We’re excited to share the newest class of Ramsay Researchers! Our grant program has successfully attracted new scientists to the field of #MECFS and #LongCovid since 2016, & providing funding for researchers to engage w/ the science of the disease and build pilot data.
Solve ME/CFS Initiative
@PlzSolveCFS
Making ME/CFS, Long Covid & post-infection diseases widely understood, diagnosable, & treatable. #SolveME #MECFS #LongCovid solve.convio.net/donate
Solve ME/CFS Initiative’s Tweets
(2/) The piece also features Solve M.E. and our #HowLong? PSA.
#LongCovid presents a unique opportunity to study post-infection illness in real-time, she adds.
Read more:
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“There have been syndromes that were poorly understood because their underlying biological mechanisms are not well-defined. And because the trigger or the cause was not necessarily well-established," Dr. Aurora Pop-Vicas shares w/ (1/2)
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"A lot of clinicians want the algorithm. There is no algorithm." - David Putrino on caring for chronically ill patients, quoted by in "Invisible Kingdom" #medtwitter
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Congrats again to our CAC & the authors of this important work on #MECFS #longCOVID AKanas NMuirhead & TY to for their leadership
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This Opinion piece is special to me because it reminds me that international news & media giants do care about the stories of Black people living with #LongCovid.
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Post-viral conditions like ME/CFS provide guidance for estimating the economic impact of Long COVID.
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Download FREE #InvisibleDisabilitiesWeek Badges, Frames, Banners for IDW Oct 16-22! InvisibleDisabilitiesWeek.org #invisibledisabilities #InvisibleDisability #invisibleillness
#IAmInvisibleNoMore #nationaldisabilityid #hiddenillness #chronicpain #chronicillness #disabilityawareness
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Replying to
I'm thankful for Dr Peter Rowe & SolveME for amplifying to the world the need for educated providers. The wait for long covid care is awful, but nothing compared to the wait for MECFS experts pre Covid. It'll take a village to fix this broken system but we are now 1 step closer
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October is #DysautonomiaAwarenessMonth. Today we are looking at some of the known causes of autonomic dysfunction, and how it is investigated. [THREAD]
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Congratulations, ! Well deserved recognition of all your hard work and leadership. We're excited to continue working together.
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#MEAction Board Co-Chairs Beth Mazur and Jill Hinson have an announcement they would like to share with you all. 
MEAction is thrilled to announce Laurie Jones @LaurieMichelleJ has been named Executive Director effective immediately.
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Thank you for sharing your #LongCovid experience, Will Toledo . You are not alone — millions of individuals are suffering from the devastating, lingering effects of #Covid19. We have resources that can help: solvecfs.org/me-cfs-long-co
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Join us Oct. 24 at 10am PT for a webinar w/ Prof. Dr. Carmen Scheibenbogen, who will discuss findings of a new study that show around half of patients who suffer from fatigue & exertion intolerance after #COVID19 meet the diagnostic criteria for #MECFS.
ow.ly/QBsv50LfGR9
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Heartfelt thank yous to Dr. Peter Rowe and for participating in our media tour last week on behalf of Solve M.E. — your expertise, dedication, & warmth allowed us to amplify our #HowLong? battlecry.
Visit solvelongcovid.org to watch our PSA & get involved.
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We are proud to support this effort as a member of .
“Working together, we can make big impacts and we look forward to our future collaboration with the to address infection associated chronic illnesses," said Solve M.E.'s Emily Taylor.
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The World ME Alliance has today written to @DrTedros at the @WHO congratulating his recent stance on #LongCovid, but calling on him to recognise the links with #MyalgicE, the ongoing devastation this disease causes and meet with us to #LearnFromME.
worldmealliance.org/2022/10/world-
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Our friends at are hosting Dr. Anthony Komaroff (, , & Solve M.E. research advisory council member) for a discussion on #MECFS & #LongCovid 10/22 at 1pm ET.
Register👉 tinyurl.com/MassME2022
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Our annual meeting is approaching! ME/CFS expert (and excellent speaker!) Dr. Anthony Komaroff of @harvardmed and @BrighamWomens will discuss similarities between #MECFS and #LongCovid, and why they matter to both communities
Register today!
tinyurl.com/MassME2022 
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We’re excited to share the newest class of Ramsay Researchers! Our grant program has successfully attracted new scientists to the field of #MECFS and #LongCovid since 2016, & providing funding for researchers to engage w/ the science of the disease and build pilot data.
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People w/ #LongCOVID are often referred to mental health practitioners (MHP). BHC education dir & NIH Community Advisory members co-authored this paper to supply MHPs w/ a framework for treating pw LC using knowledge derived from 30yrs of #MECFS research.
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Congratulations to our friends at and the newest class of Ramsay Researchers! Exciting news!
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We’re excited to share the newest class of Ramsay Researchers! Our grant program has successfully attracted new scientists to the field of #MECFS and #LongCovid since 2016, & providing funding for researchers to engage w/ the science of the disease and build pilot data.
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Comment some names of other illnesses that overlap with longhaul, MECFS and autoimmune that is unduly psychologized. I might as well clean up a bunch of things rooted in bias while I'm here. Clearly I'm not going anywhere. *Pun intended ✍🏾 #NEISVoid #InvisibleDisabilitiesWeek
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Meet the #RamsayResearchers: , PhD, is a postdoctoral researcher at Institute Bioscience in Norwich, UK. One of her main research interests includes studying how the immune response is altered by gut microbes. Learn more: ow.ly/TO6M50LclLt
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Check out our newsletter for the latest #MECFS Research Network news and updates from the on related activities. Issue includes latest publications, network, research and community news, resource spotlight and NIH in the news. ow.ly/Tsq650L2fx3 mecfs.rti.org/newsletter/doc
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It's #InvisibleDisabilitiesWeek! Share stories, photos, banners, challenges, pets, channels! It’s about YOU! InvisibleDisabilitiesWeek.org #invisibledisabilities #InvisibleDisability #invisibleillness
#IAmInvisibleNoMore #nationaldisabilityid #hiddenillness #disabilityawareness
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Exciting lineup of research for #mecfs & #longcovid:
* 🩸Micro-clots
* 🐀Animal model of autophagy
* ⚡Stellate ganglion block therapy
* 🧦EECP pulsating compression therapy
* 💩Fecal microbiome transplantation
🎉 to awardees & 🙏🏽to
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We’re excited to share the newest class of Ramsay Researchers! Our grant program has successfully attracted new scientists to the field of #MECFS and #LongCovid since 2016, & providing funding for researchers to engage w/ the science of the disease and build pilot data.
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Congratulations to team Simmaron for Ramsay grant 2022. Together with Milwaukee Institute for Drug Discovery Simmaron is looking for the answer for the treatment of ME/ CFS. Thanks to for their interest and support. Go
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So excited! Our science team won a Ramsay grant! With the grant, we’ll study the role of autophagy in #MECFS & test development of the first mouse model in the disease. We are aiming squarely at pathways & tools for drug discovery. TY . #MEmousemodel #LongCovid #ME
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I'm so excited to announce I've been awarded the Ramsay grant from to researching premature immune ageing in #MECFS as part of the restore ME clinical trial at
Excited to collaborate with
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Our 2022 Ramsay Researchers are demonstrating that our program is moving beyond the laboratory bench science we’ve seen in years past. Learn more about their efforts to expedite the discovery of disease mechanisms and treatments here: solvecfs.org/new-ramsay-gra
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Our 2022 Ramsay Researchers are demonstrating that our program is moving beyond the laboratory bench science we’ve seen in years past. Learn more about their efforts to expedite the discovery of disease mechanisms and treatments here:
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Check out this data visualization from about #Covid19's impact on the brain — nearly 15% of American adults who have had #COVID have #LongCovid and may experience #BrainFog.
ow.ly/vxzs50L8GjP
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Join us NEXT WEEK for Long COVID: A Community Conversation on Disability, Equity, and Its Impact on Advocates and Survivors in Native Communities
October 20, 2022 | 12:00pm - 2:00pm MDT
Register now at bit.ly/3fra05T 🔗
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Read Eleanor’s story about ME/CFS following #COVID19 illness. CDC’s “Voice of the Patient” series looks at #PWMECFS
cdc.gov/me-cfs/patient
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Thank you for co-sponsoring the #COVID19 Longhaulers Act, which will increase research funding, expand Medicaid coverage, & enhance education & awareness for #MECFS, #LongCovid & post-viral illnesses. Learn more & engage your elected officials:
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Thank you to Dr. Rowe for joining our #HowLong? media tour and sharing your invaluable #PostInfectionDisease expertise.
#HowLong?
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Dr. Peter Rowe has dedicated over 20 years to understanding and treating patients with #MECFS, & more recently, #LongCovid. In June, he joined a webinar co-hosted by Solve M.E. to share his insights on Long Covid in children. Watch here:
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We’re honored that Cynthia Adinig joined our #HowLong? media campaign and used her powerful voice to amplify our battle cry for research into #MECFS & #LongCovid. Check out some of her previous media mentions below:
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Dr. Peter Rowe of & patient advocate are doing 27 back-to-back TV & radio interviews to raise awareness about the need for more research & resources for #LongCovid & #MECFS.
Thanks to the stations below for boosting the signal today!
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