Just to be clear: I in no way think that doing what is described would actually scrub your data from any databases.
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Look on the bright side, it was not an insurance company.
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Yet...
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I really don’t care. DNA was worthwhile for me to take as an adopted individual. I matched with my birth mother and blood relatives and that made me feel wholesome. Many do not understand the feeling as an adopted person who had to tell the doctors ours had zero family history.
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I felt humiliated whenever I tell doctor I don’t have a family history to fill in on medical forms and say I am adopted. Then ends hearing,”Oh, I’m sorry.” That was heard thousands of times all my life.
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I always found it super weird when people responded sympathetically when learning I was adopted - as though it's automatically a bad thing! Obviously not having family history has always been an issue, but people act like being an adopted person is itself somehow a negative thing
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I’m grateful to be adopted, but attached with no medical history. I was told by adoption agency that it is up to the biological parent to give medical history or not. My birth mother recalled she was never asked about option of give medical history. Strange.
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Feels a bit like a double edged sword. Big Pharma isn’t trustworthy, but for them to make better targeted drugs, having access to a large repo of DNA could be a positive result for people with serious illnesses.
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That's what opt-in and volunteers are for. It's immoral, and unethical, to obtain this data under the guise of something else, not to mention the questionable legality of this act.
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Do you feel 23andme would be able to keep the price point so low if the data sharing was opt-in? I wouldn't be against it, just curious if they'd have two versions like Amazon does with the Kindle products w/ and w/o advertising.
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Or placed into a do not hire database for sale if you show markers for certain diseases. And your children and their children...
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Painful as it is for me to say I don't think that data is deleted. Ever. Best bet was to never have done it in the first place but even then, in the future sniffers on street posts will suck up the air, sequence all samples, X-ref it to cell tower data . . Sad.
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A new dystopian evil vision to dwell upon.
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I'd rather that not happen but I'm not holding my breath.
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How do you delete your brother's data? Asking for a friend.
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