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  1. Prikvačeni tweet

    Please continue to support & share our ongoing campaign. Sign our petition calling on local authorities & the next Government to prioritise working age people with conditions in any plans for social care reform:

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    30. sij
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  3. 30. sij

    Government found to have unlawfully discriminated against thousands of severely disabled people who were left financially worse off after moving on to universal credit.

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  4. 28. sij

    Interviewed our new Chief Exec for a live webinar this morning, on her first week, priorities for the Neurological Alliance, her new puppy, and more! Recording available for members only - email us. Not a member? Join us! See

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    14. sij

    In light of concerns that not all medicines for ultra-rare conditions are appraised under the same NICE process, a new OHE Consulting Report discusses the distinct ethical & economic challenges faced by medicines for ultra-rare conditions

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    15. sij

    Have you completed the Rare Barometer H-CARE survey on rare disease patients' experience of healthcare received? Deadline 29 Feb 2020

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    7. sij

    Thanks to , we're hosting a PhD student or early-career researcher this summer to develop the research arm of . Apply by 3 Feb:

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    7. sij

    We are hiring a new Head of Policy! A truly exciting time to join National Voices as we implement our new strategy. Please see link below for JD and how to apply

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    We're delighted to announce our new Chief Executive Georgina Carr, who is currently Head of Campaigns and External Relations at the MS Society. Read more about her appointment, which will begin in January 2020, in our news article here:

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  10. Signing off until 2020. Season's greetings everyone, thank you for your support this year, looking forward to working with you again next year to make sure everyone with a neuro condition gets the treatment and care they deserve. Take care.

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  11. PUBLISHED: We collaborated with to produce a toolkit on & . We hope it will better help local health systems improve care for patients with these conditions. Learn more about it here:

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    18. pro 2019.

    ⭐Our Headache and Migraine toolkit is published today!⭐ Developed in partnership with . It can support local health systems to understand the priorities in headache and migraine care and key actions to take! Access it here -

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  13. proslijedio/la je Tweet
    12. pro 2019.

    We’ve launched a major new project, the ‘State of the Migraine Nation’. It’ll look at migraine’s personal impact, opportunities/challenges for migraine community, and campaign priorities. We want your involvement! You can find out more at

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    Please continue to support & share our ongoing campaign. Sign our petition calling on local authorities & the next Government to prioritise working age people with conditions in any plans for social care reform:

    Poništi
  15. Been up in Manchester this morning advocating for patient-centred standards for the @NICE Suspected Neurological Conditions Recognition & Referral Quality Standard. Hoping our points were well received, will be engaging with next steps once the QS is drafted.

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  16. A huge thank you to everyone who has supported our campaign! We appreciate every effort towards the goal of improving the lives of people with conditions. We will be following up with all candidates who pledged in the new year.

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  17. The fate of our country will be decided tomorrow. If you haven't already, please ask your parliamentary candidates to commit to advocating for better outcomes & a better future for communities by signing the :

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  18. It's day tomorrow! Have you asked your local candidates to sign the yet? If not, please do so now: Please RT!

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  20. TWO DAYS until the . Let's get on the agenda in the next Parliament - ask your candidates to sign the :

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