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Prikvačeni tweet
I need to let go of her day to day care & become a daughter again.
But I can't.
Not yet.
Mom doesn't even have tylenol during the fever & #IntractablePain. I'm losing her to a#BrokenSystem. I'm exhausted, & it's hard to hold back the tears.
And I can't fix it. #Helppic.twitter.com/p43awjYdv4
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Lelena proslijedio/la je Tweet
This just looks like more intrusive monitoring/surveillance, more using CDC guidelines, etc. to screw over chronic pain patients. How disappointing.
Actual document (search "chronic pain"):https://www.whitehouse.gov/wp-content/uploads/2020/02/2020-NDCS.pdf …https://www.whitehouse.gov/briefings-statements/white-house-releases-2020-national-drug-control-strategy/ …Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Lelena proslijedio/la je Tweet
It’s intentional. Accredo is owned by Cigna. Vivitrol costs $1300 a month, Naltrexone $65. Cigna CEO David Cordani's total compensation was $18.9 million in 2018. That money has to come from somewhere - medication efficacy and patient care isn’t as important as executive pay.
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Lelena proslijedio/la je Tweet
Correlation does not mean causation.https://twitter.com/bioluisinho/status/1224404802693668864 …
0:09Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Lelena proslijedio/la je Tweet
Living with Chronic Pain - Listening Session Discussion Questions For
#CPP#ChronicPain#pain#Caregivers#Patients#PatientExperience#PatientsFirst#PatientSafety#ptsafety#SAA#CRPS#RSD#fibro#fibromyalgia#Lyme#migraines#CSFLeak#amputation http://www.surveygizmo.com/s3/5415999/Living-with-Chronic-Pain-Listening-Session-Discussion-Questions …Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Lelena proslijedio/la je Tweet
CHRONIC PAIN PATIENTS VOTE! 1. Find your 2 US Senators by State on page 1 of attached sheet! 2. Dont know who your 1 US Rep is? go here: https://www.house.gov/representatives/find-your-representative … 3. Find your one US Rep on p. 2 3. Tweet all 3! Remind them
#PainPatients vote! https://www.sbh4all.org/wp-content/uploads/2019/04/116th-Congress-Twitter-Handles.pdf …Prikaži ovu nitHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Lelena proslijedio/la je Tweet
Hey y'all. I know things are tight, & I feel simply AWFUL asking, but we're in between an EXTREMELY hard rock & tight place. "Help my children have their mother a little longer." Click to Donate: https://www.gofundme.com/f/help-my-children-have-a-mother-a-little-longer?rcid=r01-158088107912-b8f2e0b0397d4dfb&pc=tw_co_campmgmt_m&utm_medium=social&utm_source=twitter&utm_campaign=p_lico+share-sheet+exp2 … via
@gofundmePrikaži ovu nitHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Lelena proslijedio/la je Tweet
Please help my children & myself if you can. I know how difficult it is for everyone out there, & it strips what little pride I have left to even ask. Please share to whatever media platforms you use. Thank you from the bottom of my heart those who've helped. Thank you




https://twitter.com/Chronic_FLKeys/status/1224931873291456516 …Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Lelena proslijedio/la je Tweet
This is a harrowing example of what could happen in the reassessment process currently being considered by the US Social Security Administration.https://www.independent.co.uk/news/uk/home-news/disabled-woman-wheelchair-assessment-pip-chronic-fatigue-syndrome-dwp-a9311266.html?fbclid=IwAR15nt9WicFK5nASxP6eDawvrUujMylXqB7yWZ8b22gxluYONTf-VgrT0P4 …
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Lelena proslijedio/la je Tweet
CPPs and the suppliers and dispensers of their medications are being gradually criminalised, the same as 'recreational' use and supply of opioids is. This is happening purely because they are a minority and it is politically achievable. All to do with crime creation.
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Lelena proslijedio/la je Tweet
Okay,
#HPM#hapc Tweeps, I have a modest proposal. From now on, instead of calling it#PriorAuthorization, we call it “Mother May I?...” Thoughts?Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Lelena proslijedio/la je Tweet
I don’t think there’s ever been a more difficult time to be a chronic pain patient. Anti-opioid zealots & ignorant politicians double down on policies that harm CPPs. But
#PainPatientsVote! PLEASE RT to your US Senators and US Reps!@RepSusieLee@SenJackyRosen@SenCortezMastohttps://twitter.com/danlairdmd/status/1224374491813253120 …Prikaži ovu nitHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Stay in this hostile system long enough, you'll develop
#PTSD from worrying about crimes you've never even committed. It's incredibly stressful. My last#PainContract was 4 pages long. One incorrect drug test-I was ^fired^, despite proving the test wrong w/a hair follicle test.pic.twitter.com/lyoE3r9E12Prikaži ovu nitHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
required to do monthly UDTs & show up for surprise pill counts within hours, or you face dismissal. You're required to try all suggested treatments, like injections, surgery, or other meds or you face... DISMISSAL. This is the
#PatientParoleSystem in full effect. It's unethical.pic.twitter.com/xgo478ClJSPrikaži ovu nitHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
This isn't
#medicine, it's#Parole4Patients. I've had to sign a#PainContract for well over a decade to receive my pain medication, & over the years they've worsened. Highlights include: missed appointments=dismissal, you must let the clinic know if you're leaving town, you are https://twitter.com/BaDorfman/status/1225146953626943488 …pic.twitter.com/wnVEnBDeDuPrikaži ovu nitHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Lelena proslijedio/la je Tweet
I completed the survey. This may be one of the best opportunities we have to affect change on a federal level. Please participate. Your answers don’t have to be perfect and you don’t have to figure out a way to explain everything. Anything is better than nothing.
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Lelena proslijedio/la je Tweet
Attention
#PainPatients#ChronicPain patients,#Spoonies: There is a survey from the@theNASEM about#Tapering. They are interested in hearing from patients - and your experience can be reported anonymously. http://www.surveygizmo.com/s3/5415999/Living-with-Chronic-Pain-Listening-Session-Discussion-Questions …Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
#Disingeuous#Disinfo Your mesaage is#dishonest &#disrespectful.#Dependence is NOT#addiction.#HonestyMatters more than#FalseNarratives &#Funding.
Your ads are a #disservice to everyone. Don't spread#bias,#stigma, & myths. Also?#RecoveryIsPossible. Thanks.
https://twitter.com/truthorange/status/1177600923125915649 …pic.twitter.com/ndsGb8NVXL -
BTW: SO MANY HAVE RESPONDED, & it touches my heart deeply. I'll respond ASAP! I'm getting mom settled in her new home. I work on that, come home, & collapse. I'm thinking of each of you. I'm profoundly grateful. Love you.
Thank you, fam. Words fail me.
#dementia#supportpic.twitter.com/a4hTw8Our2Prikaži ovu nitHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Lelena proslijedio/la je Tweet
My doctor has banned me from his practice- because I asked him for medicine. Anytown, America Circa 2020
#PainCareCrisis#MedicalOrphan#PatientsNotParoleespic.twitter.com/L2aIkjvQ3NHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Lelena proslijedio/la je Tweet
They are getting out of hand. Daily fight for patients’, rights. Dictating care and denying healthcare in the name of profits.https://www.google.com/amp/s/www.bizjournals.com/twincities/news/2019/04/22/unitedhealth-ceos-pay-passed-18-million-in-2018.amp.html …
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