Lots of evidence there’s something wrong in the brains/brainstems of #pwME (ME/CFS). Why don’t you care enough about our brains, our health, our ability to work, our lives to give us fair, set aside funding? Please don’t leave us another lump of coal! @NIHDirector @NINDSdirector
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I don't feel merry or bright again this Christmas, as it's my 23rd Christmas suffering terribly from ME/CFS and my 6th Christmas housebound & recliner/bedbound. We live 1200+ miles away from our kids & grandkids, and I can't travel to see them at all. Please give ME/CFS MORE $$!
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The holidays have always been the worst. The focus is on things that we can't partake in and are reminded of how we used to. We are in a strange purgatory, indeed.
Kraj razgovora
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You have not made the holiday season "merry and bright" this year for
#MECFS patients Director Pinocchio@NIHDirector. A Merry and Bright Christmas present for us would be you announcing a huge amount of set aside funding for#MECFS.@washingtonpostpic.twitter.com/o0xn4VdwRZ
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It is the Myalgic Encephalomyelitis that inflames my spine, weakens my muscles, clouds my brain, and has me house and bed bound for 20 years.
Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi
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Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi
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Tweet je nedostupan.
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Sounds like you’re in Christmas spirit! Dr. Collins.

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Speaking of the brain, common cognitive deficiencies ME/CFS patients face are problems w/memory, attentional processes, response times, information processing speed, & problem solving. We need you to do more. Fund trials. Address the stigma. We will be heard!
#NotEnough4MEpic.twitter.com/j94VxHCruD
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