Lara Bloom

@LaraBloom

President & CEO of The Ehlers-Danlos Society •Campaigner & Advocate for Rare, Chronic & Invisible Disease• Personal account, views are my own.

Worldwide
Vrijeme pridruživanja: veljača 2011.

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  1. Prikvačeni tweet
    7. lis 2019.

    Feeling incredibly grateful for people like and openly talking about how hard it can be living with - I pray this leads to a day that I tell people “I have EDS” and they don’t say “what’s that”? 🙌🏻

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    5. velj
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  3. proslijedio/la je Tweet

    NEWS: will be joining us for a post-show talk with the team on Sun 17 May. Chronic is a darkly comic new musical, written by and staring . Tickets are available from £15 per person:

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    6. velj

    Meeting zebras from all over the world! 🦓🌏 The Adventure Challenge team met Laura today, a fellow zebra from Australia, who is currently on vacation in Cambodia! Laura follows The Ehlers-Danlos Society and Lara Bloom on Instagram and came over to say hi!

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  5. proslijedio/la je Tweet
    2. velj
    , , i još njih 7
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  6. 2. velj

    Well that was amazing and it’s only day one!!!! 37km down and a billion joyful memories already. Watching the sunrise over Angkor Wat this morning with these amazing people was incredible. We set off cycling through…

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  7. 30. sij

    Here we go! The adventure begins. Trying to avoid the on the way!

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  8. 28. sij

    It’s hard enough being a teenager. Add to that dealing with coming out and being what felt like quite literally the only gay in the village. Add to that being in constant pain, always being on crutches, or a plaster…

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  9. 27. sij

    Today is Holocaust Remembrance Day and each year I share this story and image. I took this picture in Auschwitz in 2007. This incredible woman was a surviver of the holocaust and I had the immense privilege of…

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    26. sij

    We are delighted to invite you to register for our first ever European Learning Conference in , France, taking place from March 21-22, 2020.

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  11. 27. sij
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    👏👏GOOD NEWS 👏👏 clinical trials in the UK have increased by 45% in the last year alone, meaning cutting-edge treatments will reach patients faster. This reaffirms our world leading position in &

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    Excellent work by , the 17 people living with & 17 artists who created the wonderful awareness raising art exhibition for this campaign. An honour to attend this launch evening full of passion, hope and honesty. Well done everyone!

    , , i još njih 5
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  14. 22. sij

    I am strong. I am optimistic. I am brave. I am determined. I am Number 17. I could not be more excited to be part of this new campaign that launched today at the Oxo Tower gallery to raise awareness of Rare…

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  15. 22. sij

    So incredibly proud to be part of the campaign that launched today to raise awareness of & thanks for recording the video that played at the launch tonight 👍🏻

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  16. 18. sij

    This warrior, this incredible woman - has been taken too soon. Feeling absolutely devastated, I have no words. Chrystal, you were such an inspiration, you fought so hard for awareness. I will never forget you, rest in peace my friend ❤️

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    18. sij
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  18. 16. sij

    Validation means more than people will ever know. When you spend years trying to find the answers to never ending questions and through it all nobody believes your fear, your pain, your isolation, your anguish. The…

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    15. sij

    I had the great pleasure to be interviewed by . We spoke about my film We Are Visible, future plans and the challenges of filmmaking as a disabled journalist and filmmaker

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  20. proslijedio/la je Tweet
    15. sij

    Thread: This week I finally got to meet Henny. We are 2 of only 15 ppl with the same rare skin disorder known as Ehlers-Danlos Syndrome Dermatosparaxis (7C) . We met in a hospital room. A room that we know way too well. She had never met someone with EDS 7C before.

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    Check out our new film: “Intimate not Intimidated: It's Time to Talk about Sex and Disability” 👇🏿👇🏿👇🏿👇🏿👇🏿

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