MuscularDystrophyUKOvjeren akaunt

@MDUK_News

Muscular Dystrophy UK is the charity bringing individuals, families and professionals together to beat muscle-wasting conditions.

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Vrijeme pridruživanja: studeni 2008.

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  1. Prikvačeni tweet

    We're entering a new era in the development of effective therapies for people with muscle-wasting conditions. There's so much promising research underway that could lead to new treatments in the next few years. Help us so we can make vital breakthroughs >>

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  2. Did you know that star became the first English spinner to take 10 wickets in a match since Phil Tufnell! Purchase your table today to see this legendary spin bowler in person on Wednesday 20 May at our >>

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  3. Share your story with us and help people understand why >>

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  4. Joining an MDUK Muscle Group is a great way to connect with others living with muscle-wasting conditions, as well as share information and advice. Hear from Laurie what her local Muscle Group has meant to her and find a group near you:

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  5. proslijedio/la je Tweet
    prije 22 sata

    , Ph.D. student presenting her SMA research project at the SMA Europe meeting in Evry. Emma's studies are funded by .

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  6. Fantastic to see MDUK supporter talking on - Oxford about what it's like to live with a muscle-wasting condition and chatting with about their upcoming comedy fundraiser 'Jon Richardson and Friends'.

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  7. proslijedio/la je Tweet
    3. velj

    Do you/your child have SMA Type 3? Are you/they currently not eligible for treatment via the NHS? Complete our survey(s) by 16th Feb to let us & the other patient groups ( & ) know what impact this has had on you/your family

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  8. proslijedio/la je Tweet
    4. velj

    You’re invited to attend a free webinar on Friday 28th February at 14:00 GMT about CMT&Me, the study of the impact of on daily life. Register here: to attend & participate in the Q&A.

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  9. The Hall family has provided decades of support to the Yates family since Alfie, now 14, was diagnosed with . In March, they will set off to Tanzania to climb Kilimanjaro to raise funds for Alfie and MDUK. Read their story here >>

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  10. At MDUK, we have a UK-wide network of Advocacy officers who are here for you. Whether you need someone to talk to about your condition or get practical support, you’ll never feel alone. Find out more and get in touch >>

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  11. We are investing in pioneering research to further understanding and develop treatments for people with muscle-wasting conditions. Find out more about our current research projects here >>

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  12. The correct answer is of course football legend ! Why not test more of your knowledge with Pat at MDUK’s at on Wednesday 20 May 2020 >>

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  13. Are you looking for helpful information about muscle-wasting conditions? We have factsheets with detailed information which are available in digital and printed format. Get them here >>

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  14. A Scottish football star is attending our at . They started their career at Clyde in ‘81 and moved to Stamford Bridge in ‘83, quickly becoming a fan favourite. Can you guess who this sporting great is?

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  15. Newly published MDUK-funded research by has increased our understanding of how the discontinued drug, works. This could help inform future research. Read more >>

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  16. Funnyman and scorer will be hosting our , alongside as quizmaster! Book your table today and guarantee a night of entertainment on Wednesday 20 May at >>

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  17. Are you interested in taking part in a clinical trial? Use the clinical trials tracker on our website to find out about relevant clinical trials that are recruiting near you >>

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  18. Are you aged 18-30 and living with a muscle-wasting condition? Then Camp in Kielder is for you! Funded by Bupa UK foundation, it runs from 26 to 28 June 2020. Find out more >>

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  19. It’s only one week to go until the brightest day of the year! There’s still time to sign up to on Friday 7 February. Sign up today >>

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  20. Heading out this weekend and need access to toilets? All registered facilities can be found on the official map. See it here >>

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  21. Andrew has and today is the Managing Director of a business. But like many others with disabilities, he has had to overcome many barriers to finding . Read his blog on his experience and recommendations to employers >>

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