Sooner is better for kids with disabilities to get the educational services & supports they are entitled to under IDEA, but families are often forced into long & expensive legal battles to get them.
A SCOTUS decision could further prolong this "process."
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Little Lobbyists
@LittleLobbyists
Family-led group advocating for our kids with complex medical needs and disabilities.
Little Lobbyists Action Network is a 501(c)(4) org.
littlelobbyists.orgJoined June 2017
Little Lobbyists’s Tweets
COVID is still a pandemic–a fast changing year-round threat killing thousands a week.
But Congress' failure to continue funding is leading us to prematurely treat it as endemic.
We need a national public health response that actually works to protect ALL of the public's health
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FDA considers major shift in COVID vaccine strategy npr.org/sections/healt
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The Seizure Recognition and First Aid certification training provides information to increase the knowledge, skills, and confidence in recognizing seizures and safely administering seizure first aid. bit.ly/3XwtF5z
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Did you know that guns are now the leading cause of death for kids? The #HospitalUnited campaign encourages #healthcare providers to ask parents and caregivers if there’s an unlocked gun in the house. Discover helpful tips to ask: bit.ly/3DcRGX5 #LockGuns #GunSafety
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Today is #EdRobertsDay! In 2010, the United States House of Representatives declared January 23rd as Ed Roberts Day, in commemoration of Ed’s significant and ground-breaking contributions to the disability civil rights movement.
#EdRoberts
Photo via Bancroft Library
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"Whether caused by wildfires, earthquakes, hurricanes, flooding or storms, power outages are a life-and-death issue for many of us. Time and time again, disabled and older people are left behind or not prioritized in emergency planning" -
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Today, every day, and especially during this #LunarNewYear, we send our love to the Asian American community.
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2 years ago today, and still so immensely grateful for the moment of a lifetime 💛
thank you to everyone who has followed my journey before and after this life-changing day 💛
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Harmful and false - scapegoating a 6 year old's disability for the horrific classroom shooting in VA is deeply damaging.
The problem is access to guns.
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Once again the GOP is playing reckless political games with our children's lives.
They are bad at chess, very sore losers, and have no qualms about using the lives of our kids with complex medical needs & disabilities as pawns.
We refuse to play along.
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@ElenaHung202 of @LittleLobbyists and @aijenpoo of @domesticworkers
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No matter how much you love your loved ones (and we do!), being an unpaid family caregiver is hard – economically, emotionally, and physically.
This January #WellnessWednesday we're asking – what are you doing to take care of you?
#CareCantWait
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Low pediatric vaccination rates for #Flu and #COVID are contributing to rising viral transmission overwhelming hospitals, making it harder to access care when needed.
#GetVaccinated & #Boosted – it is an easy way to help keep kids and communities safe.
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Affected by #WinterStorms #Flooding #Landslides #Mudslides since Dec 27 2022
Renters & owners who sustained losses in #Merced #SantaCruz #Sacramento can begin applying for assistance at DisasterAssistance.gov /Call 800-621-3362
Disability & Disaster Hotline 800.626.4959
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As strong winter storms continue to impact communities across California, @POTUS approved a Presidential Major Disaster Declaration which will provide additional support to the state's ongoing emergency response.
Learn more: wp.me/pd8T7h-7MO
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Remembering and celebrating Martin Luther King, Jr. and all of the civil rights heroes who inspire us.
Until ALL of us have the health care, education, and inclusion we need, we promise to continue the work to "bend the arc" – today and every day. #MLKDay
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Disabled, impacted by, and need help? Discapacitade, afectade por un disastre y necesita ayuda?
Seeking shelter (busca refugio, trate) try 211 or 311.
Call/text (llame) DISABILITY & DISASTER HOTLINE 800-626-4959 o email hotline@disasterstrategies.org
#Tornado #AtmosphericRiver
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We’re working to protect, expand & strengthen the programs that provide the quality, affordable health care Americans rely on and deserve. That's why 4/5 people can find plans for $10 or less on HealthCare.gov, where you can enroll thru Sunday.
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Record numbers have signed up for affordable #ACA health care coverage during #OpenEnrollment, which ends this weekend in most states. More people are eligible and plans are more affordable than ever - check our your options and #GetCovered!
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Power outages are life-or-death emergencies for those who rely on home medical equipment. Medicaid won't pay for even the simplest home generators. Unplanned, unannounced blackouts are unconscionable.
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disabilityscoop.com/2023/01/05/con
Some good news -- the recent Federal funding bill includes more money for special ed, an extension of Money Follows the Person, a path for the FDA to finally #StopTheShock, and an expansion of eligibility for ABLE accounts!
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Any candidate for public office should have a disability policy plan.
Props to for facilitating this important conversation between the #DisCo and Chicago mayoral candidates. #CripTheVote
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Once again, we see how a Republican majority means playing politics with people’s lives in order to support tax breaks for the wealthy and other special interests.
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We are thrilled to announce our new Campus Ambassador Program, providing direct support and resources to students interested in COVID safety and disability justice advocacy.
We're so excited to bring together our first cohort!
Learn more and apply at covidsafecampus.org/ambassadors
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#Discapacitade y impactade por #desastres necesita ayuda? #Disabled, impacted by #disasters, need help?
Busca refugio, trate (Seeking shelter) try 211 o 311
In #California for help w/ power DDAR 916-737-5313
Alerts calalerts.org
Llamenos/text (Call us) 800-626-4959
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latimes.com/california/sto
People have told us they are "sick" of being reminded to do the minimum, like #masking, to protect themselves and others from surging viruses.
But what happens when they need lifesaving care from hospitals their denial has stretched beyond capacity?
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Rural hospitals are a dying breed among health care facilities, especially in Medicaid non-expansion states. Medicaid expansion is a critical, proven solution to salvaging rural health care systems that states cannot afford to pass up.
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I wrote the law giving people access to safe, quality & affordable hearing aids over the counter. Nearly 30 million Americans with mild to moderate hearing loss can buy hearing aids off the shelf or online & save thousands of dollars. This is life-changing.
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Disabled, impacted by, and need help? Discapacitade, afectade por un disastre y necesita ayuda?
Seeking shelter (busca refugio, trate) try 211 o 311.
SMUD at 888-456-7683 to report power outages
Call/text (llame) the DISABILITY & DISASTER HOTLINE 800-626-4959
#AtmosphericRiver
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“We have made an impact. But I think all of us want something bigger and more systemic and more comprehensive. And we all thought we’d be there by now.” – Patti Saylor, Ethan's mother
CW: police violence, death of a disabled person
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Each visit to the Capitol by our kids with complex medical needs & disabilities is a testament to the effectiveness and beauty of an inclusive and participatory democratic process.
Our democracy's strength lies within each of us.
Protect it. #January6th
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Disabled, impacted by severe winter weather, and need help? Discapacitade, afectade por el clima invernal extremo y necesita ayuda?
Seeking shelter, try 211 or 311
Call/text (llame) the DISABILITY & DISASTER HOTLINE 800-626-4959 or hotline@disasterstrategies.org
#WinterStorms
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⚠Coastal Flood Warning now in effect for the entire coastline including Bay Shoreline of N Bay Valleys through 4 PM. #cawx
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So excited that I'll be editing for the next few months, starting today! I published my first article back in December 2016, and it was a story for the Well desk about dating with a disability. It all comes full circle 🥹💚
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. has been a champion for our kids with complex medical needs & disabilities, fighting to expand and improve everyone's access to health care and #HCBS.
We hope he gets the very best care while undergoing treatment, and we wish him many happy, healthy days ahead! 💙
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#CovidIsNotOver. There's a new, more contagious variant of #COVID #XBB15 rapidly spreading alongside a host of other respiratory viruses.
Protect yourself and others – get #Vaccinated & #Boosted, #WearAMask indoors, and stay home if you're sick.
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Too many families are at a breaking point because of severe underfunding in care programs—and it’s time for a long-overdue investment in #HCBS. Sign our petition to show your support for much-needed investment in the care infrastructure! pulse.ly/gmuyhq1xxb #WeActWednesday
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In 1976 the Pointer Sisters recorded the now iconic "Pinball Number Count" song. Sesame Workshop celebrates the life and legacy of Anita Pointer. Thank you Anita Pointer for helping us learn our 123s and dedicating your life to creating inspiring and uplifting music. 💛
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We still have a long way to go for equality and inclusion for people with disabilities.
People are still waiting to get out of the institutions, we must not forget
De institutionalization
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On our blog: Gratitude at year's end for Lois Curtis, the hero behind the Olmstead Decision! Rest in power, Lois, and we will continue the fight for civil rights for disabled people. littlelobbyists.org/blog/2022/12/2
![Photo Credit: Official White House photo by Pete Souza. [image description: Lois Curtis (center) presents President Barak Obama (r) with one of her paintings. To the left of Lois is her direct support professional. They are in the Oval Office.]](https://pbs.twimg.com/media/FlKaEcWX0AAmmrM?format=jpg&name=medium)
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The first thing I’m hanging in my Capitol office: these powerful words spoken by .
As Ady lost his physical ability to speak, he reminded us that we change the world as a collective.
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As the XBB variant spreads, just 3% of children under 2 & at high risk are vaccinated.
For kids 2-4, 95% are not vaccinated. 68% of kids 5-11 are not vaccinated.
We can reduce hospitalizations, deaths, & long COVID by improving vaccination rates
covid.cdc.gov/covid-data-tra
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