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MEmilitant
@MEMilitant1
Saddened by former #PACEtrial defenders evading debate. Apologies are owed. PS: My handle shouldn't validate the prejudices it was poking fun at.

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French government inquiry confirms (as reported earlier by investigative media) that the initial IHU-Marseille hydroxychloroquine study was faked, with different criteria for +ve/-ve PCR tests being applied to the two groups. This is straight-up scientific fraud.
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Ah bah voilà : confirmation des révélations de @Mediapart : l'étude de Didier RAOULT sur l'hydroxychloroquine contre la covid, qui a déclenché le délire mondial, aurait bel et bien été FALSIFIEE... Mais en outre il aurait pré-sélectionné les patients du groupe-témoin...🔽
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Lord Pannick is an “eminent QC” in today’s Daily Mail whose advice might get Boris Johnson off the hook. Back in March he featured in this Mail piece about lawyers who acted for Russian oligarchs
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The were at war with the LGBT+ community for decades. Police raided our bars, clubs, saunas & even private birthday parties. Same-sex couples were arrested for kissing. It's institutional police homophobia! Via
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"An apology is really long overdue." Human rights campaigner Peter Tatchell discusses the Metropolitan Police Force's historically contentious relationship with the LGBTQ community. #politicslondon | bbc.in/3aCw4sl
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Personal testimonials and online recovery anecdotes are taking the place of marketing for promoting some decidedly questionable and expensive treatments for post-viral symptoms. The BMJ is sometimes concerned by this.
We've seen so many therapies being pushed on post-viral conditions without good evidence. Things are repeating with long covid. Expect we're going to start seeing poor quality research that makes things worse soon. Not sure anything has been learnt from the failures of the past.
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I have concerns about the treatment of long covid with apheresis and triple anticoagulant therapy. This is not like using hydroxychloroquine without proper published data. Triple anticoagulant therapy is associated with a significant risk of bleeding inc life-threatening bleeding
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If Boris really wants his party at Chequers, maybe that's a good reason for him to be Prime Minister for a couple more months?
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Tory MPs need to calm down. Boris has resigned. If he wants some stupid bash in Chequers let him have it. The key thing is not to choose the next PM quickly, it’s to choose the right PM. They ‘re only going to get one chance. They can’t blow it in a rush like they did with May.
Work from , and . Thread on the paper and main conclusions here. Difficult for an outsider to accurately assess any field, but would just observe that The Lancet seems to have a bit of a strange smell about it right now.
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Time to start checking my drinks for novichock? In this research paper @GidMK, @gtuckerkellogg and I conclude that the published results from the phase III trial of the Sputnik Vaccine are not likely to be genuine. Why? 1/8 journals.lww.com/americantherap
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This joke probably occurs to most patients given a CFS diagnosis.... 's delivery always makes things funnier though. From his posthumous netflix special.
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TBH - believe it when I see it re plans for a radical new approach & a huge step forward for ME/CFS. Always open to the possibility of real change, but having seen how things work in UK medicine, and the history of BS, there's some cynicism here.
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I'm sorry for your loss . For too long ME has not been taken seriously enough my the medical community - I'm determined that that ends now.
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ME and my girl: myalgic encephalomyelitis took the life of my daughter Maeve. @sajidjavid's radical new approach is a huge step forward but the bitterest of bittersweet moments thetimes.co.uk/article/my-dau
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In 2016, Alem Matthees, now living with very severe #MECFS, won a long and difficult legal battle for the release of the PACE Trial data. Let's spread this message and let Alem know that he is remembered and that we continue to be very grateful for all he accomplished. ❤️
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This is important. It seems to show that back channel lobbying that is doing so much damage to U.K. politics is also impacting NICE and so indirectly patients, in this case with ME.
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Replying to @PaulGarnerWoof
“Text-message lobbying of senior NICE staff by individuals at NHS England and the Royal College of Psychiatrists in days before ME/CFS guideline pause” Is this the corruption you are going on about? domsalisbury.github.io/mecfs/nice-mec
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The way that the benefit systems means that those with health problems are expected to pursue medical interventions (regardless of their value) to show that they're 'deserving sick', further strengthens the power medical professionals have over their lives.
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Oddly the fact that I don’t have medical intervention (other than the stated braces/supports/physio/counselling/painkillers/prescription meds) means they feel I’m not in need of support. There just isn’t further medical remedy for my chronic diagnoses - so we’re let down twice 🤷🏼‍♀️
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