Tweetovi
- Tweetovi, trenutna stranica.
- Tweetovi i odgovori
- Medijski sadržaj
Blokirali ste korisnika/cu @MDA_Advocacy
Jeste li sigurni da želite vidjeti te tweetove? Time nećete deblokirati korisnika/cu @MDA_Advocacy
-
Prikvačeni tweet
The
@MDAorg Patient Focused Drug Development meeting for#Pompe disease will be here before we know it. Have you secured your spot for the March 9th event? If not, do so today: http://bit.ly/2O7khnG pic.twitter.com/PiRJDU4Qon
Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Thank you
@RepGaramendi for cosponsoring the Advancing Access to Precision Medicine Act (HR 4393), which would increase access to crucial genetic testing for more#neuromuscular disease patients.pic.twitter.com/lOlbbEBxGl
Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Thank you
@RepGwenMoore for cosponsoring the Advancing Access to Precision Medicine Act (HR 4393), which would increase access to crucial genetic testing for more#neuromuscular disease patients.pic.twitter.com/HklI7wbamJ
Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Here's hoping Nebraska soon adds #SMA to its#NewbornScreening program!
https://www.3newsnow.com/news/local-news/spinal-muscular-atrophy-early-detection-bill-introduced-in-nebraska-legislature …Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Great news! The Kansas
#NewbornScreening program will now screen all babies for#SMA!https://twitter.com/KDHE/status/1224451221936754688 …
Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi
-
Thank you
@RepJoeNeguse for cosponsoring H. Res. 242, which affirms the importance of the#OrphanDrug Act and the need for more#RareDisease research!pic.twitter.com/9MOjQF1dED
Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
“What I’m planning to do is teach people about my life and how I stay strong when I have this horrible, horrible disease, and how I can live life like a normal kid,” Ethan said.
#MondayMotivationhttps://www.al.com/news/huntsville/2020/02/alabama-boy-named-mda-national-ambassador.html …Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Thank you
@RepPeterDeFazio for cosponsoring the Advancing Access to Precision Medicine Act (HR 4393), which would increase access to crucial genetic testing for more#neuromuscular disease patients.pic.twitter.com/5BiH0ZNxjP
Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Get to know our newest
#MDA National Ambassador, 10-year-old Ethan LyBrand!#Duchenne#MuscularDystrophypic.twitter.com/bvrZ5AJulCOvo je potencijalno osjetljiv multimedijski sadržaj. Saznajte višeHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Today is the LAST DAY to sign our petition urging
@SecAzar to restart the#NewbornScreening advisory committee. Add your name before we deliver it to@HHSgov http://cqrcengage.com/mda/app/sign-petition?0&engagementId=505729 …pic.twitter.com/fM3O8et2Wv
Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Thank you
@RepBrownley for cosponsoring the Advancing Access to Precision Medicine Act (HR 4393), which would increase access to crucial genetic testing for more#neuromuscular disease patients.pic.twitter.com/CTgSCe9elf
Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Thank you
@RepJoshHarder for cosponsoring the Advancing Access to Precision Medicine Act (HR 4393), which would increase access to crucial genetic testing for more#neuromuscular disease patients.pic.twitter.com/ligzIhfGro
Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Thank you
@RepTedLieu for cosponsoring the Advancing Access to Precision Medicine Act (HR 4393), which would increase access to crucial genetic testing for more#neuromuscular disease patients.pic.twitter.com/KFrrb4WrNu
Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
TIME IS RUNNING OUT
: We need as many petition signatures as possible by Jan. 31 urging @SecAzar to restart the#NewbornScreening advisory committee. Add your name now: http://cqrcengage.com/mda/app/sign-petition?2&engagementId=505729 …pic.twitter.com/WTkmhS0VzF
Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
MDA Advocacy proslijedio/la je Tweet
Congratulations, Ethan! This Decatur 10-year-old will soon be representing the nation's largest organization for people with neuromuscular diseases.
@MDA_Advocacyhttps://www.rocketcitynow.com/news/top-stories/decatur-10-year-old-named-2020-2021-mda-national-ambassador/?utm_medium=social&utm_source=twitter_rocketcitynow …Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
MDA Advocacy proslijedio/la je Tweet
Sure going to miss Justin and Faith, but excited to add Ethan and his family to the MDA Ambassador roster. Hear more about his story and my first year.
#MDAhttps://strongly.mda.org/mda-national-ambassadors-share-the-everyday-impact-of-neuromuscular-disease/ …Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Congratulations, Ethan!
https://twitter.com/MDAorg/status/1222194135022678017 …
Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Happening now!
@MDAorg is at the@NIH for a critical meeting on manufacturing#GeneTherapies, the future of#neuromuscular treatments. We're thrilled that@barrybyrne1, an MDA Care Center Director, took the stage to discuss gene therapy manufacturing for#Pompe,#SMA & more!pic.twitter.com/lSppxMqoxQ
Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Thank you
@RepHastingsFL for cosponsoring the Advancing Access to Precision Medicine Act (HR 4393), which would increase access to crucial genetic testing for more#neuromuscular disease patients.pic.twitter.com/yEntmgUU0d
Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
MDA Advocacy proslijedio/la je Tweet
The Expanding AAV Manufacturing Capacity for
#RareDisease Gene Therapies Workshop begins today! Attendees will explore—
Logistical bottlenecks
Master file best practices & opportunities
Analytics & lot release testing
Stay tuned to the videocast! http://bit.ly/38FixJR pic.twitter.com/xK76NeYm9u
Prikaži ovu nitHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi
Čini se da učitavanje traje već neko vrijeme.
Twitter je možda preopterećen ili ima kratkotrajnih poteškoća u radu. Pokušajte ponovno ili potražite dodatne informacije u odjeljku Status Twittera.