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#LGMD Families: Researchers at@Sarepta are looking for individuals with LGMD2E to participate in a phase 1/2a safety study. See details about this#clinicaltrial opportunity here:https://strongly.mda.org/clinical-trial-alert-lgmd2e-participants-sought-for-a-phase-1-2a-gene-delivery-study/ …Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
The
#MDA is celebrating it’s 70th anniversary this year & in March we are headed to Orlando for the 2020 MDA Clinical & Scientific#Conference. Register today to stand with MDA & stand out in your field at the defining event of#neuromuscular disease:http://bit.ly/2020_conferenceHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
We are so proud of MDA camper, Leah Vogedes, who has been selected as 2020 Children’s Miracle Network Champion for the
@childrenswi. Leah has#SMA and builds awareness through her YouTube channel. Read more from@journalsentinel.https://www.jsonline.com/story/communities/south/news/franklin/2020/01/16/franklin-teen-uses-youtube-raise-awareness-her-rare-disease/4426115002/?fbclid=IwAR3hGe_fPfK79wbBdo0LCJ1NzDMDTIW_AFfUPm9QeVC7hkaS_tmNLTWlWHE …Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
#SMA FAMILIES: Researchers@ScholarRock are looking for individuals with SMA type 3 to participate in a phase 2 safety/efficacy study. See details about this#clinicaltrial opportunity here:https://strongly.mda.org/clinical-trial-alert-individuals-with-sma-type-3-sought-for-a-phase-2-study/ …Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
#MDA Industry Update Webinars launches today! This inaugural program will feature information for the#neuromuscular community presented by@amicusrx1 & the Myasthenia Gravis community presented by@AlexionPharma. Learn more here: https://webinars.on24.com/MDA/Amicus_Jan2020 …https://webinars.on24.com/MDA/Alexion_Jan2020 …Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
We are proud to announce our newest
#MDA National Ambassador, 10-year-old Ethan LyBrand, who is living with#Duchenne#MuscularDystrophy. Learn more about Ethan’s story as he prepares to represent MDA across the country. http://bit.ly/MDAambassador20 pic.twitter.com/fGjBQwlTzc
Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
MDA USA proslijedio/la je Tweet
Congratulations to
@SteveGleason for receiving the Congressional Gold Medal. The#ATSDR National#ALSRegistry team thanks you for your efforts and inspiration to help spread#ALS awareness.Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
We are making progress in treating
#ALS every day and we are proud to fund groundbreaking#research, working with amazing clinical researchers, like@ColumbiaMed’s Dr. Harms. Learn more from@usnews and@FloridaCulture.https://health.usnews.com/conditions/brain-disease/als …Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Thank you to our amazing 2018-2019
#MDA National Ambassadors for inspiring our community with their stories as they shared MDA’s mission. We have celebrated many milestones with them over the last two years!pic.twitter.com/goNhiDdwbx
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MDA USA proslijedio/la je Tweet
Breaking news!
New Jersey will soon start #SMA#NewbornScreening for all babies!https://www.nj.com/news/2020/01/infants-in-nj-will-now-be-screened-for-this-debilitating-disorder.html …Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Congratulations to our 2018
@MDAMetroNY Muscle Team MVP#DerekJeter on being inducted into the#BaseballHallofFame.https://twitter.com/baseballhall/status/1219762093341233155 …
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We are looking forward to seeing how this
#experiment to test bone and muscle retention and growth could lead to developments that will help our#MDA gain#strength!https://twitter.com/NPRHealth/status/1217750729781170182 …Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
MDA USA proslijedio/la je Tweet
Congratulations
@SteveGleason for your well-deserved Congressional Gold Medal! You’re an inspiration to us and the entire ALS Community!https://twitter.com/Saints/status/1217536651846733824 …
Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
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@LSU knows how to celebrate, after winning the#NationalChampionship, and MDA camper George Woods was in on the action, referring to it as the “best night of his life”! We are pretty sure he wasn’t the only@LSUFootball fan that felt that way!#GeauxTigers
pic.twitter.com/q5WHqN0i1K
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Do you love videogames, streaming, and want to improve the lives of those with
#MuscularDystrophy#ALS and 43+ related#neuromuscular diseases? Join our Gaming@discord now! https://discord.gg/VracthK https://www.youtube.com/watch?v=eoCSJNpX2KY&feature=youtu.be …Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
To our
#MDA families in#PuertoRico: With the#PREarthquake and continued seismic activity, we wanted to provide the following information related to currently open@RedCross shelters. https://www.mda.org/emergency-alerts …pic.twitter.com/zrnH9PytHe
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Today is the final day of 2019 to make your impact on the
#MDA community and bring hope to those living with 1 of 43 diseases. Join us to empower individuals with muscular dystrophy, ALS and neuromuscular disease: http://bit.ly/SeasonofWillMDA_TW …pic.twitter.com/hEmeFdZIKo
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#DYK: In just one year,#MDA funded over 400 research grants for scientists focusing on#neuromuscular diseases? MDA has invested $1.4 billion since we began. Help us continue to transform lives with innovative breakthroughs & care every day: http://bit.ly/SeasonofWillMDA_TW …pic.twitter.com/kWy9gVBpfy
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There are over 250K individuals & families living with
#neuromuscular diseases in the U.S. alone & when you give to#MDA this Season of Will your#donation will bring hope to our community through research, clinical trials & resources. Donate today: http://bit.ly/SeasonofWillMDA_TW …pic.twitter.com/TyGHZ65csm
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Happy
#Holidays to our#MDA community! We are grateful for your continued support and wish you a safe and happy holiday.pic.twitter.com/E36ZjwudoF
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