Michael Makris

@ProfMakris

Professor of Haemostasis and Thrombosis at The University of Sheffield. EAHAD president. EUHASS lead. Opinions are my own.

Sheffield, UK
Vrijeme pridruživanja: listopad 2009.

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  1. proslijedio/la je Tweet
    prije 4 sata

    Excellent initiative for patient awareness by

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  2. proslijedio/la je Tweet

    Join us in Basel on 29-31 May to learn more about issues faced by women with bleeding disorders during our second Women's conference. . More info at

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  3. proslijedio/la je Tweet

    Welcome and introduction by Karin Fijn van Draat president of local committee and Mike Makris EAHAD’ president

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  4. proslijedio/la je Tweet
    5. velj

    Interesting age-based adherence trends from 24-yr Danish study presented by Peter Kampman

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  5. proslijedio/la je Tweet
    5. velj

    highlights the complexities of communicating with our patients and how if we are to advocate for our patients effectively it involves collaborating with the whole MDT.

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  6. prije 14 sati
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  7. 5. velj

    The take home messages from one of the symposia on gene therapy in at . Excellent session.

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  8. 5. velj

    I agree this is an excellent book. Can it be made available free on Kindle?

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  9. 5. velj

    You will see this table a few times over the next 3 days!!!

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  10. proslijedio/la je Tweet
    5. velj

    Nice table outlining haemophilia Gene Therapy under development. Chambost at Biomarin symposium

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  11. proslijedio/la je Tweet
    5. velj

    Pasi at question on Gene Therapy expression level. Largest group want 30% to 50% Question on duration of expression. Largest group want 10 to 15 years. Several GT companies asking these questions at the Conference

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  12. proslijedio/la je Tweet
    5. velj

    Sex messages for WBDs: Here are some of the great insights from Dutch psychosexual therapist Ellen Laan - great talk!

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  13. proslijedio/la je Tweet
    5. velj

    Great start & focus to the conference for Women with bleeding disorders 🩸More focus needed in our clinics and on the Interdisciplinary support we can give women

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  14. proslijedio/la je Tweet
    5. velj

    Starting with a tricky topic: How to manage specific bleeding issues in females with inherited bleeding disorders? Remember the impact the sexual and menstrual bleeding it has in our patients' quality of life. We should talk about it so we can treat it!

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  15. proslijedio/la je Tweet
    5. velj

    Doctor and Nurse from Royal Free hospital in the UK give a joint presentation on optimising patient experience with Gene Therapy at Novel approach to presentation which makes sense given the multidisciplinary team approach in haemophilia. Royal Free always innovative

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  16. proslijedio/la je Tweet
    5. velj

    First symposium about VWD. Take home messages: 1. Don’t forget inhibitors in type 3. 2. The importance of a correct diagnosis. 3. Local hemostasis is also important! 4. Great real life example of prophylaxis in menorrhagia by

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  17. proslijedio/la je Tweet
    5. velj

    Spoke too soon. Another very important message about sex. Normalising discussion about sex and sexual pleasure with girls from a young age is vital to ensure positive experiences through life. Our new booklet address many of these issues.

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  18. 5. velj

    Comments about the longer term impact of gene therapy in .

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  19. 5. velj

    The number of follow up appointments is underestimated in gene therapy in .

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  20. 5. velj

    Stopping alcohol for 4 months post gene therapy is an issue for some patients.

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