PittHopkinsSyndrome

@PittHopkins

Dedicated to Pitt Hopkins research & treatment, and to creating a network of friends & supporters of those with PTHS. Join us on FB @ .

Vrijeme pridruživanja: veljača 2014.

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  1. proslijedio/la je Tweet
    prije 21 sat

    Check out our new paper in ! Find it here Congrats to from and collaborators plus many others. (1/5)

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  2. 24. sij

    We are so excited to share that registration is officially OPEN for our 2020 Pitt Hopkins Family Conference!

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  3. 5. pro 2019.

    You Did It Again! THANK YOU!! We crushed our goal... $31,000 raised for research, for hope, for our kids!! We tell people all the time that we have the best community supporting us & you all prove it over and over again. There is nothing quite like PITT POWER!!!

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  4. 2. pro 2019.

    It's and Facebook is doing a MATCH! Donate at 8AM EST for a chance to double your donation!! Help us reach our goal of $20,000 for research!! Donate Today! -->

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  5. 26. stu 2019.

    is one week from today!! Facebook is matching donations made at 8:00am EST, up to 250K per charity, until the 7 million dollars runs out! Find out how you can help by checking out our link below!

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  6. 20. stu 2019.

    Don't miss any updates from the PHRF! Be sure you are signed up to receive our emails -- our quarterly newsletter as well as other important and exciting news as it becomes available! Sign up here ➡️

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  7. 13. stu 2019.

    Calling all bicyclists!! Mark your calendars for Saturday, June 13, 2020, for the Million Dollar Bike Ride in Philadelphia. We hope you will join us for our 7th year participating in this amazing event!

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  8. proslijedio/la je Tweet
    23. lis 2019.
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  9. proslijedio/la je Tweet
    22. lis 2019.

    If you’re at , check out the research student posters this morning on how TET enzyme inhibition can improve learning and memory, including in model mice. Boards Z32 and Z38.

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  10. 16. lis 2019.
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  11. 15. lis 2019.

    Congrats to the Kennedy Lab on their new small molecule patent Bobcat 339. A therapeutic designed with the of goal treating and other neurological disorders!

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  12. 2. lis 2019.
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  14. 30. ruj 2019.

    Today we are very proud to announce that enrollment is now open for the first ever clinical trial! Thank you to , our parents, and our incredibly generous donors for making this dream a reality!! More details are available at .

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  15. 27. ruj 2019.

    Looks like a fun time out on the greens today in Alabama!! THANK YOU AEgis Technologies for your continued support year after year, putting on one of our largest fundraisers each year! Thank you Teresa and Lakely, you are both amazing!

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  16. proslijedio/la je Tweet
    20. ruj 2019.

    Several Maher lab members ( Rebecca Moses, and Dan Hiler) are showing off their work at CSHL Stem Cell Meeting. We are studying iPS cells derived from patients.

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  17. 19. ruj 2019.

    It's amazing what we can accomplish when we're in it together! YOU ALL never cease to amaze us!!! $64,725 raised for research... for hope. THANK YOU! For donating, for sharing, for supporting... and most of all for always believing. We could not do this without you!

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  18. proslijedio/la je Tweet
    18. ruj 2019.

    Pitt Strong 💪 My friend Calvin has Pitt Hopkins and today we're raising awareness about this syndrome in hopes for a cure. Stand strong buddy.

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  19. 18. ruj 2019.

    The cast of Feel the Beat, coming soon to Netflix. Today they are dancing for Pitt Hopkins awareness.

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  20. proslijedio/la je Tweet
    18. ruj 2019.

    The Maher lab is celebrating Awareness Day! Thank you for supporting our research efforts! We are trying our best to find a treatment for Pitt Hopkins Syndrome. Please learn more and donate to this incredible cause at

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