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Prikvačeni tweet
Are you living with or caring for someone with a
#raredisease? Subscribe to news that's important to you. Share your story. Amplify the#rare voice. Find out more: https://patientworthy.com/login/#Awareness#BeAChangeMaker#RareDiseasesHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Cabozantinib as a Treatment for Metastatic Medullary Thyroid Cancer http://bit.ly/3be4GMC
#raredisease#thyroidcancer#cancer@checkyourneckHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Patient Worthy proslijedio/la je Tweet
#IAmNumber17 I sometimes wonder what kind of person I would have been if I hadn't been born with#SickleCell
https://twitter.com/PatientWorthy/status/1223297445758689280 …Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Pembrolizumab as a Treatment for Esophageal Squamous Cell Carcinoma http://bit.ly/3bjQuSr
#EsophagealCancer#EsophagealSquamousCellCarcinoma#cancerHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
ICYMI: Company Announces Halt of Fibrodysplasia Ossificans Progressiva Clinical Development Program http://bit.ly/3bhihm6
#raredisease#FibrodysplasiaOssificansProgressiva#FOP@ifopaHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Dosing Begins in Phase II Mitochondrial Diseases Trialhttp://bit.ly/2S1NMcD
Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Today let’s celebrate the Alagille Syndrome Alliance and their incredible advocacy for the families facing this rare and frustrating liver disease. May the children suffering today, grow to be healthy adults.
#ALGSHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
'We Are Visible' -- How Karina Turned Advocacy into Arthttp://bit.ly/2UrjUI1
Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Dasatinib as a Treatment for Chronic Myeloid Leukemia http://bit.ly/2tsteQO
#raredisease#leukemia#ChronicMyeloidLeukemia@LLSusaHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Dosing Underway for Trial of RTX-134, a Treatment for Phenylketonuriahttp://bit.ly/2RZ0adc
Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
How Genome Sequencing can Help Understand and Treat Diseases http://bit.ly/2OpBvwo
#raredisease#DNA#GenomeSequencingHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Study Shows Efficacy of Treatment for Preventing Hereditary Angioedema Attackshttp://bit.ly/2By9J9S
Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
ICYMI: One Fibrodysplasia Ossificans Progressiva Trial is on Hold but Another has Shown Promise http://bit.ly/2v1A1Bu
#raredisease#FibrodysplasiaOssificansProgressiva#FOP@ifopaHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
New Test Identifies People at Risk of Chronic Kidney Disease http://bit.ly/2RXd6jF
#CKD#ChronicKidneyDisease#AcuteKidneyInjury@nkfHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
ICYMI: An Observational Blood Cancer Study is Starting to Recruit Patients http://bit.ly/2SiRQUI
#Notable#raredisease#leukemia#lymphoma@LLSusaHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
PTO for Rare Disease Caregivers Should be Commonplace http://bit.ly/2v876LZ
#raredisease#PTO#PaidFamilyLeaveHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
One Doctor Helped his Daughter Overcome PANDAS: How Others can do the Same http://bit.ly/394MTpc
#raredisease#PANDAS@PANDASnetworkHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Study: Possible Cause of Young-Onset Parkinson's Disease Foundhttp://bit.ly/31kqmSL
Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
How a Community has Rallied Around a Teenage Girl with Gliomahttp://bit.ly/3bi22We
Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
'Bosentan' Approved by FDA to Treat Pulmonary Arterial Hypertensionhttp://bit.ly/31pjfIt
Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
First Personalized Medicine Trials for Cystic Fibrosis are Underway http://bit.ly/394HPB6
#raredisease#CF#CysticFibrosis@strawfieHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi
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