MPS Society

@MPSSocietyUK

Support, Research and Awareness. The MPS Society UK is the only registered charity providing professional support to those affected by MPS and related diseases.

Amersham, Buckinghamshire, UK
mpssociety.org.uk
Joined May 2012
130 Photos and videos Photos and videos

Tweets

@MPSSocietyUK is blocked

Are you sure you want to view these Tweets? Viewing Tweets won't unblock @MPSSocietyUK.

  1. 5 hours ago

    Good luck to our supporters who are running the this Sunday! Have a fantastic day & be proud you are running for

  2. 7 hours ago

    Mum pens heartfelt letter over Morquio drug delay

    1 retweet
  3. retweeted
    7 hours ago

    Fingers crossed for all morquio patients

    Victory for incurable Sam after U-turn by health bosses
    1 retweet
  4. retweeted
    Sep 4

    drug Vimizim gets NICE yes – but needs real-world data - Articles - pharmaphorum

    2 retweets
  5. retweeted
    Sep 9

    this is Enola with please think of those in Scotland with

    12:52 PM - 9 Sep 2015 · Details
    1 retweet 1 favorite
  6. retweeted
    Sep 8

    be in no doubt the fight is in for . Morquio sufferers may be small in number but we are loud in voice!!

    1 retweet 2 favorites
  7. 7 hours ago

    Victory for incurable Sam after U-turn by health bosses

    View summary Hide summary 1 retweet
  8. retweeted
    Sep 2

    Finally - some hope for Morquio patients

    8 retweets 3 favorites
  9. retweeted
    Sep 3

    . leaning towards approving 's drug but this isn't job done, so campaign continues!

    View summary Hide summary 10 retweets 6 favorites
  10. retweeted
    Sep 3

    Drug funding breakthrough hope for Otley boy Sam: THE PARENTS of Otley boy Sam Brown have hailed the "really p...

    View summary Hide summary 6 retweets 3 favorites
  11. retweeted
    Sep 7

    Disappointed that Scotland have said no to Vimizim for Morquio. I call on to overturn this decision.

    , , and 3 others
    3:39 PM - 7 Sep 2015 · Details
    6 retweets 5 favorites
  12. MPS Society followed and
    • genetic insidER 2016
      @geneticinsidER

      International Conference on Advanced Technologies & Treatments for Genetics Deseases

    • Karen Greenshields
      @STVKaren

      Reporter Europhile Usual disclaimers apply

  13. retweeted
    24 hours ago

    View summary Hide summary 3 retweets
  14. Sep 10

    Take a look at Birmingham Children's Hospital event. Share your views as a patient & family

    8:14 AM - 10 Sep 2015 · Details
    2 retweets 1 favorite
  15. retweeted
    Sep 10

    Four weeks on Saturday til' I run 50 miles through the Lake District for - any donations appreciated!

    View summary Hide summary 3 retweets 1 favorite
  16. Sep 10

    Online survey for patients/carers to better understand lysosomal acid lipase deficiency (LAL D):

    1 retweet
  17. retweeted
    Sep 9

    Today My Way Access reached a milestone of 1,000 Likes on Facebook. I want to say thank you.

    , , and 6 others
    3:55 AM - 9 Sep 2015 · Details
    7 retweets 10 favorites
  18. retweeted
    Sep 9

    MD taking part in the Great North Run on Sunday for .You can donate via .

    View summary Hide summary 1 retweet 1 favorite
  19. retweeted
    Sep 7

    thrilled to learn conditional recommendation of approval for Vimizim. have been instrumental in this!

    4 retweets 1 favorite
  20. retweeted
    Sep 6 Liverpool, England

    Twitter: please share our link for Jake Twitter:

    1 retweet

@MPSSocietyUK hasn't tweeted yet.

Loading seems to be taking a while.

Twitter may be over capacity or experiencing a momentary hiccup. Try again or visit Twitter Status for more information.

    You may also like

    ·