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MNDRIA proslijedio/la je Tweet
Great to meet with
@billshortenmp today to discuss ways to improve the#NDIS for people with#MND. As MND is a complex and rapidly progressing disability, these changes
would improve the lives of ppl living with MND.
#NeverGiveUp#EndAgeDiscriminationpic.twitter.com/vumRFbKcMU
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MNDRIA proslijedio/la je Tweet
Tomorrow our CEO
@CEBirks is heading to Parliament House to meet with@billshortenmp, Shadow Minister for the#NDIS. We're calling for 3 key improvements to the NDIS, chiefly access to the NDIS for ppl with#MND aged 65+. Let's end this age-discrimination!pic.twitter.com/HI0c1B7Seh
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Want to hear about what our Asia-Pacific neighbours are up to in the MND space - PACTALS registration and abstract submission is now open - abstracts close 31st March 2020. Conference is in Nagoya, Japan - 25-26 September 2020 Should be a great meeting!http://ow.ly/gCeU50ycCD9
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2-day workshop - Enhancing Communication for people with MND John Costello, SLP and Director of ALS Augmentative Communication Program at Boston Children’s Hospital, will be holding a two-day interactive workshop at UTS in Sydney on 5-6 March 2020.http://ow.ly/xCqV50ycCvj
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Tuesday motivation for those of us in the Southern Hemisphere!https://twitter.com/ALSMNDAlliance/status/1224439286453301252 …
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NOVEL IMAGING AND BRAIN STIMULATION METHODS AND TECHNOLOGIES RELATED TO NEURODEGENERATIVE DISEASES - EU Joint Programme – Neurodegenerative Disease Research (JPND) initiative. NHMRC will only support Dementia focused projects - so potential for FTD? http://ow.ly/y3iX50y7DTA
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A useful resource for engaging consumers and the community in their research - which we should all be doing! NHMRC Toolkit is focussed on: Expectations and Value Measuring Alignment Measuring Effectiveness Considering Impact Self-assessment http://ow.ly/Qcja50y7vyi
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MNDRIA proslijedio/la je Tweet
Our commitment to you this year... By May 2020 we will launch a comprehensive navigation program servicing patients and their families through every step of the
#ALS journey.pic.twitter.com/GPzOcYvvQd
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Great to see the Healey Centre Platform Trial moving alonghttps://twitter.com/MassGeneralNews/status/1220013751908233216 …
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Great to see Justin receiving recognition at the highest level for his inspirational leadershiphttps://twitter.com/UOW/status/1221226242692829192 …
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Another platform trial about to commence - this time in Scotlandhttps://twitter.com/MNDScotland/status/1217502059911680001 …
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MNDRIA proslijedio/la je Tweet
Another huge study of over 650,000 kids shows absolutely no link between vaccines and autism. Doctors say it's proof we're living in a 'fact-resistant' world. https://www.businessinsider.com/study-shows-no-link-between-vaccines-and-autism-2019-3?utmSource=twitter&utmContent=referral&utmTerm=topbar&referrer=twitter … via
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Closing soon...get writing Applications for the
@MND_RIA PhD scholarship top-up grants are now open! $5,000 per annum for up to 3 years for#MND PhD scholarship recipients
Apply: http://bit.ly/3443wOV
Closing 31 January 2020.pic.twitter.com/dH3mEWXGhd
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MNDRIA proslijedio/la je Tweet
Planning on doing
@GCMarathon or@StadiumStomp? Registrations are open and you can choose@MNDQueensland as your charity to raise funds for. Thanks for your support!pic.twitter.com/C431K9Ru9i
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MNDRIA proslijedio/la je Tweet
Stay up-to-date with the latest developments in MND research in Australia
and internationally
Read the latest online editions of Advance and the International Research Update
https://bit.ly/2t3flbF pic.twitter.com/0IueYv1udL
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MNDRIA proslijedio/la je Tweet
A new study from NeuRA researchers has found that editorial advice alone is insufficient to improve the quality of statistical reporting and data presentation in scientific papers.
@PLOS@SimonGandevia https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0202121#sec009 …pic.twitter.com/P5DYuaS4wr
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MNDRIA proslijedio/la je Tweet
Along with
@MNDAWA we were proud to host the 30th International Symposium on#ALS#MND, organised by@mndassoc Here's our wrap-up of the major outcomes and highlights from the Symposium
https://bit.ly/2T4zGYM
#alsmndsymp#ALSMNDWithoutBorderspic.twitter.com/WYcYTLYVUM
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MNDRIA proslijedio/la je Tweet
Coverage of
#MND/#ALS research from the 30th International#alsmndsymp in Perth is being constantly updated on our Periodic Table as well as our research blog posts. Have you checked out some of the newly updated tiles?
http://symposium.mndassociation.org/symposium-live pic.twitter.com/lhyeCuXgp8
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An excellent article on strategies to debunk pseudoscience and quackery; 1) use the power of good science stories 2) encourage critical thinking and a culture of fact-checking. 3) And most importantly, we need good science and public trust in that science.http://ow.ly/gISu50xPM5K
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Our thoughts are with the Laidlaw family.