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Frontotemporal dementia, or FTD, typically presents in the 6th or 7th decade of life with progressive impairment of executive function, language and social interaction.
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Passage Bio proslijedio/la je Tweet
The total number of Americans living with a
#raredisease is estimated at between 25-30 million. This estimate has been used by the rare disease community for decades to highlight that individual diseases may be rare, but the total number of people with a rare disease is large.pic.twitter.com/XDhQtyJ3jg
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At Passage Bio, our mission is to discover and develop life-transforming therapies for patients with rare monogenic CNS diseases, while also building strong relationships with the communities we serve. Learn how you can support our mission at https://www.passagebio.com/home/default.aspx …
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BioSpace is proud to present its NextGen Bio “Class of 2020,” a list of the top up-and-coming life science companies in North America.
#biospace#hotbeds2020#nextgenhttps://hubs.ly/H0msDH60Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Entering this new year, we are committed to developing promising therapies that could change the future of rare diseases for patients and families. Here's to a productive 2020!
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As we reflect on 2019, we at Passage Bio are proud of the work we've accomplished, and excited to expand our efforts in 2020. With several promising therapies in the pipeline, we're ready to leap into the new year with renewed focus. Here's to a productive and successful 2020!
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This holiday season we wish that all families with children with rare diseases are able to have peace, togetherness, and hope for progress on new treatments.pic.twitter.com/1aUe52O1Xb
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Passage Bio proslijedio/la je Tweet
Traveling this holiday season? We've put together a list of our favorite
#raredisease podcasts to get you through any snow storm, traffic jam or flight delay.#CareAboutRare@2RareMamaBears@2DDPodcast@RareInCommon@PharmaVOICEhttp://ow.ly/qWD850xsbD0Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
We will be attending the
#GTxN Summit in Boston this year, sharing knowledge with experts in gene therapy for neurological disorders. We're looking forward to identifying improvement areas and opportunities to guide our research!Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Did you know? GM1 gangliosidosis is an autosomal recessive genetic disorder. Many infantile GM1 patients experience rapid regression with mortality by approximately two years of age. Learn more about why we're developing a program to treat GM1: https://www.passagebio.com/pipeline/gm1-gangliosidosis/default.aspx …
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On
#Thanksgiving we are grateful for our wonderful team that every day dedicates themselves to developing life transforming genetic medicines for rare monogenic central nervous system diseases. Each and every one of you is instrumental to this fight, and we are lucky to have you!Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Thank you,
@statnews, for inviting Jim to be a part of the first#STATsummit!#genetherapypioneershttps://twitter.com/adamfeuerstein/status/1197572895930798080 …Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
On Universal Children's Day, we are reminded of all the children around the world who are living with Krabbe and GM1. Their fight inspires us every day!
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Passage Bio proslijedio/la je Tweet
In a
@GlobalGenes video,@lukebrosen of@KIF1A highlights the importance of infusing what matters most to families in every element of the development of new treatments for#rarediseases, & collaborating with urgency.https://globalgenes.org/2019/11/04/next-luke-rosen-kif1a-org-discusses-the-future-of-rare-disease/ …Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
'Tis the season! Donate a new toy to a child in the hospital this
#holidayseason through our Online Holiday#ToyDrive for@stchrishospital!https://yougivegoods.com/passagebio-toydrive …Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
#FlashbackFriday! We are looking back at the incredible experience we had with@CureGM1's Family meeting last month, and the wonderful families we were able to meet. They are why we do what we do#CureGM1pic.twitter.com/pq4dvncVD0
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Passage Bio proslijedio/la je Tweet
Not enough people with
#dementia take part in#research. If we want to make progress in care and treatments, we have to change that.#HealthcareProfessionals can make a huge difference - tell your patients about research opportunities today!
http://bit.ly/JDRlearn pic.twitter.com/cHV0c8eDNx
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Passage Bio proslijedio/la je Tweet
The NEXT report looks at how technology is improving our ability to diagnose and develop
#raredisease treatments. Catch our#2019GGSummit session surrounding the topic during Friday's closing session.#CareAboutRarehttp://ow.ly/l3wM50w93WfHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
November is
#NationalAlzheimersAwareness Month, and while FTD and Alzheimer's can seem similar, it is important to recognize their differences to avoid misdiagnosis. Check out this article from@alzassociation-https://www.alz.org/alzheimers-dementia/what-is-dementia/types-of-dementia/frontotemporal-dementia …Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
We had a blast at our Halloween Spooktacular celebration this morning.
#HappyHalloween everyone!#spookyseasonpic.twitter.com/oZLaojZn22
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