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Probably a minority have spent a lot of time with such people. It's a substantial minority though; and many autistic advocates have high support needs themselves though, which is not obvious when you're meeting them through the internet. Of course it changes how you view things.
Have you ever been responsible for looking after the personal hygiene of somebody who screams & fights every time you come near? (I'm asking out of interest, not in an aggressive manner.)
I have been in more-or-less that situation, yes, although not someone who 'screams & fights every time you come near' - that's an oddly specific requirement! I have certainly been responsible for looking after people who have physically attacked me and made horrible noises at me.
Probably my experience skewed right towards the severest end of the range of issues that can come with autism. I think this particular lad was probably in "sensory hell" the whole time. If I had to guess. No verbal language, only very little non-verbal.
Right. Hence the @NAT_taskforce recommendations, starting with: 'Carry out regular sensory reviews of environments where autistic clients spend time, utilising the expertise of autistic people to identify sensory issues.'https://nationalautistictaskforce.org.uk/an-independent-guide-to-quality-care-for-autistic-people/#section4 …
You cannot begin to imagine - actually possibly you can - how far way we were from implementing this sort of thing. It was a long time ago though.
I can imagine, although it's EXTREMELY UNCOMFORTABLE to do so, so I try not to!
A lot of people still just don't know where to start making environments acceptable for autistic people. I think of @sbaroncohen mentioning those who 'appear to be in anguish for no apparent reason'.
This was the mid-1990s. I think we had an idea that sensory overload (as we would have seen it) was the most immediate problem. But absolutely no way to control it. No resources. No staff. Other (non-autistic) profoundly disabled kids for whom we cared. No power.
I think the lad was probably in hell - and I thought so at the time - but even now, not sure given the particular circumstances, what more we actually could have done. I don't want to think about it too closely either.
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