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Prikvačeni tweet
Feeling incredibly grateful for people like
@jameelajamil and@Sia openly talking about how hard it can be living with#EDS - I pray this leads to a day that I tell people “I have EDS” and they don’t say “what’s that”?
@TheEDSociety#feelinghopeful#EhlersDanlosSyndromeHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Lara Bloom proslijedio/la je Tweet
And we are off! Lets unravell fatigue in pediatric HSD and hEDS.
#EhlersDanlosSyndrome#disability@TheEDSociety@Ver_EDS@hsrotterdam@jeroenoversier@Macquarie_Uni@NVFK@KCZorginnovatie@kcbuijs@srhilberink@LaraBloompic.twitter.com/FhX1yqU42IHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Lara Bloom proslijedio/la je Tweet
NEWS:
@LaraBloom will be joining us for a post-show talk with the@ChronicMusical team on Sun 17 May. Chronic is a darkly comic new musical, written by and staring@catteb. Tickets are available from £15 per person: https://lwtheatres.co.uk/whats-on/chronic/ …pic.twitter.com/P6upKsloeT
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Lara Bloom proslijedio/la je Tweet
Meeting zebras from all over the world!

The Adventure Challenge team met Laura today, a fellow zebra from Australia, who is currently on vacation in Cambodia! Laura follows The Ehlers-Danlos Society and Lara Bloom on Instagram and came over to say hi!pic.twitter.com/kY59uwvrJB
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Lara Bloom proslijedio/la je Tweet
Have you seen the
#IAmNumber17 campaign yet? If not, check out: https://iamnumber17.geneticalliance.org.uk/#RareDiseasepic.twitter.com/bB3SyO32LJ
Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Well that was amazing and it’s only day one!!!! 37km down and a billion joyful memories already. Watching the sunrise over Angkor Wat this morning with these amazing people was incredible. We set off cycling through… https://www.instagram.com/p/B8Ecgn9lNJI/?igshid=mknbabp8fo28 …
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Here we go! The adventure begins. Trying to avoid the
#coronaravirus on the way!#myEDSchallenge#EhlersDanlosSyndrome#EDS#HSDpic.twitter.com/ZAdazHvb0C
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It’s hard enough being a teenager. Add to that dealing with coming out and being what felt like quite literally the only gay in the village. Add to that being in constant pain, always being on crutches, or a plaster… https://www.instagram.com/p/B74Gs8wlJSn/?igshid=ssnqdw4beqpp …
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Today is Holocaust Remembrance Day and each year I share this story and image. I took this picture in Auschwitz in 2007. This incredible woman was a surviver of the holocaust and I had the immense privilege of… https://www.instagram.com/p/B71hE7pFoGb/?igshid=1bqkumt5bb50x …
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Lara Bloom proslijedio/la je Tweet
We are delighted to invite you to register for our first ever European Learning Conference in
#Paris, France, taking place from March 21-22, 2020. https://buff.ly/36elCPf#SED#EhlersDanlossyndrome#hypermobilityspectrumdisorders#MedTwitterpic.twitter.com/7JSG8teB6N
Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi
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Lara Bloom proslijedio/la je Tweet

GOOD NEWS 
clinical trials in the UK have increased by 45% in the last year alone, meaning cutting-edge treatments will reach #NHS patients faster. This reaffirms our world leading position in#innovation &#lifescienceshttp://www.pharmatimes.com/news/uk_cell_and_gene_clinical_trials_up_45_from_2018_1322413 …Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Lara Bloom proslijedio/la je Tweet
Excellent work by
@TakedaPharma, the 17 people living with#RareDisease & 17 artists who created the wonderful awareness raising art exhibition for this#IAmNumber17 campaign. An honour to attend this launch evening full of passion, hope and honesty. Well done everyone!pic.twitter.com/sxXUPqD4qB
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I am strong. I am optimistic. I am brave. I am determined. I am Number 17. I could not be more excited to be part of this new campaign that launched today at the Oxo Tower gallery to raise awareness of Rare… https://www.instagram.com/p/B7oq6EKFSg0/?igshid=snerlildt4x7 …
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So incredibly proud to be part of the
#IamNumber17 campaign that launched today to raise awareness of#RareDiseases & thanks@nicolablackwood for recording the video that played at the launch tonight
#EDS#EhlersDanlosSyndromehttps://iamnumber17.geneticalliance.org.ukHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
This warrior, this incredible woman - has been taken too soon. Feeling absolutely devastated, I have no words. Chrystal, you were such an inspiration, you fought so hard for
#vEDS awareness. I will never forget you, rest in peace my friend
#EhlersDanlosSyndrome#RIPpic.twitter.com/VAe6ti1JEu
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Lara Bloom proslijedio/la je Tweet
We want to share your voices - Pediatric Round Table Event update. https://m.facebook.com/story.php?story_fbid=10157717042030336&id=294028895335 …
#EhlersDanlosSyndrome#hypermobilityspectrumdisorderpic.twitter.com/FH4xPpW9JE
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Validation means more than people will ever know. When you spend years trying to find the answers to never ending questions and through it all nobody believes your fear, your pain, your isolation, your anguish. The… https://www.instagram.com/p/B7ZQ5gTlefW/?igshid=1u35ufvu4bri3 …
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Lara Bloom proslijedio/la je Tweet
I had the great pleasure to be interviewed by
@EDSWellnessSol. We spoke about my film We Are Visible, future plans and the challenges of filmmaking as a disabled journalist and filmmaker#filmmaking#invisibleillness#EhlersDanlosSyndrome#disabilitieshttps://m.youtube.com/watch?v=Ned9PcFZ3mk&t=1s …Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Lara Bloom proslijedio/la je Tweet
Thread: This week I finally got to meet Henny. We are 2 of only 15 ppl with the same rare skin disorder known as Ehlers-Danlos Syndrome Dermatosparaxis (7C)
@TheEDSociety. We met in a hospital room. A room that we know way too well. She had never met someone with EDS 7C before.pic.twitter.com/8jtHa5jBz2
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Lara Bloom proslijedio/la je Tweet
Check out our new film: “Intimate not Intimidated: It's Time to Talk about Sex and Disability”




https://www.open.edu/openlearn/health-sports-psychology/health/intimate-not-intimidated-its-time-talk-about-sex-and-disability …Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi
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