Tweetovi
- Tweetovi, trenutna stranica.
- Tweetovi i odgovori
- Medijski sadržaj
Blokirali ste korisnika/cu @LGS_Foundation
Jeste li sigurni da želite vidjeti te tweetove? Time nećete deblokirati korisnika/cu @LGS_Foundation
-
LGS Foundation proslijedio/la je Tweet
Knowing that if these seizures don't calm down soon they are going to kill him
#postseizurecuddle a mum cuddle can help after a seizure but it won't save his life just maybe#CBD cannabis will so many people need this treatment for@LGS_Foundation and other types of epilepsy
pic.twitter.com/VeBen055sA
Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
We know firsthand that involving patients is vital in the search for
#RareDisease treatments.@CZIScience’s#RareAsOne is supporting patient communities to accelerate research and drive progress against rare disease http://www.RareAsOne.org . Thank you for supporting us!#LGS#DEEpic.twitter.com/ns35xPB2Yg
Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
LGS Foundation proslijedio/la je Tweet
So amazing!!!! Congrats to all!
Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
7,000 rare diseases, one community fighting for cures!! We’re at LGSF are so proud to be part of
@ChanZuckerberg’s#RareAsOne Network http://www.RareAsOne.org#RareDiseases#RareIsNotRarepic.twitter.com/cCDEoQpNae
Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
LGS Foundation proslijedio/la je Tweet
This is so exciting! So thrilled to see
@LGS_Foundation@chromosome8p@dup15q@KIF1A@Glut1D@CureGrin@TESSResearch from the#DEE community here, in addition to so many others! Thank you so much@ChanZuckerberg We have even more hope!#RareAsOne#RareDiseasehttps://twitter.com/ChanZuckerberg/status/1224373344503418884 …Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
December News: LGSF Conference Announcement, Clinical Trial Info, Annual Giving, and more http://p0.vresp.com/PPj1K6
Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
LGS Foundation proslijedio/la je Tweet
Today is Lennox-Gastaut Syndrome (LGS) Awareness day &
@LGS_Foundation held an important event on this rare & catastrophic form of epilepsy that begins in childhood. 30-50% of people w/ LGS have Infantile Spasms prior to developing LGS. Learn More Here: http://bit.ly/LGSfoundation pic.twitter.com/3EzjCUA7a1
Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
LGS Foundation proslijedio/la je Tweet
Today is Lennox-Gastaut Syndrome Awareness Day!
@LGS_Foundation has education and awareness materials which can be downloaded for free or ordered online. Find#LGS awareness events near you & learn how to help raise awareness athttps://bit.ly/2VPxmUGHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
LGS Foundation proslijedio/la je Tweet
I encourage everyone to watch this meeting. I'm so proud of
@LGS_Foundation and all the other groups who helped make this happen.https://twitter.com/TracyDixonSalaz/status/1190265628961247233 …Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
LGS Foundation proslijedio/la je Tweet
Watching the
@LGS_Foundation PFDD livestream and feeling very emotional. These meetings are crucial for understanding and treatment progress. We have so much work to do in#raredisease. It can and will be done by champions like@TracyDixonSalaz.@US_FDA#clinicaltrialsHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
LGS Foundation proslijedio/la je Tweet
I am watching the live feed of the
@LGS_Foundation patient focused drug development meeting with awe and I stand inspired by these remarkable parents!
#LGS#lgsawarenessdaypic.twitter.com/L92527yh14
Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
If you'd like to share your LGS experience, we are listening. What is it like living with LGS? Email Tracy@LGSfoundtion.orghttps://twitter.com/TracyDixonSalaz/status/1190265628961247233 …
Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
LGS Foundation proslijedio/la je Tweet
We are live and we are listening. Email Tracy@lgsfoundation.org with comments.https://twitter.com/LGS_Foundation/status/1190252199646941184 …
Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi
-
#DELVE#PFDD Meeting on DEEs and#LennoxGastaut right now. Join live.https://www.youtube.com/watch?v=rB8VCPtJRTA …Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
DELVE PFDD meeting on DEEs and LGS goes live in 1 minute!https://www.youtube.com/watch?v=rB8VCPtJRTA …
Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
LGS Foundation proslijedio/la je Tweet
Its
@LGS_Foundation awareness day Lennox-gastaut syndrome is horrid it causes multiple seizures every day each one a threat to his life we are hoping the#NICE guidelines change so we can try#cbdoil friends have tried it and had huge improvement it could save James life
pic.twitter.com/hxuJl4NUob
Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
LGS Foundation proslijedio/la je Tweet
Many thanks to Representative Randy Weber for taking the time to meet with us today! The care and calm passion you showed for Samantha and our population was touching. Thank you for making us feel heard!
#CDKL5#LoulouFoundation@TXRandy14pic.twitter.com/7YX5RM5LIO
Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
LGS Foundation proslijedio/la je Tweet
#LennoxGastaut took my child’s voice. On Nov 1, we will speak on her behalf at the first patient-focused drug development (#PFDD) meeting for DEE/LGS. Join us. End#RareEpilepsy http://lgsfoundation.org/pfdd@US_FDA@LGS_Foundation#PatientExperience#PatientVoice#ListenToPatientspic.twitter.com/EfEqc89xDz
Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
LGS Foundation proslijedio/la je Tweet
Thanks to
@wsyx6 for featuring@LGS_Foundation for#LGSawareness day and#epilepsy awareness month during this morning’s#GoodDayColumbuspic.twitter.com/4gWl5LlDoN
Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi
Čini se da učitavanje traje već neko vrijeme.
Twitter je možda preopterećen ili ima kratkotrajnih poteškoća u radu. Pokušajte ponovno ili potražite dodatne informacije u odjeljku Status Twittera.