Narcyz Ghinea

@NarcyzGhinea

Therapeutic goods, medical innovation, enhancing access, fairer health care.

Vrijeme pridruživanja: ožujak 2018.

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  1. Prikvačeni tweet
    7. lis 2019.

    How do we know when a doctor makes a good decision? It isn't always clear. See my recent article "Some sort of fantasy land" with colleagues and co. FYI:

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  2. proslijedio/la je Tweet

    Very excited that the first review of my monograph ‘Justice and Profit in Health Care Law’ is now out in the ! Thank you to the editors and Professor Ménard for the kind words!

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  3. 31. sij

    I can see this being the norm in the not too distant future. If you can't afford a drug, try your luck in the lottery. BBC News - When a lottery 'wins' sick babies life-saving drugs

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  4. proslijedio/la je Tweet
    25. sij

    Can’t wait to discuss the challenges of deliberative processes in with all the great experts in

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  5. proslijedio/la je Tweet
    22. sij

    Blanket public health policies that protect everyone will save more lives than precision medicine.

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  6. proslijedio/la je Tweet

    New online from JBI "Pharmaceutical Ethics and Grassroots Activism in the United States: A Social History Perspective" by , Butler, Shannon & Fugh-Berman

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  7. 20. sij

    Some spot-on advice. Which of these habits is keeping you from being a great communicator? via

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    15. sij

    “Precision oncology has had some major successes.” “And yet, the overall effect of precision medicine on care for patients with cancer has been modest.” ⁦⁩ in ⁦

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  9. proslijedio/la je Tweet
    7. sij

    The biggest gains in the growing global economy are reaped by the extremely wealthy, and those with power cannot elevate others unless they also give up something. On Aeon Video:

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    New JBI online "Why High Drug Pricing Is A Problem for Research Ethics" by Spencer Phillips Hey: ignoring the future drug price during the research process is in tension with principles of research ethics

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  11. proslijedio/la je Tweet
    20. pro 2019.

    New paper out w/⁦⁩ & ⁦⁩ Developing and Implementing new TB Technologies: Key Informants’ Perspectives on the Ethical Challenges | SpringerLink

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  12. 19. pro 2019.

    Is gifting expensive medicines a good thing? Would you still agree if there were limited doses available, and they were allocated by lottery? This brings the issue of access Vs equity to a sharp edge.

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  13. 12. pro 2019.

    BBC News - Emotion-detecting tech should be restricted by law - AI Now

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  14. 7. pro 2019.

    Important initiative for pro-actively investigating emerging uses of medicines. Kudos to the FDA for taking the lead.

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    Testing showed DNA in the bone marrow transplant patient’s blood was replaced by his donor’s. No surprise there. But over time cells all over his body had donor DNA. The DNA in his semen had been ENTIRELY replaced by his donor’s.

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    A U.S. biotech company is offering an unproven anti-aging gene therapy for $1 million in South America. My story:

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  17. proslijedio/la je Tweet
    26. stu 2019.

    FINALLY "Dutch universities and research funders move away from the impact factor" position paper “Room for everyone’s talent” (a collaborative document) is published, the result of a year’s worth of meetings & dozens of site visits with academics.

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  18. proslijedio/la je Tweet
    28. stu 2019.
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  19. proslijedio/la je Tweet

    Our December Editorial discusses the main challenges to achieve universal access to essential medicines: shortages of inexpensive products and affordability of innovative drugs

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  20. proslijedio/la je Tweet
    22. stu 2019.

    Looking forward to welcoming Dr. Bernard Pecoul, Executive Director of to present their efforts to develop a treatment that is globally affordable-by-design

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  21. proslijedio/la je Tweet
    22. stu 2019.

    reviews points from hers and submission the the Medical Board of Australia’s consultation on doctors’ use of unconventional and emerging treatments.

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