PDSA ITP SUPPORT

@PDSA_ITP

Platelet Disorder Support Association ~ the premier source for information, treatments, and support for people with ITP (immune thrombocytopenia).

Brecksville, OH
pdsa.org
Joined April 2011
256 Photos and videos Photos and videos

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  1. Apr 4

    ITP Patient Connect Meeting - Phoenix, AZ. Sat., April 7th, 1-3pm at Primerica - 5150 N. 16th St., Suite A211, Phoenix, AZ 85016. RSVP: Bunnie Stevenson - bunnie145@cox.net.

    1 reply
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  2. Apr 3

    PDSA's 1st Regional Meeting outside North America! Over 30 attendees with Dr. Chee Wee Tan of the Royal Adelaide Hospital presenting in Melbourne, Victoria, Australia. See the photos:

    1 like
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  3. Retweeted
    Apr 3

    Dr. Woodcock: The more we can get informed stakeholders out there to help understand how to formulate their questions, the better. This will lead to efficient and effective engagement.

    4 retweets 4 likes
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  4. Retweeted
    Apr 3

    Not attending in person? Join the webcast: . Test your connection here 1st: .

    1 retweet 2 likes
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  5. Mar 31

    Congratulations to this wonderful group on their 1st annual walk/run fundraising event in Killeen, TX! They raised over $1,200 and had 30 people in attendance. View photos from their event:

    1 like
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  6. Mar 22

    ‘Compassionate Use’ treatment available for ITP patients unresponsive to past therapies. More Info:

    1 retweet 4 likes
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  7. Mar 17

    Atlanta, GA - ITP Support Group: Connect With Others Navigating Life With Immune Thrombocytopenia. Sat., March 24th at 11:15 am. Speaker: Ana G. Antun, MD. RSVP to Joan Coppolino at mariettajoanie@yahoo.com

    2 retweets 2 likes
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  8. Mar 14

    Applications are NOW being accepted for the PDSA College Scholarship Program! Apply TODAY through 4/15/18. More Info:

    2 retweets 2 likes
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  9. Mar 9

    Tomorrow's Central/North NJ ITP SUPPORT GROUP meeting has been canceled. We apologize for the inconvenience. The next meeting will be May 12th.

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  10. Mar 7

    The Stotz family held a fundraiser for PDSA in February. They raised $1,056 and spread awareness about ITP. THANK YOU!

    4 likes
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  11. Mar 6

    "Mother-of-three given six months to live becomes third person in the WORLD to get life-saving cancer immunotherapy - and is now two years in remission." Read More:

    1 retweet 1 like
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  12. Mar 6

    Central/North NJ - ITP Support Group: Sat., March 10 at 11 am. RSVP with Linda McGuirl & Susan Anderson at NJPDSA@gmail.com

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    1 retweet 2 likes
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  13. Mar 3

    Central/North NJ - ITP Support Group. Sat., March 10th. at 11:00 am. RSVP to Linda McGuirl & Susan Anderson at NJPDSA@gmail.com.

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  14. Retweeted
    Feb 23

    A5: Advocacy orgs are critical part of ecosystem to develop interventions. Need better funding.

    3 retweets 2 likes
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  15. Mar 1

    “Rare disease is a unique field. The families are the drivers in the field, the patients are why we do what we do... patients are the greatest source of information.” - Marshall Summar, Children’s National Rare Disease Institute

    2 retweets 5 likes
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  16. Retweeted
    Feb 28

    A7: is taking new steps to meet the challenges of rare disease to facilitate the development of approved treatments. Learn more:

    1 reply 10 retweets 18 likes
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  17. Retweeted
    Feb 28

    A9: Here’s a great guide on how to get involved in for those with a rare disease:

    Q9: How can I find out if researchers are studying my/my child’s disease?
    22 retweets 23 likes
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  18. Retweeted
    Feb 28

    A2: Individuals and families dealing with a rare disease often report a significant financial burden. The following resources may help you find both emotional and financial support:

    27 retweets 34 likes
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  19. Retweeted
    Feb 28

    A8: Patient organizations are a great way to connect with others experiencing the same challenges to share information & support

    4 replies 5 retweets 24 likes
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  20. Retweeted
    Feb 28

    A7: Sharing stories is an extremely important way to raise awareness of how your diagnosis impacts your life. Researchers want to help when they understand the challenges.

    6 replies 33 retweets 81 likes
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