Laura G. Hoffman

@LGH_dc

policy nerd: privacy, health IT, cybersecurity, prior auth, and health justice. Views are my own. RT ≠ endorsements.

Washington, DC
Vrijeme pridruživanja: lipanj 2018.
13 fotografija ili videozapisa Fotografije i videozapisi

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  1. Prikvačeni tweet
    22. kol 2019.

    To help provide a *minimal* amount of transparency to patients about how a health app will use their health information, should implement a basic privacy framework requiring certified vendor to check an app’s “yes/no” attestations to... /6

    1 reply 10 korisnika označava da im se sviđa
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  2. prije 15 sati

    W/o control over how their is used, ppl will resort to workarounds, which leads to bad data, which creates potential for pt harm &stalls goals/R&D. Partic as we evaluate use of AI/ML in health care, consider that providing individuals with control benefits the greater good.

    New: Tired of being tracked online, teens have started using group accounts on Instagram to mess up its algorithms and the device metadata it collects. Some accounts can have as many as 20 people logged on:
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    4 proslijeđena tweeta 10 korisnika označava da im se sviđa
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  3. 31. sij

    Wow, quite a thread.

    “I am a danger to the public.” That’s what a pharmacist wrote to the Texas pharmacy board last year. Over the past few months, I’ve learned it is a concern echoed in some of the biggest retail pharmacies across the country.
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  4. proslijedio/la je Tweet
    31. sij

    Pence tonight made an unscheduled stop at Iowa diner, got grilled by this doctor who criticized Trump’s new Medicaid block grants —>

    1:48
    1/2 I just ran into Mike Pence at the Drake Diner in Des Moines. I confronted him about his damaging health care cuts because for me it's not about politics, it's about saving lives.
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    25 replies 252 proslijeđena tweeta 571 korisnik označava da mu se sviđa
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  5. proslijedio/la je Tweet
    29. sij

    We teamed up with on a 3-part series to talk about the future of with patients, consumers, and family caregivers. Here’s what we learned: .

    2 proslijeđena tweeta 3 korisnika označavaju da im se sviđa
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  6. 30. sij

    Appreciate & sharing insights from patients about the promises & pitfalls of emerging health tech. These points should be front of mind for folks working in this space; to maintain pt trust, we must address pitfalls as we work towards promises.

    2 proslijeđena tweeta 5 korisnika označava da im se sviđa
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  7. proslijedio/la je Tweet
    30. sij

    The best of intentions can be misunderstood without transparency, especially in healthcare. We need to tackle the jurisdiction of HIPPA and be able to talk to people plainly about their data and what is done with it.

    2 proslijeđena tweeta 4 korisnika označavaju da im se sviđa
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  8. proslijedio/la je Tweet
    30. sij

    “We need to be evangelical about the promise and the risk. It is our job in this room to make sure there is not an abuse because if there is an abuse, all of that potential will be lost. We have to have interoperability”

    2 proslijeđena tweeta 4 korisnika označavaju da im se sviđa
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  9. proslijedio/la je Tweet
    30. sij

    We should be paying more attention to sharing small data. When consumers get information, they may want to share bits and pieces but not their entire medical record. Patients should be able to share what they want with who they want.

    5 proslijeđenih tweetova 6 korisnika označava da im se sviđa
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  10. proslijedio/la je Tweet
    29. sij

    As these health apps grow in popularity, so do concerns about privacy. Over 22,000 consumers have signed our petition demanding health app companies put . Add your name:

    3 proslijeđena tweeta 4 korisnika označavaju da im se sviđa
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  11. proslijedio/la je Tweet
    28. sij
    Odgovor korisniku/ci

    Right. Shutting down access is NOT the answer. Rather, we can & should arm pts w/ info w/o increasing friction. AMA urges transparency-not barriers-in final rule. Empower pts w/ their data AND info about what their app does. No reason this can't be done.

    To help provide a *minimal* amount of transparency to patients about how a health app will use their health information, should implement a basic privacy framework requiring certified vendor to check an app’s “yes/no” attestations to... /6
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    2 proslijeđena tweeta 3 korisnika označavaju da im se sviđa
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  12. proslijedio/la je Tweet
    29. sij

    We are so incredibly fucked

    spreadsheet showing tons of time stamps and 'NextPageWithTap' 2018-01-31T23:39:05.000Z 2018-01-31T23:39:03.000Z NextPageWithTap Book:Reading:MainContent 2018-01-31T23:21:03.000Z 2018-01-31T23:39:05.000Z 2018-01-31T23:39:03.000Z Book:Reading:MainContent 2018-01-31T23:21:03.000Z Text 2018-01-31T23:39:05.000Z 2018-01-31T23:39:03.000Z Book:Reading:MainContent 2018-01-31T23:21:03.000Z PHL
    Amazon appears to be tracking every tap on Kindle. I just got my data back and there are 90K rows of this
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    1 proslijeđeni tweet 5 korisnika označava da im se sviđa
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  13. proslijedio/la je Tweet
    28. sij

    A little louder for the people in the back. 📢 1 - Patients need not choose between privacy and access. 2 - PRIVACY BY DESIGN = transparency from tech platforms + enforcement of our rights. 3 - Privacy and access to our own health data = INALIENABLE HUMAN RIGHT.

    Access and privacy not one or the other
    23 proslijeđena tweeta 52 korisnika označavaju da im se sviđa
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  14. 28. sij

    Let's not forget the huge journalism "campaign" documenting apps selling pt data w/o a patient's knowledge & in violation of privacy policies on a daily basis. ONC can & should give patients health data AND privacy info. Stop pretending it has to be one or the other.

    ONC’s says there’s been a “huge marketing campaign” on the risks of patients’ data getting out, but maintains that those risks shouldn’t stop patients from getting their own data and deciding what to do with it
    3 proslijeđena tweeta 22 korisnika označavaju da im se sviđa
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  15. proslijedio/la je Tweet
    28. sij

    When Insurance Won't Cover Drugs, Americans Make 'Tough Choices' About Their Health

    4 proslijeđena tweeta 6 korisnika označava da im se sviđa
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  16. proslijedio/la je Tweet
    28. sij

    Who watches the baby watchers? By with

    1 reply 35 proslijeđenih tweetova 173 korisnika označavaju da im se sviđa
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  17. 28. sij

    Thank you for this question! can (& shld) use its authority to regulate certified to ask an app about its privacy practices. MPN? Privacy by design? Code of Conduct? Regardless of answer, app connects. But pts not only get health data: they get privacy info.

    How do we protect patients & organizations w/ simultaneously improving patient access? at draws critical distinction -"When the patient brings their data from the hospital to an outside mobile app, oversight changes from HIPAA to the FTC."
    1 proslijeđeni tweet 7 korisnika označava da im se sviđa
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  18. proslijedio/la je Tweet
    28. sij
    Odgovor korisnicima

    Here is a case study for FTC enforces PHR breach notification rule. I support and ONC rules but we cannot pretend this problem is “out of scope.” Need privacy standards for these apps.

    1 reply 5 proslijeđenih tweetova 5 korisnika označava da im se sviđa
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  19. 27. sij

    Thank you to for a great couple of panels on in health care with (and special thanks to for pulling double moderator duty!). Lots to think about: good, bad, & ugly. The looks forward to continuing the conversation!

    4 proslijeđena tweeta 11 korisnika označava da im se sviđa
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  20. proslijedio/la je Tweet
    27. sij

    wild scoop by Motherboard this is what happens when you have no restraints. companies quietly collect and then sell your "every click" on "every site" (under the guise of anti-virus software!)

    SCOOP: Leaked documents show that the world's largest companies, including Google, Microsoft, McKinsey, Bain, Altria, etc. are spending millions tracking your every click around the internet:
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    11 proslijeđenih tweetova 22 korisnika označavaju da im se sviđa
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  21. 27. sij

    So interesting that all these big tech companies want the rules finalized without any transparency provisions requiring ppl to be told what apps will do with their data. Wonder why that is... 🤔

    Another new attendee from the tech world: Google. Both from cloud and from health are now listed as attendees to the meeting. The aim is to push for the HHS rules to prevent data blocking to be finalized & released
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