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  1. 22. sij
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    8. sij

    The 2020 campaign materials are now available! Head over to their website to your posters, infomation packs and more! 🙌

    Image showing a boy and a woman embracing. They are holding their painted hands in the air. To the side is text which reads "we are the 300 million". At the bottom of the image is the rare disease day logo.
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    12. pro 2019.

    Today is Universal Health Coverage Day! Every person should be able to get the quality health services they need without facing financial hardship - spread the word to ensure world leaders keep the promise to deliver

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    4. pro 2019.

    Have you taken a photo that illustrates the challenges or joyful moments of living with a ? 📷 Submit it to the Photo Award 2020! Entries close 16th Jan.

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    27. stu 2019.
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  6. 24. stu 2019.
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    At , Minister for Innovation in Health, invited us all to join the on . Share YOUR priorities here for UK RareDisease Strategy for 2020 PLEASE SHARE WITH YOUR NETWORKS 😊

    , , i još njih 4
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  8. 15. lis 2019.
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  9. 15. lis 2019.

    Excited to be at the Genetic Alliance UK 29th Annual Conference: Connecting Communities

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  10. 8. lis 2019.

    Hearing about Rare Disease Day 2020 from Lucy

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  11. 8. lis 2019.

    Excited to be at the EURORDIS digital school! Agrenska, Sweden. # PittHopkinsuk # pitthopkinssyndrome

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  12. 7. lis 2019.
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    The Student Voice Prize 2019 is now open! Did you know a published article is worth a point towards your FPAS score? Win The Student Voice Prize and get published -

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    23. ruj 2019.

    Co-founder of , Nick Sireau, discusses one of the key reasons why we exist - to train & support so they can work on an equal footing with in & development. But patient groups need further resources (funding!) to get there!

    Photo is of 7 people (6 men and 1 woman) seated on stage. They are seated around a table and facing the audience.
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  15. 24. ruj 2019.
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  16. 24. ruj 2019.
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    23. ruj 2019.

    Learning about patient groups partnering in the drug development process. Some amazing stories.

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  18. 23. ruj 2019.
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  19. 23. ruj 2019.

    Our first ever Pitt Hopkins UK table! Wonderful neighbours from Rare Revolution! Come and see table@23 @camraredisease

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    Dr Jonathan Milner and Alastair Kent, OBE open the day at at today. Great to see everyone here!!

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