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Don’t miss out on your NAF apparel. You only have until February 3, 2020 to order! New styles and products to choose from. Men's, women's and youth apparel options available. 10% of proceeds donated to NAF. Shop now: http://bit.ly/39ArYva pic.twitter.com/4zS54bKpW8
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Minoryx Therapeutics is a sponsor of the 2020 Annual Ataxia Conference. They are a late clinical stage biotech company focused on the development of new therapies for X-ALD, Friedreich's Ataxia, and other orphan CNS diseases.http://www.minoryx.com
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Courtney has been a professional dancer for over 15 years. She teaches paradance at
@FredAstaireCorp of Colorado. Join us for her Wheelchair Dancing Sessions at the 2020 Annual Ataxia Conference! http://ataxia.org/2020-annual-ataxia-conference/ …pic.twitter.com/VAgU2uZ7tV
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Dana Mauro of the Did You Know Podcast will host a First-Time AAC Attendee/Ataxia 101 Session at 2020 AAC along with Dr. Susan Perlman. Learn more about her experience as a first-timer in her blog - then register to join us:https://ataxia.org/navigating-the-annual-ataxia-conference-and-finding-friends-along-the-way/ …
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Do you ever wish you could spend a little time with an Ataxia researcher to ask about what's new? You will get the chance at 2020 AAC! During the "Networking with AIM Researchers" session, an expert will join each table to chat and give you the scoop. https://ataxia.org/2020-annual-ataxia-conference/ …pic.twitter.com/yG8NN0fWst
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What is a clinical trial? Should you sign up to participate when there is one available for your type of Ataxia? What happens during a clinical trial? Learn everything that you need to know at our exclusive FREE webinar on December 9th, 2019. Register now.https://ataxia.org/clinical-trials-in-ataxia-hope-opportunity-and-caveats/ …
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We're happy to welcome our new ambassador in Pennsylvania, Jason Armstrong! Find his contact information or other ambassadors in your area at https://ataxia.org/support-groups/ pic.twitter.com/GqGaleHaIr
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Support NAF for
#GivingTuesday on December 3rd! We're looking for volunteers to start a Facebook fundraiser (it's free and easy). Donations made on Facebook can be TRIPLED that day - learn how! Can we count on you?https://ataxia.org/support-naf-for-givingtuesday/ …Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Are you interested in representing your state in the 2020 Joint Mission Bataan to Cure Ataxia?http://ataxia.org/only-26-jmb-spots-remain-want-one/ …
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The Motor Behavior Laboratory at
@RutgersU is looking for participants in a research study. Learn more: http://bit.ly/2rSF5GH pic.twitter.com/PbnX00Plgu
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The Health Policy Research Center at
@MGHHMU is looking for people that have trouble walking who have had one of these cancers: colon/rectal, prostate, ovarian, or non-Hodgkin lymphoma, to participate in a research study. http://bit.ly/2D2jyxu pic.twitter.com/D8iPaPAqPK
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Want to learn about genetics? This free course covers genetic concepts for rare disease, family and hereditary, genetic testing, and scientific advances. http://rareuniversity.com/p/genetic-concepts-for-rare-disease-patients-and-families … https://rareuniversity.com/p/genetic-concepts-for-rare-disease-patients-and-families …
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Dr. Schmahmann’s Lab at MGH has developed a PROM-Ataxia and needs 140 patients with cerebellar ataxia to complete this questionnaire at home. If interested, email mary_Peterson@ataxia.org. She will mail you the PROM-Ataxia. Provide your postal address in your email to Mary Ann.pic.twitter.com/I6KkkjKLEJ
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We're happy to welcome Dr. Jeremy Schmahmann of
@SchmahmannLab as the keynote speaker for 2020 Annual Ataxia Conference. Join us in Denver to hear his keynote address, "Your Voice in Drug and Therapy Development." Register now: http://bit.ly/2MT3eUt pic.twitter.com/PuM9chNrKM
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Check out this free course to learn about the drug development process for rare diseases: http://ow.ly/ayOI50wRsUi
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Early registration discount is available for 2020 Annual Ataxia Conference! Register now for $150. Join us for fun and learning! Register: http://bit.ly/2MT3eUt Learn More:https://ataxia.org/2020-annual-ataxia-conference/ …
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Here's some Halloween-themed Ataxia awareness for you! NAF Ambassador Shenlei Winkler and Sheila Dunn handed out candy at the Trick-or-Treat Trail event in Lansing, MI. Thanks ladies! Happy Halloween everyone!
pic.twitter.com/3pL10qQFV2
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The Clinical Trial Readiness for SCA1 and SCA3 (READISCA) is looking for participants to help with their study. It does not involve medication or therapy, but it will collect data that will help future clinical trials. Help us spread the word. http://bit.ly/31VCXdQ pic.twitter.com/JdOzJel7PX
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It is important to foster the spirit of collaboration in the Ataxia field. NAF coordinates several meetings that bring research and pharma colleagues together. Learn why collaboration is so important, directly from researchers.https://www.youtube.com/watch?v=5KFwG0bdZ_g&feature=youtu.be …
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It is important to foster the spirit of collaboration in the Ataxia field. NAF coordinates several meetings that bring research and pharma colleagues together. Learn why collaboration is so important, directly from researchers.http://ow.ly/vLnV50wRt0l
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