MDA Advocacy

@MDA_Advocacy

MDA's Advocacy projects the voice of the community & protects the interests of those we serve.

Washington, D.C.
Vrijeme pridruživanja: lipanj 2009.

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  1. Prikvačeni tweet
    7. sij

    The Patient Focused Drug Development meeting for disease will be here before we know it. Have you secured your spot for the March 9th event? If not, do so today:

    Poništi
  2. prije 11 sati

    Thank you for cosponsoring the Advancing Access to Precision Medicine Act (HR 4393), which would increase access to crucial genetic testing for more disease patients.

    Poništi
  3. prije 15 sati

    Thank you for cosponsoring the Advancing Access to Precision Medicine Act (HR 4393), which would increase access to crucial genetic testing for more disease patients.

    Poništi
  4. 4. velj
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  5. 4. velj

    Great news! The Kansas program will now screen all babies for !

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  6. 4. velj
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  7. 3. velj

    Thank you for cosponsoring H. Res. 242, which affirms the importance of the Act and the need for more research!

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  8. 3. velj

    “What I’m planning to do is teach people about my life and how I stay strong when I have this horrible, horrible disease, and how I can live life like a normal kid,” Ethan said.

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  9. 31. sij

    Thank you for cosponsoring the Advancing Access to Precision Medicine Act (HR 4393), which would increase access to crucial genetic testing for more disease patients.

    Poništi
  10. 31. sij

    Get to know our newest National Ambassador, 10-year-old Ethan LyBrand!

    Ovo je potencijalno osjetljiv multimedijski sadržaj. Saznajte više
    Poništi
  11. 31. sij

    Today is the LAST DAY to sign our petition urging to restart the advisory committee. Add your name before we deliver it to

    Poništi
  12. 30. sij

    Thank you for cosponsoring the Advancing Access to Precision Medicine Act (HR 4393), which would increase access to crucial genetic testing for more disease patients.

    Poništi
  13. 30. sij

    Thank you for cosponsoring the Advancing Access to Precision Medicine Act (HR 4393), which would increase access to crucial genetic testing for more disease patients.

    Poništi
  14. 29. sij

    Thank you for cosponsoring the Advancing Access to Precision Medicine Act (HR 4393), which would increase access to crucial genetic testing for more disease patients.

    Poništi
  15. 29. sij

    ⏰TIME IS RUNNING OUT⏰: We need as many petition signatures as possible by Jan. 31 urging to restart the advisory committee. Add your name now:

    Poništi
  16. proslijedio/la je Tweet

    Congratulations, Ethan! This Decatur 10-year-old will soon be representing the nation's largest organization for people with neuromuscular diseases.

    Poništi
  17. proslijedio/la je Tweet

    Sure going to miss Justin and Faith, but excited to add Ethan and his family to the MDA Ambassador roster. Hear more about his story and my first year.

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  18. 28. sij
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  19. 28. sij

    Happening now! is at the for a critical meeting on manufacturing , the future of treatments. We're thrilled that , an MDA Care Center Director, took the stage to discuss gene therapy manufacturing for , & more!

    Poništi
  20. 28. sij

    Thank you for cosponsoring the Advancing Access to Precision Medicine Act (HR 4393), which would increase access to crucial genetic testing for more disease patients.

    Poništi
  21. proslijedio/la je Tweet
    28. sij

    The Expanding AAV Manufacturing Capacity for Gene Therapies Workshop begins today! Attendees will explore— ✅ Logistical bottlenecks ✅ Master file best practices & opportunities ✅ Analytics & lot release testing Stay tuned to the videocast!

    Prikaži ovu nit
    Poništi

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