NTM Info & Research

@NTMinfo

Non-profit organization dedicated to patient support, medical education & research for people with nontuberculous mycobacterial lung disease ().

Coral Gables, Florida
Vrijeme pridruživanja: lipanj 2009.

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  1. Prikvačeni tweet
    4. pro 2019.

    REGISTER NOW and be sure to join us in the City of Brotherly Love! Philadelphia is home to the nation’s first hospital, the Liberty Bell, and now NTM Info & Research’s 2020 Conference. View more details and register here: See you there!

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  2. prije 16 sati

    If you are currently prescribed to and interested in sharing your story with others to help increase awareness of MAC and treatment. Contact SharingMyTreatmentStory@gcihealth.com.

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  3. proslijedio/la je Tweet
    31. sij

    Did you know? Rare Disease Day is a global awareness raising campaign promoting equity for all people living with a rare disease. Download and edit infographics from . Share them to spread the word about Rare Disease Day on 29 February!

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  4. 31. sij

    (CF) is a genetic disease. While it affects the whole body, it has the worst impact on the lungs and digestive system. Learn more about NTM, Bronchiectasis, and Cystic Fibrosis on our website, .

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  5. 29. sij

    The next Tweed Heads/Gold Coast NTM Support Group meeting for those impacted by () to attend and to share/hear about other NTM patients experiences will be held on Sat, Feb 15th. Request info at ntm.aus@gmail.com.

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  6. proslijedio/la je Tweet
    6. sij

    A prospective study of non-tuberculous mycobacterial disease () among tuberculosis suspects at a tertiary care centre in north India.

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  7. proslijedio/la je Tweet
    15. sij

    Yet only ONE of these meds (liposomal inhaled amikacin) is FDA approved for infection, specifically for pulmonary . Clearly there is a huge need for new drugs and rigorous research to evaluate them

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  8. proslijedio/la je Tweet
    28. sij

    New study on pulmonary mycobacterium avium complex infection demonstrated that the estimated pooled treatment success rate was only 68.1%. New medications with higher efficacy and better adherence rate are urgently needed.

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  9. 28. sij

    With the advent of medical tourism (where a patient travels abroad for less expensive cosmetic procedures), the number of infection cases has sharply increased. Be fully aware beforehand of all the risks.

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  10. 27. sij

    Nontuberculous mycobacterial (NTM) lung disease will be a featured topic of discussion on Sirius XM's Doctor Radio (Channel 110) tomorrow, 6:00 a.m. Eastern and then again 5pm,featuring guest expert Dr. Ashwin Basavaraj of NYU Langone Medical Center.

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  11. 23. sij

    We’re glad to announce Kenneth Meyer, MD is now part of our physician referral list 🙌! Dr.Meyer is is a board-certified specialist in , FL. See a full list of our physician referrals ->

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  12. 22. sij

    Statement from Jeff Shuren, M.D., J.D., director of FDA’s Center for Devices and Radiological Health, on quality issues with certain Cardinal Health surgical gowns and packs.

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  13. 22. sij

    We definitely can’t all climb a mountain - but we should sure feel like we’re at the top of one! Today is a day for gratitude, to appreciate what we have while we have it, and to give thanks to everyone in our lives!

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  14. proslijedio/la je Tweet
    18. sij

    Our new study online at Resp Research testing a daily symptom diary over 6 months in bronchiectasis pts key messages - Patients symptoms changed dramatically from day to day even in the absence of exacerbation - Many patients experience exacerbations without reporting them

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  16. proslijedio/la je Tweet
    17. sij

    Living with can feel isolating. and the have a resource to help. Their BronchandNTM360social site can help you connect to others with similar experiences. Check it out here:

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  17. 22. sij
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    20. sij

    NEW ENTRANCE: The entrance to our main campus has MOVED from Colfax to a temporary, new entrance off 14th Avenue near our loading dock. See the map for more details.

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  19. 22. sij
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  20. 17. sij

    An independent group from NTMir has kicked off their latest round of patient tracking research survey. For those interested and eligible send an email to Quiana Cooper-Jarrett from Lieberman Research at NTMstudy@liebermanresearch.com.

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  21. 16. sij

    Get ready Miami because we have a date for our first NTM Support Group meeting of the year! It will be this Sunday, Jan 19 from 2:00PM-4:00PM 8345 SW 119th Street, Miami. Please email Susan Fink at finksu3@gmail.com to reserve your spot. Hope to see new faces there!

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