Probably a minority have spent a lot of time with such people. It's a substantial minority though; and many autistic advocates have high support needs themselves though, which is not obvious when you're meeting them through the internet. Of course it changes how you view things.
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Have you ever been responsible for looking after the personal hygiene of somebody who screams & fights every time you come near? (I'm asking out of interest, not in an aggressive manner.)
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I have been in more-or-less that situation, yes, although not someone who 'screams & fights every time you come near' - that's an oddly specific requirement! I have certainly been responsible for looking after people who have physically attacked me and made horrible noises at me.
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Probably my experience skewed right towards the severest end of the range of issues that can come with autism. I think this particular lad was probably in "sensory hell" the whole time. If I had to guess. No verbal language, only very little non-verbal.
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Right. Hence the
@NAT_taskforce recommendations, starting with: 'Carry out regular sensory reviews of environments where autistic clients spend time, utilising the expertise of autistic people to identify sensory issues.'https://nationalautistictaskforce.org.uk/an-independent-guide-to-quality-care-for-autistic-people/#section4 …2 replies 0 retweets 3 likes -
Replying to @MxOolong @ThrupennyBit and
You cannot begin to imagine - actually possibly you can - how far way we were from implementing this sort of thing. It was a long time ago though.
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Replying to @PhilosophyExp @ThrupennyBit and
I can imagine, although it's EXTREMELY UNCOMFORTABLE to do so, so I try not to! A lot of people still just don't know where to start making environments acceptable for autistic people. I think of
@sbaroncohen mentioning those who 'appear to be in anguish for no apparent reason'.2 replies 0 retweets 2 likes -
Replying to @MxOolong @PhilosophyExp and
* Carers and professionals in general still have a huge amount to learn from autistic people. * Some autistic people could stand to do some learning from them, too. * Online activism is not perfect, but is a powerful way of sharing ideas; if it's over-positive, it's compensating.
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Replying to @MxOolong @ThrupennyBit and
Resources just as important. If there are 3 people caring for a house with 18 teenagers, most of whom are profoundly disabled, then you've got problems (regardless of how much learning you have).
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Replying to @PhilosophyExp @ThrupennyBit and
For sure! And to be fair to my own experience caring for disabled kids, it was close to 1-to-1, and only for two weeks at a time; I know how lucky we were. 3 adults to 18 teenagers is not really enough for round-the-clock supervision even if none of them have high support needs!
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The aftermath of Thatcher's Britain. No money. No resources. No political interest. 
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Replying to @PhilosophyExp @ThrupennyBit and
And here we are in Thatcher's Britain Mark 2. Hell of a time to be fighting for autistic rights, but here we are!
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