Except it was Myalgic Encephalomyelitis decades before it was considered a syndrome. Only the poor, overly broad criteria rely on subjective self-reports; objective testing is available and informs criteria favored by those expert in this illness.
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Let her live my life for one day I lose my ability to talk, read ,write and understand people and I lose time sucks big time and I would never compare my problems with multiple sclerosis that’s just wrong
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That happens from day 1 with people on the severe end of mecfs. She's trying to get across the seriousness of the disease that people have no idea about
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More debilitating than MS? Lol. There is ZERO empirical evidence backing this ridiculous claim. If you are having difficulty getting people to take this disease seriously, please stop making claims about Multiple Sclerosis that are untrue.
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For those doubting the seriousness of the disease and the claims about MS, it was based on the following studyhttp://www.meassociation.org.uk/2017/07/review-people-with-mecfs-are-more-functionally-impaired-than-people-with-multiple-sclerosis-19-july-2017/ …
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My biggest issue is that they feel the need at all to compare the two as one is better to have than the other. This is why I’m angry. Both are ridiculously awful for the sufferers of them, and to have this apples/oranges type of study then headline is horrifying and unfair.
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Like Down syndrome? Lol
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That is not remotely true in the case of published research. There is still disagreement on how broad or narrow the criteria should be, but your inclusion in a research study is not based on self-reporting.
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just a note, fatique is huge part of MS, muscle dystrophies, SMA, and lots of other dxs. Most cures looks only for fixing us, but not much effort is took to adress fatique within. So i am not surprised, that in condition that is mostly about fatique, there is no funding.
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