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Patients Association
@PatientsAssoc
We are an independent charity campaigning for true patient partnership. For our social media community guidelines, see: patients-association.org.uk/contact.
Non-Governmental & Nonprofit Organization United Kingdompatients-association.org.ukBorn 1963Joined April 2009
Patients Association’s Tweets
An alarming week for patients using maternity services with the publication of two reports: Kirkup's on failures in East Kent maternity services & 's State of Care.
On our website, our reaction to both reports ow.ly/PjNz50LhCVL
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The Patients Association Weekly News - mailchi.mp/patients-assoc Our comments about the latest findings of failures in maternity care, CQC's State of Care report, shared decision making workshop, and tickets now available for our patient partnership week events.
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Just to be clear - all the #PatientPartnership week webinars are free to join.
Should have said 'book your place' 🫢
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Tickets are available for @rachelpower222 in conversation with the new Patient Safety Commissioner, and great examples of #SharedDecisionMaking - both part of #PatientPartnership week.
Visit our website for info on all events & to book tickets.
patients-association.org.uk/Event/join-us-
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Patients are expected to be offered choices in treatments by the #HealthcareProfessionals caring for them. Our Health Our Knowledge (OHOK) is a short web-based course, developed by #patients & #GPs to help people make #healthcare choices. Its available in English and Welsh🏴🏴
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What better way to start the week than learning more about how to make decisions about your healthcare? Read member Brian's blog about the new website for patients Our Health Our Knowledge, which supports patients' practice of #SharedDecisionMaking.
ow.ly/9yPw50L4qXN
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Interesting to hear Chief Executive of Bristol N.Som & S.Glo ICB speak of how #health & #socialcare works in N.Ireland and how that can be recreated in the south west of England. We need to listen to the voices of 3 groups: population, partners and data #HSJICSummit #NHS
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The 's latest State of Care report shows we need a strategic approach across government, aligning other department’s policies with the DHSC's, if we are to seriously improve the nation’s health and well-being.
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"A real step change is needed to attract and retain staff, better pay is part of this, and so is training. How do we inspire our young people to build careers in health and social care?"
- Ian Trenholm
#StateOfCare
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"Two in five maternity services are still not good enough... the headline figures mask inequalities - Black women are four times as likely to experience complications in child birth than white women"
- Ian Trenholm
#StateOfCare
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Q&A
What are you are most worried about in the next six months
"Access for carers to respite services almost entirely stopped during the pandemic. It hasn't caught back up. Systems need money to support unpaid carers."
- Kate Terroni
#StateOfCare
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Is there a health or care issue in your area you feel passionately about? Then our new resources 📣 are perfect for you. They include:
Getting a campaign off the ground🚀
Who to contact 📞
Promoting your campaign👩💻
Free to download.
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New on the website: campaign resources 📣
Getting a campaign off the ground🚀
Who to contact 📞
Promoting your campaign👩💻
Free to download.
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"It’s disheartening to see...drop in quality of maternity units ... all the more disappointing considering the many ... calls to action for improvements to maternity care that have been published in recent and not so recent years.”
#patientsafety
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Tickets are available for in conversation with the new Patient Safety Commissioner, and great examples of #SharedDecisionMaking - both part of #PatientPartnership week.
Visit our website for info on all events & to book tickets.
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Interesting read and backs up what we found in Time to Choose about the variation in waiting times across England.
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Just over half of the people waiting more than 2 years for elective care are concentrated in seven ICSs.
Our long read analyses the size of the backlog and some of the other challenges facing ICSs in England.
Read more
health.org.uk/publications/l
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Another appalling report on maternity service failures. Avoidable deaths continue and it’s infuriating & frustrating to see the same mistakes happening over and over …. My heart is with every family affected 🙏🏻 #EastKent #patientsafety #Informedconsent
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BREAKING: The report into poor maternity care at #EastKent has been published and says it found a clear pattern of poor care leading to 45 baby deaths. Better care could have made a difference in 97 cases examined.
Read the report here: assets.publishing.service.gov.uk/government/upl
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Our second session focuses on moving towards health equity @Wolters_Kluwer #HSJICSummit @Jeanelleuk, @rachelpower222 @shutcake @felly500 @CharlesAlessi
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Today’s report is something that everyone working in the healthcare system (not just maternity) should read in full. It’s a difficult, distressing & at times harrowing account of circumstances that have led to considerable & significant harm to women, babies & families.
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In this blog, member Karen describes talking to her consultant about which supplements to take for osteoporosis.
#worldosteoporosisday #checkyourrisk #bonehealth
ow.ly/XjR850LeJ6k
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After a neonatal death, not family should then have to endure what families in East Kent did. The Kirkup report exposes major failings not just at the hospitals, but in the system.
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I've gathered some of my thoughts after reading the Kirkup recommendations. You can read them on website.
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Enough's enough. Our Chief Executive @rachelpower222 reflects on the report into East Kent maternity services. "...hospitals should care about the truth and worry less about reputation management".
#patientsafety
#maternitysafety
patients-association.org.uk/news/maternity
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"The same underlying themes coming up time and time again; themes of organisational and regulatory leadership, failure to learn and act upon that learning; failure to set standards for behaviours and hold people to account within a just culture. These are systemic failures."
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Following the publication of the East Kent Maternity Inquiry Report this morning, you can read now our initial response to this below
patientsafetylearning.org/blog/initial-r
#patientsafety #maternitysafety
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This week we sent a letter to the Chancellor asking for an urgent Funded Winter Plan for #SocialCare. Care needs to be an immediate priority else we fear that provision will continue to decline at the expense of both individuals and the NHS.
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Enough's enough. Our Chief Executive reflects on the report into East Kent maternity services. "...hospitals should care about the truth and worry less about reputation management".
#patientsafety
#maternitysafety
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We'll be showcasing great examples of #SharedDecisionMaking during our #PatientPartnership week next month.
Find out what else is happening during the week on our website.
ow.ly/heGa50Lcijt
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Deadline to apply for Chair or new Honorary Treasurer roles is tomorrow. We want trustees with passion for #PatientPartnership and who share our values.
Fantastic opportunity to join one of the oldest patient charities in UK.
#volunteer
#charity
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Appalling. Enough's enough. How many babies need to die, how many women need to be damaged and families left grieving before patients can trust maternity services?
#maternitysafety
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BREAKING: The report into poor maternity care at #EastKent has been published and says it found a clear pattern of poor care leading to 45 baby deaths. Better care could have made a difference in 97 cases examined.
Read the report here: assets.publishing.service.gov.uk/government/upl
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Pressure at work does not excuse unkind, heartless care. It's a reflection of a culture that tolerates a lack of compassion in caring for patients and their families.
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Report also found women were blamed for what happened, poor working culture between consultants and midwifes with cliques and egos undermining patient care. Lots of evidence of unkind or heartless remarks to families from staff.
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Last week was #UKMAW and in 2021 we worked on a resource by produced for individuals with problems eating, unintentional weight loss or poor nutrition due to disease related malnutrition. bit.ly/3ACESoI
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The report into maternity failures at East Kent will be published around 1130 today. This is the story of how we got here, the tenacity of a grieving grandfather. Many, many families are grateful to
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It was January 2020 when I first reported on concerns about maternity care at #EastKent...today an inquiry looking at more than 200 cases will report its findings. It will be bad. My thoughts are with all the families, as sunlight finally breaks over another maternity disaster
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‘I wake up wondering how this happened to us’: The parents fighting for justice over their baby son’s death
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New on the website: campaign resources 📣
Getting a campaign off the ground🚀
Who to contact 📞
Promoting your campaign👩💻
Free to download.
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Booking has opened for another event in #PatientPartnership week. Delighted to have & Duvie Dafinone talking about decision support tools, and on the new website Our Health Our Knowledge.
Visit website for info & to book tickets.
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We're looking for a new Chair and a new Honorary Treasurer. People who have a passion for #PatientPartnership and share our values.
This is a fantastic opportunity to join one of the oldest patient charities in the UK.
#volunteer
#charity
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That's sure - plenty to discuss. Very much looking forward to meeting and speaking up for patients.
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Delighted to be hosting @wesstreeting today for an 'in conversation' about all things health & care
Huge pressures facing the NHS, declining public satisfaction & pop'n health, workforce shortages, social care (still) in crisis... how to fund it all...
Plenty to discuss!
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“We’ve seen tweets over the weekend about #pharmacist prescribing, #AMR and #sharing medicines - here’s our view on all three
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“If there is any suggestion that the NHS can take cuts without an immediate and substantial impact on patient care, I’m afraid that’s delusional.”
Our chief executive spoke to Sky News this morning.
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Have your #endometriosis symptoms been taken seriously? We want to hear how easy it was to get your GP to refer you for further care. Help us improve the system for everyone by completing our quick survey: bit.ly/3dwmUyr #BecauseWeAllCare
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One of the best ways to make sure your #HealthInformation is suitable for your target audience is to use #CoProduction. Our #CoProductionMatters poster offers simple tips to help you step up your user involvement: pifonline.org.uk/resources/post #HealthLiteracyMonth
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This #WorldMenopauseDay listen to a recording of our #TwitterSpace discussion around #menopause and #dementia.
Consultant Admiral Nurses chatted to from , and Maeve, who has young onset dementia.
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