ME/CFS on the front page of the SF Chronicle!
#MECFS
Open Medicine Foundation
@OpenMedF
OMF is fundraising to support open, collaborative research to find effective treatments and diagnostic markers for ME/CFS and related chronic complex diseases.
Open Medicine Foundation’s Tweets
Trial By Error: Cindy Bateman & OMF Seek to Boost #MedicalEducation About #MECFS and Related Illnesses. Read the new blog post from
👉bit.ly/3TCmirr
#LongCOVID #MedEdMatters #pwME
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The FRONT page of the San Francisco Chronicle today! This is such great awareness and publicity of MECFS! Wow!
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I'm having a very hard time right now, but this is hope worth letting myself give in to. I burst into tears in fact. Thank you Whitney #mecfs
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ME/CFS featured on the front page of @sfchronicle!
Many thanks to the brave #pwme @DafoeWhitney, who gives reporters a glimpse of what life with severe #MECFS looks like behind closed doors. In doing so, Whitney raises awareness of the realities of this disease.
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ME/CFS featured on the front page of @sfchronicle!
Many thanks to the brave #pwme @DafoeWhitney, who gives reporters a glimpse of what life with severe #MECFS looks like behind closed doors. In doing so, Whitney raises awareness of the realities of this disease.
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Read the full article: bit.ly/3MSciHR (Please note, this article is currently behind a paywall.)
#pwme #millionsmissing
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Thank you for bringing visibility to our son, who has lived in the shadows for 11 years and counting. His 20s are almost gone.😪
desperately needs funding for his 30s to have prayer at emerging. 🙏
#MECFS = #LongCovid #MillionsMissing
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The FRONT page of the San Francisco Chronicle today! This is such great awareness and publicity of MECFS! Wow!
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ICYMI. Watch Dr. Yellman’s #MCAS lecture to #healthcareprofessionals to learn abt mast cells, activation syndrome, & treatments.
👉bit.ly/3RECCHa
#MedEdMatters #MERC #MECFS #FM #LongCOVID
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The Community Advisory Committee has a new publication on how mental health practitioners can use the knowledge gained from #MECFS research to play a pivotal role in supporting those suffering from #longCOVID. #pwME
Find it here:
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We are honored to have brought on as the first ever presenting sponsor for the #ABN500 benefiting !
Check out the link below to find out how you can be a part of this great event!
⬇️⬇️
abnesports.com/abn-500
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Team OMF is together for in-person collaboration! This week, we've had the privilege of meeting with colleagues from around the world in Boston. We are very encouraged about our research direction & love spending time discussing existing projects and future research initiatives!
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Please join us in donating to David Tuller so he can keep doing his great work exposing the dodo heads’ bad work on MECFS!
Trial by Error Fall 2022
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Dr. Anthony Fauci: #longCovid is an ‘insidious’ public health emergency
America’s top disease expert speaks to the Guardian about the dangers of long Covid and urges US Congress to avoid complacency
Read in The Guardian:
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The story of Whitney Dafoe is so important for understanding what is happening with #LongCovid, and why #MECFS must be a central part of the government’s response. #pwME
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SF Chronicle Article About ME/CFS!
Yesterday the SF Chronicle published a major article about ME/CFS and long COVID featuring me and my family. It is titled "A long-hidden disease is pulled from the shadows by its cousin, long COVID"
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How long COVID reignites attention for chronic fatigue syndrome
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Like long COVID sufferers, people with the disease called ME/CFS, or chronic fatigue syndrome, develop chronic symptoms after an infection. But unlike with long COVID, research dollars to study ME/CFS are scarce.
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#MedEdMonday! Chronic pain after #COVID19 infection is one of 5 common features of #LongCOVID. As such, addresses the assessment & management of #chronicpain in post-viral syndromes & #MECFS in this accredited lecture to #medicalprofessionals. bit.ly/3S0DUeA
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ICYMI: Did you know that vehicle donations can drive hundreds and sometimes even thousands of dollars for #MECFS research? Turn your car into a vehicle for change by donating it to OMF this October. Learn more at bit.ly/3R2vvHj #Cartober2022
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Join our next professionally-led online support group on Tues, Oct 18th at 1 pm MT to discuss BLAME. Advanced registration is required. 👉bit.ly/3EHVbq5
#MECFS #fibromyalgia #LongCOVID #supportgroup
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Reminder that I’m trying to win $40K and give $10K to for Dr Ron Davis to keep working on curing #MECFS & #LongCovid!
One free vote per day!
votefab40.com/2022/meghan-in
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New ME/CFS Alert: Interview with Ryan Prior! bit.ly/3T7IMjF
In this episode, Llewellyn King discusses the similarities between #LongCovid and #MECFS with Ryan Prior, author of the upcoming book, "The Long Haul."
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TODAY 1 pm MT! is speaking at Systemwide Grand Rounds on #LongCOVID: Rheumatological, Autoimmune and Myalgic Encephalomyelitis/Chronic Fatigue Syndrome(#MECFS) Conditions. vimeo.com/748951813
#MedEdMatters
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For our Swedish friends: Jonas Bergquist, MD, PhD, OMF Chief Medical Officer & Director of the OMF Supported Uppsala Collaborative Research Center has been featured on a tv special! bit.ly/3TookdU
*Please note, this segment is currently only available in Swedish.
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The Gordon Lark Lecture is back!
Lecturer Ron Davis ( University, in hat) joined (far right), Toto Olivera (2nd from right) and faculty member Martin Horvath on 10/6 at the SBS's annual Science Retreat w/ other SBS research personnel (left).
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If you have a Facebook account, would you mind terribly casting a free vote for me to win $40k? If I do, I’m pledging $10K to go to & Dr Davis for #MECFS & #LongCOVID research!
votefab40.com/2022/meghan-in
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A small but crucial step forward. Congratulations to all who worked to make it happen! @MassME/CFS
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How can you help speed up research to find effective treatments for #MECFS, #LongCOVID & related diseases? Kick off a fundraiser in less than 5 minutes: omf.ngo/digital-fundra
Fundraisers have made a HUGE difference for OMF. We’re so grateful for our community 💙
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‘I spend 20 hours a day lying down. I have four upright hours in the day.’ Read the new, impactful piece from : bit.ly/3SWfJj3
#MECFS #Pwme #millionsmissing
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A team of us worked together on this publication, just out in the Journal of Fatigue: Biomedicine, Health & Behavior.
We really hope it helps.
#LongCovid
#MyalgicEncephalomyelitis #MedTwitter
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Trial By Error: Cindy Bateman & OMF Seek to Boost #MedicalEducation About #MECFS and Related Illnesses. Read the new blog post from : bit.ly/3MxK7xO
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Dr Cindy Bateman and team up to pursue better medical education in ME/CFS and related illnesses: virology.ws/2022/10/11/tri
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Stay in the loop with OMF's latest research developments & community updates by subscribing to our email newsletters: bit.ly/3JKQJXM
When you do, you'll never miss groundbreaking research news, progress updates, and more.
#MECFS #longcovid #pwme
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ME: ‘I spend 20 hours a day lying down. I have four upright hours in the day’
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This month's newsletter is full of great information, including our annual meeting with Dr. Anthony Komaroff, opportunities for Mass residents to get COVID vaccines and treatment at home, new videos & articles, and virtual volunteering opportunities
👉 massmecfs.org/newsletters/82
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I spoke to a lot of people about the changing understanding of ME and wrote this piece:
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👏This is such an important Tweet thread! is working to change this in partnership with . We recently launched a new medical education program to educate doctors on #MECFS & #longcovid: OMF.ngo/MERC
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It breaks my heart that medical school doesn't properly educate doctors that there is literally a disease (MECFS) that gets worse when you push or exert yourself. Dr./nurses are super big on pushing patients to get better especially if they believe we are deconditioned, and-
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