.@RareDiseases is encouraging #patients & #caregivers to complete a brief survey on the diagnosis, care & treatment of #rarediseases in the US to compare to findings from a similar survey 30 years ago to see what has improved & what still needs work.https://rarediseases.org/nord-survey-to-better-understand-rare-disease-diagnosis-care-and-treatment-in-the-us-take-part-in-our-30-year-follow-up/ …
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