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Great to be here with everyone!https://twitter.com/findacure_fdn/status/1219958714653978626 …
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Pitt Hopkins UK proslijedio/la je Tweet
The
@rarediseaseday 2020 campaign materials are now available! Head over to their website to your#RareDiseaseDay posters, infomation packs and more!
http://ow.ly/bALo50xPWDR pic.twitter.com/JbT59tQZRG
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Pitt Hopkins UK proslijedio/la je Tweet
Today is Universal Health Coverage Day! Every person should be able to get the quality health services they need without facing financial hardship - spread the word to ensure world leaders keep the promise to deliver
#HealthForAllpic.twitter.com/qqi4r5yMya
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Pitt Hopkins UK proslijedio/la je Tweet
Have you taken a photo that illustrates the challenges or joyful moments of living with a
#RareDisease?
Submit it to the @eurordis Photo Award 2020! Entries close 16th Jan.http://ow.ly/Cn5a50xrzaLHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Pitt Hopkins UK proslijedio/la je Tweet
Looking forward to a fab info packed day!https://twitter.com/findacure_fdn/status/1199631639787311104 …
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Congratulations Ring20UKhttps://twitter.com/wrepihunter/status/1198264666247639042 …
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Pitt Hopkins UK proslijedio/la je Tweet
At
#RAREsummit19@nicolablackwood, Minister for Innovation in Health, invited us all to join the#NationalConversation on#raredisease. Share YOUR priorities here http://bit.ly/talkrare for UK RareDisease Strategy for 2020#talkraredisease PLEASE SHARE WITH YOUR NETWORKS
pic.twitter.com/vT7JN2fpKG
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Very interesting speech!https://twitter.com/GeneticAll_UK/status/1184034604417798149 …
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Excited to be at the Genetic Alliance UK 29th Annual Conference: Connecting Communities
#GAUKConf#ConnectingCommunitiespic.twitter.com/RUzkJ889X8
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Hearing about Rare Disease Day 2020 from Lucy
#EURORDISDigitalSchoolpic.twitter.com/vaDXUu6sZQ
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Excited to be at the EURORDIS digital school! Agrenska, Sweden. # PittHopkinsuk # pitthopkinssyndromepic.twitter.com/HTv8dJbOwf
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Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi
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Pitt Hopkins UK proslijedio/la je Tweet
The Student Voice Prize 2019 is now open! Did you know a published article is worth a point towards your FPAS score? Win The Student Voice Prize and get published - https://mailchi.mp/121c2e8b2db8/pair-up-with-a-medical-student-for-this-years-student-voice-essay-prize-638249 …
#studentvoice19#medstudent#daretothinkrarepic.twitter.com/gpFj7EkNQm
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Pitt Hopkins UK proslijedio/la je Tweet
Co-founder of
@findacure_fdn, Nick Sireau, discusses one of the key reasons why we exist - to train & support#PatientGroups so they can work on an equal footing with#industry in#drug &#treatment development. But patient groups need further resources (funding!) to get there!pic.twitter.com/dJf1LUWJ1t
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Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi
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It was a wonderful day
!https://twitter.com/AarskogSyndrome/status/1176502738513010690 …
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Pitt Hopkins UK proslijedio/la je Tweet
Learning about patient groups partnering in the drug development process. Some amazing stories.
#RAREsummit19pic.twitter.com/3fqP8ymMym
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Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi
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Our first ever Pitt Hopkins UK table! Wonderful neighbours from Rare Revolution! Come and see table@23
#RAREsummit19@camraredisease#pitthopkinsUK#pitthopkinspic.twitter.com/31istvk8vZ
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Pitt Hopkins UK proslijedio/la je Tweet
Dr Jonathan Milner and Alastair Kent, OBE open the day at
#RAREsummit19 at@WGCConfCentre today. Great to see everyone here!!Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi
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