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Robert Kalb, MD, Director of our Les Turner ALS Center
@NorthwesternMed was recently interviewed on Better Edge, a Northwestern Medicine podcast for physicians, discussing the latest in#ALS treatments and research. Listen to the full episode here: https://buff.ly/3bd86z2 pic.twitter.com/LEHNjBttY3
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We're kicking off the week by thanking our very own
#ALSChampion@SenatorDurbin for co-sponsoring the ALS Disability Insurance Access Act! Our Les Turner#ALS families should be able to access their SSDI benefits when they need them. Thank you for joining us on this effort!Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
We are grateful to the people living with ALS and others who so generously participated in this research study to help us find the answers to this disease. Together, we will create a world free of ALS.
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“Less than 2 years after the coordinated collaborative effort began, we are excited to see the data collected begin to present patterns + provide a clearer understanding of ALS," - Senda Ajroud-Driss, MD, Dir. of the Lois Insolia ALS Clinic + a Prin. Investigator of Answer ALS.
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1/ We are determined to create a world free of ALS, but we know we can’t do it alone. In 2018, our Les Turner ALS Center at
@NorthwesternMed began sample collection and enrollment in the largest coordinated collaborative ALS research effort in history -@AnswerALS.https://twitter.com/AnswerALS/status/1221973204534730753 …
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3/ We are grateful to Matt for his leadership + inspiring contributions to our
#ALS community and are honored to have@SteveGleason, via special video presentation, present him with the#HopeThroughCaring Award at our Gala on Saturday, Feb 22. Join us at http://HopeThroughCaring.org !Prikaži ovu nitHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
2/ In addition to raising a combined total of over $450,000 to support research and help families living with ALS, the event has spread awareness about the Foundation and ALS to countless members of Matt’s community, inspiring them and others to join our cause.pic.twitter.com/MOd7pYIFJz
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1/ After being diagnosed with ALS in 2013, Matt Creen, alongside his family and friends, created the Matt Creen Golf Invitational.pic.twitter.com/oh5wYWe8H2
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Huge thanks to Jennifer, Chris, Kenny, Keith, Rob and Steve from
@gonumotion for spending their "Day of Service" organizing our equipment loan closet and making sure everything is in tip-top shape for our Les Turner#ALS family!⠀pic.twitter.com/c5VhD5pq7v
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We are excited to share we are one of five recipients of a $20,000
@Cytokinetics' Communications Fellowship Grant this year! Learn more about how we'll be using this grant to support our Les Turner#ALS family: https://lesturnerals.org/cytokinetics-grant/ …https://twitter.com/Cytokinetics/status/1220013598304538625 …
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#ICYMI@SteveGleason became the 1st NFL player + person living w/#ALS to receive the Congressional Gold Medal, our nation's highest honor bestowed by Congress. Check out our latest#FacesofALS for Steve's acceptance speech + video of the ceremony: https://lesturnerals.org/steve-gleason-gold-medal/ …pic.twitter.com/g8eMQZfZ8R
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The National ALS Registry is working toward a better future for people living with
#ALS by funding research, collecting meaningful data, and more. To see how you can help future generations, click here: http://cdc.gov/als/ALSJoinALSRegistry.html …pic.twitter.com/tNc1KZ86Uy
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"Tag Days is one of the most important yearly events that my family has the privilege to be involved in." - Tiffony Host your own
#TagDays Drive this May for#ALSAwarenessMonth. We provide the materials, you bring the volunteers + have fun! Learn more: http://tagforals.org pic.twitter.com/9R3t5AFUoI
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Register below for today's webinar on REFINE-ALS. Our Lois Insolia ALS Clinic at our Les Turner ALS Center at
@NorthwesternMed is a site for this Biomarker Study of Edaravone (Radicava) in#ALS. You can learn more about the study here: https://www.neals.org/als-trials/5633 https://twitter.com/NEALSConsortium/status/1217077153247956992 …
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7/ His impact on the lives of people living w/ALS is unmatched. He is a hero through and through. And we know that like all of the medal recipients, the legacy of Steve Gleason will remain for centuries to come. Congratulations on a well-deserved honor to our dear friend, Steve.
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6/ And in 2015, both the U.S. House of Representatives and the Senate unanimously passed The Steve Gleason Act to ensure the availability of life-sustaining communication devices. In 2018, the Steve Gleason Enduring Voices Act was approved to replace the original law.
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5/ His nonprofit organization,
@TeamGleason, has provided nearly $10 million in adventure, technology, equipment and care services to over 15,000 people living with ALS.Prikaži ovu nitHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
4/ Since his ALS diagnosis in 2011, Steve has emerged as a key leader in the fight against ALS, advocating for the rights and needs of people living with ALS. And because of his career in the NFL, he has been able to draw national attention and awareness to the disease.
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3/ The 1st medal was awarded in 1776 and only 163 institutions, ppl or events have been bestowed this great honor since. Steve will be the 1st NFL player and the first person living with ALS to receive the medal. And for those of us in the
#ALS community, it comes as no surprise.Prikaži ovu nitHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
2/ The medal seeks to honor those, individually or as a group, “who have performed an achievement that has an impact on American history and culture that is likely to be recognized as a major achievement in the recipient’s field long after the achievement.”
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