Metabolic Support UK

@MetabolicSuppUK

Metabolic Support UK (formally known as Climb) is the leading patient organisation for Inherited Metabolic Disorders.

Chester, England
metabolicsupportuk.org
Vrijeme pridruživanja: travanj 2018.
237 fotografija ili videozapisa Fotografije i videozapisi

Tweetovi

Blokirali ste korisnika/cu @MetabolicSuppUK

Jeste li sigurni da želite vidjeti te tweetove? Time nećete deblokirati korisnika/cu @MetabolicSuppUK

  1. prije 4 sata

    If you want to keep up-to-date with the latest developments on Gyrate Atrophy, you can also sign up to our newsletter by emailing Jess on jess@metabolicsupportuk.org or Helen on helen@metabolicsupportuk.org

    Prikaži ovu nit
    Prikaži ovu nit
    Poništi
  2. prije 4 sata

    We have also created a patient community for Gyrate Atrophy patients and families where you can meet other people with your condition, who know exactly how you feel. To join this patient community, see here:

    1 reply
    Prikaži ovu nit
    Prikaži ovu nit
    Poništi
  3. prije 4 sata

    Calling all Gyrate Atrophy patients and families! We're want to hear how your condition affects you to allow us to best represent you in decisions affecting your care. Please can you complete the following questionnaire:

    1 reply
    Prikaži ovu nit
    Prikaži ovu nit
    Poništi
  4. proslijedio/la je Tweet
    4. velj

    Students with : Don't miss your chance to apply for funds to advance your undergraduate studies. Applications for the Guthrie-Koch PKU Scholarship are due Feb 15. Details athttps://pheed.me/2rKQzJc

    5 proslijeđenih tweetova 7 korisnika označava da im se sviđa
    Poništi
  5. 4. velj

    Looking for a fundraising opportunity? The ballot for the has just opened! So, why not apply and fundraise to help us support patients and families with Inherited Metabolic Disorders? We can also support you with fundraising!

    Poništi
  6. proslijedio/la je Tweet
    31. sij

    Did you know that is National Soup Month? Perfect in this chillier weather. We highly recommend our low protein Italian Soup which is now live on our website:

    4 proslijeđena tweeta 7 korisnika označava da im se sviđa
    Poništi
  7. 3. velj

    Today's fact is about Urea Cycle Disorders. Please share this post to help us raise awareness of Inherited Metabolic Disorders.

    5 proslijeđenih tweetova 7 korisnika označava da im se sviđa
    Poništi
  8. 31. sij

    Last week, our Young Persons Project Officer, Sally, went to London for the launch of the campaign, which is raising awareness that 1 in 17 of us will be affected by a in our lifetime. Discover how Sally got involved here:

    4 proslijeđena tweeta 3 korisnika označavaju da im se sviđa
    Poništi
  9. 30. sij

    Living with a which no one has heard of can be very challenging. We can connect you with another patient or family with a similar IMD to allow you to share your experiences with someone who knows exactly how you feel. Sign up here:

    2 proslijeđena tweeta 1 korisnik označava da mu se sviđa
    Poništi
  10. 29. sij

    Days after Emma was born, she was rushed to a Newborn Intensive Care Unit. Later that week, Emma's parents would discover that Emma had MCADD. Read Emma's story on our website and hear about their journey with MCADD.

    2 proslijeđena tweeta 2 korisnika označavaju da im se sviđa
    Poništi
  11. proslijedio/la je Tweet
    28. sij

    For anyone w Especially considering return to diet Yes, it IS hard Starting is first step 👍👍👍

    11 proslijeđenih tweetova 16 korisnika označava da im se sviđa
    Poništi
  12. 28. sij

    Do you have a experience that you would like to share? Please visit to find out more, and you can also meet Sally, our Young Person's Project Officer, on the link and hear how she got involved in this project!

    1 proslijeđeni tweet 2 korisnika označavaju da im se sviđa
    Poništi
  13. 27. sij

    This week's fact is about Essential pentosuria. Please share this tweet to help us raise awareness of Inherited Metabolic Disorders.

    Poništi
  14. 24. sij

    Calling everyone from North Wales and the North West! Wrexham Football Club have invited us to fundraise via a bucket collection on Saturday 15th February and we need your help! If you can help us fundraise, email Maggie on margaret@metabolicsupportuk.org

    4 proslijeđena tweeta 2 korisnika označavaju da im se sviđa
    Poništi
  15. 24. sij

    Last chance! We have one place for the left! Take part in this iconic race and raise money to help us support patients and families with Inherited Metabolic Disorders. The deadline is on 31.01.2020!

    Poništi
  16. 23. sij

    "I can clearly remember the day that I received the call telling me that Harry had a rare condition and that I needed to return to the hospital immediately." Read Lorraine's story of her son's diagnosis of Tyrosineamia Type 1.

    1 reply 4 proslijeđena tweeta 5 korisnika označava da im se sviđa
    Poništi
  17. proslijedio/la je Tweet
    22. sij

    Registration is open for our FREE Genetics Matters event next month (). Rare diseases, genetics, fertility, cancer, immunity, tissue engineering, we have it covered. Join us for a fun afternoon with science and learn about genetic research

    6 proslijeđenih tweetova 8 korisnika označava da im se sviđa
    Poništi
  18. proslijedio/la je Tweet
    23. sij

    Did you know, 1 in 17 people in the UK will be affected by a rare disease at some point in their lives? Please repost this to raise awareness of rare diseases and the campaign.

    11 proslijeđenih tweetova 16 korisnika označava da im se sviđa
    Poništi
  19. 23. sij

    Meet other people with your condition on , who know exactly how you feel.

    After joining a RareConnect community, feel free to introduce yourself or ask any question you may have about living with a . With the help of the community moderators and the rest of the members, you will get all the possible support and help.
    1 proslijeđeni tweet 2 korisnika označavaju da im se sviđa
    Poništi
  20. proslijedio/la je Tweet
    23. sij

    Everyone is invited to the UK’s first ever Rare Film Festival on 10 Feb 2020 - an unforgettable night with award-winning films raising awareness of rare diseases. To meet us and the community, buy your tickets here -

    8 proslijeđenih tweetova 20 korisnika označava da im se sviđa
    Poništi

@MetabolicSuppUK još nije objavio nijedan Tweet.

Čini se da učitavanje traje već neko vrijeme.

Twitter je možda preopterećen ili ima kratkotrajnih poteškoća u radu. Pokušajte ponovno ili potražite dodatne informacije u odjeljku Status Twittera.

    Možda bi vam se svidjelo i ovo:

    ·