NAF

@NAF_Ataxia

The National Ataxia Foundation (NAF)is dedicated to improving the lives of persons affected by ataxia.

Minneapolis, MN
Vrijeme pridruživanja: travanj 2009.

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  1. 31. sij

    Don’t miss out on your NAF apparel. You only have until February 3, 2020 to order! New styles and products to choose from. Men's, women's and youth apparel options available. 10% of proceeds donated to NAF. Shop now:

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  2. 30. sij

    Minoryx Therapeutics is a sponsor of the 2020 Annual Ataxia Conference. They are a late clinical stage biotech company focused on the development of new therapies for X-ALD, Friedreich's Ataxia, and other orphan CNS diseases.

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  3. 14. sij

    Courtney has been a professional dancer for over 15 years. She teaches paradance at of Colorado. Join us for her Wheelchair Dancing Sessions at the 2020 Annual Ataxia Conference!

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  4. 17. pro 2019.

    Dana Mauro of the Did You Know Podcast will host a First-Time AAC Attendee/Ataxia 101 Session at 2020 AAC along with Dr. Susan Perlman. Learn more about her experience as a first-timer in her blog - then register to join us:

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  5. 12. pro 2019.

    Do you ever wish you could spend a little time with an Ataxia researcher to ask about what's new? You will get the chance at 2020 AAC! During the "Networking with AIM Researchers" session, an expert will join each table to chat and give you the scoop.

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  6. 25. stu 2019.

    What is a clinical trial? Should you sign up to participate when there is one available for your type of Ataxia? What happens during a clinical trial? Learn everything that you need to know at our exclusive FREE webinar on December 9th, 2019. Register now.

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  7. 22. stu 2019.

    We're happy to welcome our new ambassador in Pennsylvania, Jason Armstrong! Find his contact information or other ambassadors in your area at

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  8. 21. stu 2019.

    Support NAF for on December 3rd! We're looking for volunteers to start a Facebook fundraiser (it's free and easy). Donations made on Facebook can be TRIPLED that day - learn how! Can we count on you?

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  9. 20. stu 2019.

    Are you interested in representing your state in the 2020 Joint Mission Bataan to Cure Ataxia?

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  10. 20. stu 2019.

    The Motor Behavior Laboratory at is looking for participants in a research study. Learn more:

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  11. 19. stu 2019.

    The Health Policy Research Center at is looking for people that have trouble walking who have had one of these cancers: colon/rectal, prostate, ovarian, or non-Hodgkin lymphoma, to participate in a research study.

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  12. 18. stu 2019.

    Want to learn about genetics? This free course covers genetic concepts for rare disease, family and hereditary, genetic testing, and scientific advances.

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  13. 13. stu 2019.

    Dr. Schmahmann’s Lab at MGH has developed a PROM-Ataxia and needs 140 patients with cerebellar ataxia to complete this questionnaire at home. If interested, email mary_Peterson@ataxia.org. She will mail you the PROM-Ataxia. Provide your postal address in your email to Mary Ann.

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  14. 11. stu 2019.

    We're happy to welcome Dr. Jeremy Schmahmann of as the keynote speaker for 2020 Annual Ataxia Conference. Join us in Denver to hear his keynote address, "Your Voice in Drug and Therapy Development." Register now:

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  15. 8. stu 2019.

    Check out this free course to learn about the drug development process for rare diseases:

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  16. 5. stu 2019.

    Early registration discount is available for 2020 Annual Ataxia Conference! Register now for $150. Join us for fun and learning! Register: Learn More:

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  17. 31. lis 2019.

    Here's some Halloween-themed Ataxia awareness for you! NAF Ambassador Shenlei Winkler and Sheila Dunn handed out candy at the Trick-or-Treat Trail event in Lansing, MI. Thanks ladies! Happy Halloween everyone! 🎃

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  18. 30. lis 2019.

    The Clinical Trial Readiness for SCA1 and SCA3 (READISCA) is looking for participants to help with their study. It does not involve medication or therapy, but it will collect data that will help future clinical trials. Help us spread the word.

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  19. 30. lis 2019.

    It is important to foster the spirit of collaboration in the Ataxia field. NAF coordinates several meetings that bring research and pharma colleagues together. Learn why collaboration is so important, directly from researchers.

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  20. 28. lis 2019.

    It is important to foster the spirit of collaboration in the Ataxia field. NAF coordinates several meetings that bring research and pharma colleagues together. Learn why collaboration is so important, directly from researchers.

    Poništi

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