Patient Worthy

@PatientWorthy

We're a resource for engaging, informative content and rare patient news, well done.

Vrijeme pridruživanja: travanj 2015.

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  1. Prikvačeni tweet
    2. sij 2019.

    Are you living with or caring for someone with a ? Subscribe to news that's important to you. Share your story. Amplify the voice. Find out more:

    Poništi
  2. prije 8 sati

    Cabozantinib as a Treatment for Metastatic Medullary Thyroid Cancer

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  3. proslijedio/la je Tweet
    2. velj

    I sometimes wonder what kind of person I would have been if I hadn't been born with 🤔

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  4. prije 9 sati

    Pembrolizumab as a Treatment for Esophageal Squamous Cell Carcinoma

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  5. prije 10 sati

    ICYMI: Company Announces Halt of Fibrodysplasia Ossificans Progressiva Clinical Development Program

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  6. prije 12 sati

    Dosing Begins in Phase II Mitochondrial Diseases Trial

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  7. prije 12 sati

    Today let’s celebrate the Alagille Syndrome Alliance and their incredible advocacy for the families facing this rare and frustrating liver disease. May the children suffering today, grow to be healthy adults.

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  8. prije 13 sati

    'We Are Visible' -- How Karina Turned Advocacy into Art

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  9. prije 14 sati

    Dasatinib as a Treatment for Chronic Myeloid Leukemia

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  10. 4. velj

    Dosing Underway for Trial of RTX-134, a Treatment for Phenylketonuria

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  11. 4. velj

    How Genome Sequencing can Help Understand and Treat Diseases

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  12. 4. velj

    Study Shows Efficacy of Treatment for Preventing Hereditary Angioedema Attacks

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  13. 4. velj

    ICYMI: One Fibrodysplasia Ossificans Progressiva Trial is on Hold but Another has Shown Promise

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  14. 4. velj

    New Test Identifies People at Risk of Chronic Kidney Disease

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  15. 4. velj

    ICYMI: An Observational Blood Cancer Study is Starting to Recruit Patients

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  16. 4. velj

    PTO for Rare Disease Caregivers Should be Commonplace

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  17. 4. velj

    One Doctor Helped his Daughter Overcome PANDAS: How Others can do the Same

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  18. 3. velj

    Study: Possible Cause of Young-Onset Parkinson's Disease Found

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  19. 3. velj

    How a Community has Rallied Around a Teenage Girl with Glioma

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  20. 3. velj

    'Bosentan' Approved by FDA to Treat Pulmonary Arterial Hypertension

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  21. 3. velj

    First Personalized Medicine Trials for Cystic Fibrosis are Underway

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