcZHF3s
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Michael Makris proslijedio/la je Tweet
Spoke too soon. Another very important message about sex. Normalising discussion about sex and sexual pleasure with girls from a young age is vital to ensure positive experiences through life. Our new booklet address many of these issues. https://haemophilia.org.uk/resources/publications/booklets/ …
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Comments about the longer term impact of gene therapy in
#haemophilia.#EAHAD2020pic.twitter.com/adpdj2NBta
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The number of follow up appointments is underestimated in gene therapy in
#haemophilia.#EAHAD2020pic.twitter.com/dQtpU0ytgO
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Stopping alcohol for 4 months post gene therapy is an issue for some patients.
#haemophilia#EAHAD2020pic.twitter.com/Wfn2HxEiFs
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